Literature DB >> 25391918

Disease, communication, and the ethics of (in) visibility.

Monika Monika Pietrzak-Franger1, Martha Stoddard Holmes.   

Abstract

As the recent Ebola outbreak demonstrates, visibility is central to the shaping of political, medical, and socioeconomic decisions. The symposium in this issue of the Journal of Bioethical Inquiry explores the uneasy relationship between the necessity of making diseases visible, the mechanisms of legal and visual censorship, and the overall ethics of viewing and spectatorship, including the effects of media visibility on the perception of particular "marked" bodies. Scholarship across the disciplines of communication, anthropology, gender studies, and visual studies, as well as a photographer's visual essay and memorial reflection, throw light on various strategies of visualization and (de)legitimation and link these to broader socioeconomic concerns. Questions of the ethics of spectatorship, such as how to evoke empathy in the representation of individuals' suffering without perpetuating social and economic inequalities, are explored in individual, (trans-)national, and global contexts, demonstrating how disease (in)visibility intersects with a complex nexus of health, sexuality, and global/national politics. A sensible management of visibility--an "ecology of the visible"--can be productive of more viable ways of individual and collective engagement with those who suffer.

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Year:  2014        PMID: 25391918     DOI: 10.1007/s11673-014-9588-2

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  5 in total

1.  Editors' preface: cancer stories. Preface.

Authors:  Jane E Schultz; Martha Stoddard Holmes
Journal:  Lit Med       Date:  2009

2.  Documenting women's postoperative bodies: Knowing Stephanie and "Remembering Stephanie" as collaborative cancer narratives.

Authors:  Mary K DeShazer
Journal:  J Bioeth Inq       Date:  2014-10-23       Impact factor: 1.352

3.  "When pirates feast … who pays?" condoms, advertising, and the visibility paradox, 1920s and 1930s.

Authors:  Paula A Treichler
Journal:  J Bioeth Inq       Date:  2014-11-25       Impact factor: 1.352

4.  Disease, risk, and contagion: French colonial and postcolonial constructions of "African" bodies.

Authors:  Carolyn Sargent; Stéphanie Larchanché
Journal:  J Bioeth Inq       Date:  2014-10-08       Impact factor: 1.352

5.  African Kaposi's sarcoma in the light of global AIDS: antiblackness and viral visibility.

Authors:  Pawan Singh; Lisa Cartwright; Cristina Visperas
Journal:  J Bioeth Inq       Date:  2014-10-11       Impact factor: 2.216

  5 in total
  1 in total

1.  Art, (in)visibility, and Ebola: "What are the consequences of a digitally-created society in the psyche of the global community?".

Authors:  Leigh E Rich; Michael A Ashby; David M Shaw
Journal:  J Bioeth Inq       Date:  2014-11-23       Impact factor: 1.352

  1 in total

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