Literature DB >> 25450442

Individualizing hospital care for children and young people with learning disabilities: it's the little things that make the difference.

Kate Oulton1, Debbie Sell2, Sam Kerry2, Faith Gibson3.   

Abstract

This ethnographic study sought parent, patient and staff views about the needs of children and young people with learning disability and their families during hospitalization. Reported here are data from 27 staff. The need for individualized care was identified, based on gaining appropriate experience and training, identifying the population, focussing on the "little things", creating a safe, familiar environment and accessing and using appropriate resources. Parents played a central role in staff's delivery of individualized care. A lack of staff experience, knowledge and communication about learning disability can mean they rely on parent's input rather than forming a true partnership with them.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Children and young people; Hospital care; Learning disability; Parent–staff relationship; Qualitative research

Mesh:

Year:  2014        PMID: 25450442     DOI: 10.1016/j.pedn.2014.10.006

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  6 in total

1.  Mapping staff perspectives towards the delivery of hospital care for children and young people with and without learning disabilities in England: a mixed methods national study.

Authors:  Kate Oulton; Faith Gibson; Lucinda Carr; Angela Hassiotis; Carey Jewitt; Charlotte Kenten; Jessica Russell; Mark Whiting; Irene Tuffrey-Wijne; Jo Wray
Journal:  BMC Health Serv Res       Date:  2018-03-23       Impact factor: 2.655

2.  Dental health care for children with Down syndrome: Parents' description of their children's needs in dental health care settings.

Authors:  Malin Stensson; Johanna Norderyd; Marcia Van Riper; Luc Marks; Maria Björk
Journal:  Eur J Oral Sci       Date:  2022-02-26       Impact factor: 2.160

3.  Parental experiences of caring for children who have learning disabilities and procedural anxiety in hospital: An interpretive phenomenological study.

Authors:  Lauren Murdoch; Yan-Shing Chang
Journal:  Child Care Health Dev       Date:  2022-03-01       Impact factor: 2.943

4.  'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.

Authors:  Laurel Mimmo; Michael Hodgins; Nora Samir; Joanne Travaglia; Susan Woolfenden; Reema Harrison
Journal:  J Adv Nurs       Date:  2022-04-22       Impact factor: 3.057

5.  Improving communication between staff and disabled children in hospital wards: testing the feasibility of a training intervention developed through intervention mapping.

Authors:  Rebecca Gumm; Eleanor Thomas; Claire Lloyd; Helen Hambly; Richard Tomlinson; Stuart Logan; Christopher Morris
Journal:  BMJ Paediatr Open       Date:  2017-09-11

Review 6.  Partnerships for safe care: A meta-narrative of the experience for the parent of a child with Intellectual Disability in hospital.

Authors:  Laurel Mimmo; Susan Woolfenden; Joanne Travaglia; Reema Harrison
Journal:  Health Expect       Date:  2019-09-27       Impact factor: 3.377

  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.