Literature DB >> 25484564

Review of cross-cultural issues related to quality of life after spinal cord injury.

Denise Tate1, Martin Forchheimer1.   

Abstract

Quality of life (QOL) is a dynamic concept that means different things to different people, both in the general public and within the research community. Because of this, a common definition of QOL has been hard to achieve. This article reviews cross-cultural issues related to QOL research in spinal cord injury (SCI). Many factors influence QOL for persons with SCI, including observable and objective indicators and subjective self-report ones. The World Health Organization's International Classification of Function, Disability and Health is used in this article as a framework to better understand how these factors may influence QOL. A number of important steps are summarized with respect to measurement issues in QOL. A comparison between data from 2 countries (United States and Brazil) using the International SCI QOL Basic Data Set shows similarities in scores and good reliability in the Brazilian sample. Substantial, significant correlations were observed among the SCI QOL Basic Data Set items and the WHOQOL-BREF within the US sample. The article ends with a set of recommendations for the development of cross-cultural measures of QOL for use in the SCI population.

Entities:  

Keywords:  cross-cultural; data sets; internationality; measurement; quality of life; spinal cord injury

Year:  2014        PMID: 25484564      PMCID: PMC4257150          DOI: 10.1310/sci2003-181

Source DB:  PubMed          Journal:  Top Spinal Cord Inj Rehabil        ISSN: 1082-0744


  37 in total

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Journal:  Spinal Cord       Date:  2012-10-30       Impact factor: 2.772

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Authors:  Michelle A Meade; Allen Lewis; M Njeri Jackson; David W Hess
Journal:  Arch Phys Med Rehabil       Date:  2004-11       Impact factor: 3.966

9.  Issues in participation measurement in research and clinical applications.

Authors:  Allen W Heinemann; David Tulsky; Marcel Dijkers; Margaret Brown; Susan Magasi; Wayne Gordon; Holly DeMark
Journal:  Arch Phys Med Rehabil       Date:  2010-09       Impact factor: 3.966

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Journal:  Am J Phys Med Rehabil       Date:  2004-05       Impact factor: 2.159

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  6 in total

1.  A validity study of the Spanish-World Health Organization Quality of Life short version instrument in persons with traumatic spinal cord injury.

Authors:  Sebastián Salvador-De La Barrera; Rubén Mora-Boga; Mª Elena Ferreiro-Velasco; Teresa Seoane-Pillado; Antonio Montoto-Marqués; Antonio Rodríguez-Sotillo; Sonia Pertega Díaz
Journal:  Spinal Cord       Date:  2018-05-23       Impact factor: 2.772

2.  Reproducibility of the international spinal cord injury quality of life basic data set: an international psychometric study.

Authors:  Marcel W M Post; Martin B Forchheimer; Susan Charlifue; Julia Maria D'Andréa Greve; Peter W New; Denise G Tate
Journal:  Spinal Cord       Date:  2019-06-05       Impact factor: 2.772

3.  Quality of life and its predictors in people with traumatic spinal cord injury in mainland China.

Authors:  Yanbo Wang; Xudong Zhao; Haixia Xie
Journal:  Spinal Cord       Date:  2019-04-15       Impact factor: 2.772

4.  Preliminary psychometric analyses of the International Spinal Cord Injury Quality of Life Basic Data Set.

Authors:  Peter Wayne New; Denise G Tate; Martin B Forchheimer; Julia Maria D'Andréa Greve; Divya Parashar; Marcel W M Post
Journal:  Spinal Cord       Date:  2019-03-27       Impact factor: 2.772

5.  Longitudinal measurement invariance of the international spinal cord injury quality of life basic data set (SCI-QoL-BDS) during spinal cord injury/disorder inpatient rehabilitation.

Authors:  Simon Kunz; Valerie Carrard; Mayra Galvis Aparicio; Anke Scheel-Sailer; Christine Fekete; Peter Lude; Marcel W M Post; Maren Westphal
Journal:  Qual Life Res       Date:  2021-11-03       Impact factor: 4.147

6.  Quality of life among individuals with rugby-related spinal cord injuries in South Africa: a descriptive cross-sectional study.

Authors:  Marelise Badenhorst; James Craig Brown; Mike I Lambert; Willem Van Mechelen; Evert Verhagen
Journal:  BMJ Open       Date:  2018-06-30       Impact factor: 2.692

  6 in total

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