Literature DB >> 25479775

Effects of caregiving on the families of children and adults with disabilities.

Henry G Chambers1, Jill A Chambers2.   

Abstract

Parents of children with disabilities encounter stresses unlike those of families with typically developing children. Medical professionals must appreciate that they are not only treating the child but also the family. A state-of-the-art understanding of their patient's disability is implied, but they must also understand the dynamics of raising a child with a disability, appreciate the different models of health care delivery, and provide guidance in transition to adulthood in healthcare as well as life (education, living arrangements, conservancy, etc). An awareness of the physical and mental health impacts on the parents of a child with a chronic disability should also be appreciated.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Caregivers; Chronic disability; Quality of life

Mesh:

Year:  2015        PMID: 25479775     DOI: 10.1016/j.pmr.2014.09.004

Source DB:  PubMed          Journal:  Phys Med Rehabil Clin N Am        ISSN: 1047-9651            Impact factor:   1.784


  7 in total

1.  Health Care Transitions for Adolescents and Young Adults With Special Health Care Needs: Where Are We Now?

Authors:  Nicole Mubanga; Dennis J Baumgardner; Jessica J F Kram
Journal:  J Patient Cent Res Rev       Date:  2017-04-25

2.  Burden of caregiving after a child's in-hospital cardiac arrest.

Authors:  Kathleen Meert; Beth S Slomine; James R Christensen; Russell Telford; Richard Holubkov; J Michael Dean; Frank W Moler
Journal:  Resuscitation       Date:  2018-03-27       Impact factor: 5.262

3.  Family Burden After Out-of-Hospital Cardiac Arrest in Children.

Authors:  Kathleen L Meert; Beth S Slomine; James R Christensen; Russell Telford; Richard Holubkov; J Michael Dean; Frank W Moler
Journal:  Pediatr Crit Care Med       Date:  2016-06       Impact factor: 3.624

4.  Health-Related Quality of Life After Community-Acquired Septic Shock in Children With Preexisting Severe Developmental Disabilities.

Authors:  Kathleen L Meert; Ron W Reeder; Aline B Maddux; Russell Banks; Robert A Berg; Christopher J Newth; Mark W Hall; Michael Quasney; Joseph A Carcillo; Patrick S McQuillen; Peter M Mourani; Ranjit S Chima; Richard Holubkov; Samuel Sorenson; Julie McGalliard; J Michael Dean; Jerry J Zimmerman
Journal:  Pediatr Crit Care Med       Date:  2021-05-01       Impact factor: 3.971

5.  Predictors of Coordinated and Comprehensive Care Within a Medical Home for Children With Special Healthcare (CHSCN) Needs.

Authors:  Ashley Walker; John G Peden; Morgan Emter; Gavin Colquitt
Journal:  Front Public Health       Date:  2018-06-07

6.  Mental Health and Health Behaviour Changes for Mothers of Children with a Disability: Effectiveness of a Health and Wellbeing Workshop.

Authors:  Helen M Bourke-Taylor; Kahli S Joyce; Sarah Grzegorczyn; Loredana Tirlea
Journal:  J Autism Dev Disord       Date:  2021-03-16

7.  Disrupted Access to Therapies and Impact on Well-Being During the COVID-19 Pandemic for Children With Motor Impairment and Their Caregivers.

Authors:  Ellen N Sutter; Linda Smith Francis; Sunday M Francis; Daniel H Lench; Samuel T Nemanich; Linda E Krach; Theresa Sukal-Moulton; Bernadette T Gillick
Journal:  Am J Phys Med Rehabil       Date:  2021-09-01       Impact factor: 3.412

  7 in total

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