Joanna Smith1, Veronica Swallow2, Imelda Coyne3. 1. School of Human & Health Sciences, Division of Maternal and Child Health, University of Huddersfield, Huddersfield, UK. Electronic address: j.e.smith@hud.ac.uk. 2. School of Nursing, Midwifery and Social Work, Jean McFarlane Building, University of Manchetser, Manchester, UK. 3. School of Nursing & Midwifery, Trinity College Dublin, Dublin 2, Ireland.
Abstract
UNLABELLED: BACKGROUNG: Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions. METHODS: A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care. RESULTS: Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child. CONCLUSION: The key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.
UNLABELLED: BACKGROUNG: Fostering effective engagement, collaboration and empowerment are central to supporting parents caring for children with long-term conditions. METHODS: A concept synthesis was undertaken to identify the shared antecedents and attributes underpinning models of family-centered care and partnership-in-care. RESULTS: Thirty studies were reviewed; antecedents of models related to unclear roles, entrenched professional practices, and lack of guidelines supporting their implementation; with central attributes being building trust, listening to parent concerns and valuing parents' knowledge of their child. CONCLUSION: The key attributes are outlined in a practical framework of involvement which may promote parent-professional collaboration for families of children with long-term conditions.
Authors: Dawn T Bounds; Dominka A Winiarski; Caitlin H Otwell; Valerie Tobin; Angela C Glover; Adrian Melendez; Niranjan S Karnik Journal: J Child Adolesc Psychiatr Nurs Date: 2020-07-20