Michel H C Bleijlevens1, Minna Stolt2, Astrid Stephan3, Adelaida Zabalegui4, Kai Saks5, Caroline Sutcliffe6, Connie Lethin7, Maria E Soto8, Sandra M G Zwakhalen1. 1. School CAPHRI/Department of HSR, Maastricht University, the Netherlands. 2. Department of Nursing Science, Faculty of Medicine, University of Turku, Finland. 3. School of Nursing Science, Witten/Herdecke University, Germany. 4. Hospital Clinic of Barcelona, Spain. 5. Department of Internal Medicine, University of Tartu, Estonia. 6. Personal Social Services Research Unit, University of Manchester, UK. 7. Faculty of Medicine, Department of Nursing Science, Lund University, Sweden. 8. Geriatrics Departement, INSERM U 1027, Toulouse University Hospital, France.
Abstract
AIMS: To describe differences in caregiver burden and health-related quality of life of informal caregivers of people with dementia in eight European countries and assess changes after transition from home to institutional long-term care. BACKGROUND: Country differences in the experience of burden and health-related quality of life are rarely described. DESIGN: Prospective cohort study. METHODS: Data on burden and health-related quality of life were collected at baseline (conducted between November 2010-April 2012) and follow-up (after 3 months) using face-to-face interviews. Two groups of informal caregivers included those: (1) of people with dementia recently admitted to institutional long-term care facilities; and those (2) of people with dementia receiving home care. Statistical analyses focused on descriptive comparisons between groups and countries. RESULTS: Informal caregivers of about 2014 were interviewed. Informal caregivers of people with dementia at home experienced more burden compared with informal caregivers of recently institutionalised people with dementia. Almost no differences in health-related quality of life were found between groups. Large differences between countries on outcomes were found. Informal caregivers of people with dementia who made the transition to an institutional long-term care facility experienced a statistically significant decrease in burden and psychological distress at follow-up. CONCLUSION: Cross-country differences may be related to differences in health and social care systems. Taking this into account, informal caregiver interventions need to be tailored to (country specific) contexts and (individual) needs. Findings highlight the positive impact of admission to institutional long-term care on informal caregiver well-being.
AIMS: To describe differences in caregiver burden and health-related quality of life of informal caregivers of people with dementia in eight European countries and assess changes after transition from home to institutional long-term care. BACKGROUND: Country differences in the experience of burden and health-related quality of life are rarely described. DESIGN: Prospective cohort study. METHODS: Data on burden and health-related quality of life were collected at baseline (conducted between November 2010-April 2012) and follow-up (after 3 months) using face-to-face interviews. Two groups of informal caregivers included those: (1) of people with dementia recently admitted to institutional long-term care facilities; and those (2) of people with dementia receiving home care. Statistical analyses focused on descriptive comparisons between groups and countries. RESULTS: Informal caregivers of about 2014 were interviewed. Informal caregivers of people with dementia at home experienced more burden compared with informal caregivers of recently institutionalised people with dementia. Almost no differences in health-related quality of life were found between groups. Large differences between countries on outcomes were found. Informal caregivers of people with dementia who made the transition to an institutional long-term care facility experienced a statistically significant decrease in burden and psychological distress at follow-up. CONCLUSION: Cross-country differences may be related to differences in health and social care systems. Taking this into account, informal caregiver interventions need to be tailored to (country specific) contexts and (individual) needs. Findings highlight the positive impact of admission to institutional long-term care on informal caregiver well-being.
Authors: Cristina Valcárcel-Nazco; Yolanda Ramallo-Fariña; Renata Linertová; Juan Manuel Ramos-Goñi; Lidia García-Pérez; Pedro Serrano-Aguilar Journal: Int J Environ Res Public Health Date: 2022-07-05 Impact factor: 4.614
Authors: Catherine Reed; Annabel Barrett; Jeremie Lebrec; Richard Dodel; Roy W Jones; Bruno Vellas; Anders Wimo; Josep Maria Argimon; Giuseppe Bruno; Josep Maria Haro Journal: Health Qual Life Outcomes Date: 2017-01-21 Impact factor: 3.186
Authors: Carmen M Sarabia-Cobo; Paula Parás-Bravo; Francisco José Amo-Setién; Ana Rosa Alconero-Camarero; María Sáenz-Jalón; Blanca Torres-Manrique; Raquel Sarabia-Lavín; Angela Fernández-Rodríguez; Tamara Silio-García; Rosario Fernández-Peña; María Paz-Zulueta; Miguel Santibáñez-Margüello Journal: PLoS One Date: 2017-01-09 Impact factor: 3.240