Literature DB >> 25385685

A pilot randomized controlled trial of a post-discharge program to support emerging adults with type 1 diabetes mellitus transition from pediatric to adult care.

Katharine S Steinbeck1,2, Vanessa A Shrewsbury1, Vanessa Harvey3, Kara Mikler4, Kim C Donaghue2,5, Maria E Craig2,5, Helen J Woodhead4.   

Abstract

AIMS: There is a paucity of randomized controlled trials (RCT) examining transition from pediatric to adult care in type 1 diabetes mellitus (T1DM). This study aimed to determine if transition in T1DM is more effective with a comprehensive transition program (CTP) compared with standard clinical practice (SCP).
METHODS: This RCT recruited as young people left pediatric diabetes services. The trial co-ordinator provided CTP participants with standardized telephone communication support at week 1, and 3, 6, and 12 months post-discharge from pediatric care. SCP participants were briefly contacted at 6 and 12 months post-discharge to confirm transfer status; they received no other post-discharge contact as per usual practice. At 12 months, the primary outcomes were engagement and retention in the adult service and secondary outcomes included hemoglobin A1c (HbA1c), diabetes-related hospitalizations, microvascular complication appearance, and global self-worth.
RESULTS: Most CTP participants (11/14) and all SCP (12/12) participants (P = 0.2) transferred to an adult diabetes service; the median time to transfer was 14-15 wk. Overall, participants' frequency of adult diabetes service visits was sub-optimal but their retention in adult care was high. The only group difference was a higher HbA1c at baseline and follow-up in the CTP group. However, a general linear model found that follow-up HbA1c increased by 1.2% for each percentage increase in baseline HbA1c [95% confidence interval (0.4, 1.9; P = 0.01)], independent of treatment group.
CONCLUSIONS: Despite the challenges in recruiting adequate numbers, these findings provide valuable insights for future T1DM transition RCTs that are needed to build a more solid evidence-base in this field.
© 2014 John Wiley & Sons A/S. Published by John Wiley & Sons Ltd.

Entities:  

Keywords:  pediatrics; randomized trial; transition to adult care; type 1 diabetes mellitus

Mesh:

Year:  2014        PMID: 25385685     DOI: 10.1111/pedi.12229

Source DB:  PubMed          Journal:  Pediatr Diabetes        ISSN: 1399-543X            Impact factor:   4.866


  17 in total

1.  Resilient, Empowered, Active Living with Diabetes (REAL Diabetes) study: Methodology and baseline characteristics of a randomized controlled trial evaluating an occupation-based diabetes management intervention for young adults.

Authors:  Elizabeth A Pyatak; Kristine Carandang; Cheryl Vigen; Jeanine Blanchard; Paola A Sequeira; Jamie R Wood; Donna Spruijt-Metz; Robin Whittemore; Anne L Peters
Journal:  Contemp Clin Trials       Date:  2017-01-05       Impact factor: 2.226

2.  Feasibility of a Manualized Occupation-Based Diabetes Management Intervention.

Authors:  Kristine M Carandang; Elizabeth A Pyatak
Journal:  Am J Occup Ther       Date:  2018 Mar/Apr

Review 3.  A Practice in Maturation: Current Perspectives on the Transition from Pediatric to Adult Care for Young Adults with Diabetes.

Authors:  Courtney N Sandler; Katharine C Garvey
Journal:  Curr Diab Rep       Date:  2019-11-14       Impact factor: 4.810

4.  Occupational Therapy Intervention Improves Glycemic Control and Quality of Life Among Young Adults With Diabetes: the Resilient, Empowered, Active Living with Diabetes (REAL Diabetes) Randomized Controlled Trial.

Authors:  Elizabeth A Pyatak; Kristine Carandang; Cheryl L P Vigen; Jeanine Blanchard; Jesus Diaz; Alyssa Concha-Chavez; Paola A Sequeira; Jamie R Wood; Robin Whittemore; Donna Spruijt-Metz; Anne L Peters
Journal:  Diabetes Care       Date:  2018-01-19       Impact factor: 19.112

Review 5.  Systematic Review of the Impact of Transition Interventions for Adolescents With Chronic Illness on Transfer From Pediatric to Adult Healthcare.

Authors:  Patricia Y Chu; Gary R Maslow; Megan von Isenburg; Richard J Chung
Journal:  J Pediatr Nurs       Date:  2015-07-22       Impact factor: 2.145

6.  Increasing evidence of the benefits of a transition coordinator in type 1 diabetes.

Authors:  Mary White; Michele O'Connell; Katharine Steinbeck; Raghu Lingam; Fergus Cameron
Journal:  Diabetologia       Date:  2021-08-14       Impact factor: 10.122

7.  Perspectives on care for young adults with type 1 diabetes transitioning from pediatric to adult health systems: A national survey of pediatric endocrinologists.

Authors:  Shivani Agarwal; Katharine C Garvey; Jennifer K Raymond; Mark H Schutta
Journal:  Pediatr Diabetes       Date:  2016-08-31       Impact factor: 4.866

8.  Let's Empower and Prepare (LEAP): Evaluation of a Structured Transition Program for Young Adults With Type 1 Diabetes.

Authors:  Paola A Sequeira; Elizabeth A Pyatak; Marc J Weigensberg; Cheryl P Vigen; Jamie R Wood; Valerie Ruelas; Lucy Montoya; Marisa Cohen; Heather Speer; Susan Clark; Anne L Peters
Journal:  Diabetes Care       Date:  2015-04-23       Impact factor: 19.112

9.  Type 1 diabetes: addressing the transition from pediatric to adult-oriented health care.

Authors:  Maureen Monaghan; Katherine Baumann
Journal:  Res Rep Endocr Disord       Date:  2016-04-13

10.  Evaluating outpatient transition clinics: a mixed-methods study protocol.

Authors:  Jane N T Sattoe; Mariëlle A C Peeters; Sander R Hilberink; Erwin Ista; AnneLoes van Staa
Journal:  BMJ Open       Date:  2016-08-26       Impact factor: 2.692

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