| Literature DB >> 25450442 |
Kate Oulton1, Debbie Sell2, Sam Kerry2, Faith Gibson3.
Abstract
This ethnographic study sought parent, patient and staff views about the needs of children and young people with learning disability and their families during hospitalization. Reported here are data from 27 staff. The need for individualized care was identified, based on gaining appropriate experience and training, identifying the population, focussing on the "little things", creating a safe, familiar environment and accessing and using appropriate resources. Parents played a central role in staff's delivery of individualized care. A lack of staff experience, knowledge and communication about learning disability can mean they rely on parent's input rather than forming a true partnership with them.Entities:
Keywords: Children and young people; Hospital care; Learning disability; Parent–staff relationship; Qualitative research
Mesh:
Year: 2014 PMID: 25450442 DOI: 10.1016/j.pedn.2014.10.006
Source DB: PubMed Journal: J Pediatr Nurs ISSN: 0882-5963 Impact factor: 2.145