Literature DB >> 25385131

Health care professionals' perspectives of the experiences of family caregivers during in-patient cancer care.

Mirjam Ekstedt1, Una Stenberg2, Mariann Olsson3, Cornelia M Ruland4.   

Abstract

Being a family member of a patient who is being treated in an acute care setting for cancer often involves a number of challenges. Our study describes Norwegian cancer care health professionals' perceptions of family members who served as family caregivers (FCs) and their need for support during the in-hospital cancer treatment of their ill family member. Focus group discussions were conducted with a multidisciplinary team of 24 experienced social workers, physicians, and nurses who were closely involved in the patients' in-hospital cancer treatment and care. Drawing on qualitative hermeneutic analysis, four main themes describe health professionals' perceptions of FCs during the patient's in-hospital cancer care: an asset and additional burden, infinitely strong and struggling with helplessness, being an outsider in the center of care, and being in different temporalities. We conclude that it is a challenge for health care professionals to support the family and create room for FC's needs in acute cancer care. System changes are needed in health care, so that the patient/FC dyad is viewed as a unit of care in a dual process of caregiving, which would enable FCs to be given space and inclusion in care, with their own needs simultaneously considered alongside those of the patient.
© The Author(s) 2014.

Entities:  

Keywords:  Norway; cancer; family caregivers; family-focused care; health care professional’s perceptions of family; in-patient cancer care

Mesh:

Year:  2014        PMID: 25385131     DOI: 10.1177/1074840714556179

Source DB:  PubMed          Journal:  J Fam Nurs        ISSN: 1074-8407            Impact factor:   3.818


  8 in total

1.  Responding to challenging interactions with families: A training module for inpatient oncology nurses.

Authors:  Talia I Zaider; Smita C Banerjee; Ruth Manna; Nessa Coyle; Cassandra Pehrson; Stacey Hammonds; Carol A Krueger; Carma L Bylund
Journal:  Fam Syst Health       Date:  2016-09       Impact factor: 1.950

2.  An emotional roller coaster - family members' experiences of being a caregiver throughout a cancer trajectory.

Authors:  Monica Solberg; Geir Vegard Berg; Hege Kristin Andreassen
Journal:  Int J Qual Stud Health Well-being       Date:  2022-12

3.  Understanding of Health-related Decision-making Terminology Among Cancer Caregivers.

Authors:  Karen O Moss; Sara L Douglas; Amy R Lipson; Eric Blackstone; Dionne Williams; Siobhan Aaron; Celia E Wills
Journal:  West J Nurs Res       Date:  2020-10-16       Impact factor: 1.774

4.  Aspects of family caregiving as addressed in planned discussions between nurses, patients with chronic diseases and family caregivers: a qualitative content analysis.

Authors:  E I Hagedoorn; W Paans; T Jaarsma; J C Keers; C van der Schans; M Louise Luttik
Journal:  BMC Nurs       Date:  2017-07-11

5.  Resilience From a Stakeholder Perspective: The Role of Next of Kin in Cancer Care.

Authors:  Inger Johanne Bergerød; Geir S Braut; Siri Wiig
Journal:  J Patient Saf       Date:  2020-09       Impact factor: 2.243

6.  Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway.

Authors:  Marit Irene Tuen Hansen; Dagny Faksvåg Haugen; Katrin Ruth Sigurdardottir; Anne Kvikstad; Catriona R Mayland; Margrethe Aase Schaufel
Journal:  BMC Palliat Care       Date:  2020-07-07       Impact factor: 3.234

7.  Nursing Strategies for Engaging Families of Older Immigrants Hospitalized for End-of-Life Care: An Australian Study.

Authors:  Megan-Jane Johnstone; Alison M Hutchinson; Helen Rawson; Bernice Redley
Journal:  J Patient Exp       Date:  2016-09-14

8.  Next-of-kin involvement in improving hospital cancer care quality and safety - a qualitative cross-case study as basis for theory development.

Authors:  Inger Johanne Bergerød; Bjørnar Gilje; Geir S Braut; Siri Wiig
Journal:  BMC Health Serv Res       Date:  2018-05-03       Impact factor: 2.655

  8 in total

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