Literature DB >> 25450440

Striving to live a normal life: a review of children and young people's experience of feeling different when living with a long term condition.

Veronica Lambert1, Deborah Keogh2.   

Abstract

This paper presents a review of findings from qualitative studies on children's experience of feeling different when living with the long term conditions; diabetes, epilepsy and asthma. Following electronic database and hand searches of reference lists of identified papers, eighteen studies were selected for inclusion in the review. These studies revealed three common themes; participation in everyday life-restrictions and adjustments; treatment regimens-constraining and enabling; and communication-disclosure, stigma and support. Across these themes it was evident that children felt different physically and socially and they grappled constantly with balancing the dilemma of feeling and acting normal or feeling, being and revealing difference.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Children; Feeling different; Literature review; Long-term condition; Normalcy

Mesh:

Year:  2014        PMID: 25450440     DOI: 10.1016/j.pedn.2014.09.016

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  15 in total

1.  Diabetes-specific friend support in emerging adults with type 1 diabetes: Does satisfaction with support matter?

Authors:  Koen Raymaekers; Vicki S Helgeson; Sofie Prikken; Janne Vanhalst; Philip Moons; Eva Goossens; Cynthia A Berg; Koen Luyckx
Journal:  J Behav Med       Date:  2021-03-07

2.  Critical user-configurations in mHealth design: How mHealth-app design practices come to bias design against chronically ill children and young people as mHealth users.

Authors:  Claudia M Bagge-Petersen; Henriette Langstrup; Jakob E Larsen; Anne Frølich
Journal:  Digit Health       Date:  2022-06-15

3.  "They called me a terrorist": Social and Internalized Stigma in Latino Youth with Type 1 Diabetes.

Authors:  Gladys Crespo-Ramos; Eduardo Cumba-Avilés; Martha Quiles-Jiménez
Journal:  Health Psychol Rep       Date:  2018-11-28

4.  The Role of Medication in Supporting Emotional Wellbeing in Young People with Long-Term Needs.

Authors:  Nicola J Gray; Damian M Wood
Journal:  Healthcare (Basel)       Date:  2017-11-03

Review 5.  Connecting the Mind-Body Split: Understanding the Relationship between Symptoms and Emotional Well-Being in Chronic Pain and Functional Gastrointestinal Disorders.

Authors:  Line Caes; Alex Orchard; Deborah Christie
Journal:  Healthcare (Basel)       Date:  2017-12-05

Review 6.  Interventions to Support Integrated Psychological Care and Holistic Health Outcomes in Paediatrics.

Authors:  Roz Shafran; Sophie D Bennett; Mhairi McKenzie Smith
Journal:  Healthcare (Basel)       Date:  2017-08-16

7.  Barriers and facilitators to taking on diabetes self-management tasks in pre-adolescent children with type 1 diabetes: a qualitative study.

Authors:  David Rankin; Jeni Harden; Katharine Barnard; Louise Bath; Kathryn Noyes; John Stephen; Julia Lawton
Journal:  BMC Endocr Disord       Date:  2018-10-13       Impact factor: 2.763

8.  Daily life participation in childhood chronic disease: a qualitative study on the child's and parent's perspective.

Authors:  Merel M Nap-van der Vlist; Emma E Berkelbach van der Sprenkel; Linde N Nijhof; Martha A Grootenhuis; Cornelis K van der Ent; Joost F Swart; Annet van Royen-Kerkhof; Martine van Grotel; Elise M van de Putte; Sanne L Nijhof; Marijke C Kars
Journal:  BMJ Paediatr Open       Date:  2021-05-18

9.  The "Face" of Diabetes: Insight Into Youths' Experiences as Expressed Through Drawing.

Authors:  Kathleen M Elertson; Shari K Liesch; Elizabeth K Babler
Journal:  J Patient Exp       Date:  2016-06-16

10.  Pre-adolescent children's experiences of receiving diabetes-related support from friends and peers: A qualitative study.

Authors:  David Rankin; Jeni Harden; Katharine D Barnard; John Stephen; Simita Kumar; Julia Lawton
Journal:  Health Expect       Date:  2018-07-02       Impact factor: 3.377

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.