Literature DB >> 25381073

Use of community engagement strategies to increase research participation in practice-based research networks (PBRNs).

William Spears1, Janice Y Tsoh1, Michael B Potter1, Nancy Weller1, Anthony E Brown1, Kimberly Campbell-Voytal1, Christina M Getrich1, Andrew L Sussman1, John Pascoe1, Anne Victoria Neale2.   

Abstract

PURPOSE: Practice-based research networks (PBRNs) are increasingly encouraged to use community engagement approaches. The extent to which PBRNs engage clinic and community partners in strategies to recruit and retain participants from their local communities (specifically racial/ethnic communities) is the focus of this study.
METHODS: The design was a cross-sectional survey of PBRN directors in the United States. Survey respondents indicated whether their research network planned for, implemented, and has capacity for activities that engage clinic and community partners in 7 recommended strategies organized into study phases, called the cycle of trust. The objectives of the national survey were to (1) describe the extent to which PBRNs across the United States routinely implement the strategies recommended for recruiting diverse patient groups and (2) identify factors associated with implementing the recommended strategies.
RESULTS: The survey response rate was 63%. Activities that build trust often are used more with clinic partners than with community partners. PBRNs that adopt engagement strategies when working with clinic and community partners have less difficulty in recruiting diverse populations. Multivariate analysis showed that the targeting racial/ethnic communities for study recruitment, Clinical and Translational Science Award affiliation, and planning to use community engagement strategies were independent correlates of PBRN implementation of the recommended strategies.
CONCLUSION: PBRNs that successfully engage racial/ethnic communities as research partners use community engagement strategies. New commitments are needed to support PBRN researchers in developing relationships with the communities in which their patients live. Stable PBRN infrastructure funding that appreciates the value of maintaining community engagement between funded studies is critical to the research enterprise that values translating research findings into generalizable care models for patients in the community. © Copyright 2014 by the American Board of Family Medicine.

Entities:  

Keywords:  Patient Recruitment; Practice-based Research; Primary Health Care

Mesh:

Year:  2014        PMID: 25381073     DOI: 10.3122/jabfm.2014.06.140059

Source DB:  PubMed          Journal:  J Am Board Fam Med        ISSN: 1557-2625            Impact factor:   2.657


  6 in total

1.  Attitudes towards health research participation: a qualitative study of US Arabs and Chaldeans.

Authors:  Kimberly D Campbell-Voytal; Kendra L Schwartz; Hiam Hamade; Florence J Dallo; Anne Victoria Neale
Journal:  Fam Pract       Date:  2019-05-23       Impact factor: 2.267

2.  Engaging multilevel stakeholders in an implementation trial of evidence-based quality improvement in VA women's health primary care.

Authors:  Alison B Hamilton; Julian Brunner; Cindy Cain; Emmeline Chuang; Tana M Luger; Ismelda Canelo; Lisa Rubenstein; Elizabeth M Yano
Journal:  Transl Behav Med       Date:  2017-09       Impact factor: 3.046

3.  Bringing Parent Voices into a Pediatric Research Network Through a Virtual Parent Panel.

Authors:  Stacey A Engster; Carrie Fascetti; Alexandra Mykita; Kate Pompa; Evelyn Cohen Reis
Journal:  J Am Board Fam Med       Date:  2020 Sep-Oct       Impact factor: 2.657

4.  Cohort profile: the Welsh Geriatric Registrar-Led Research Network (WeGeN): rationale, design and description.

Authors:  Benjamin Jelley; Sara Long; John Butler; Jonathan Hewitt
Journal:  BMJ Open       Date:  2017-02-14       Impact factor: 2.692

5.  The Evolving Collaborative Relationship between Practice-Based Research Networks (PBRNs) and Clinical and Translational Science Awardees (CTSAs).

Authors:  Maureen Riley-Behringer; Melinda M Davis; James J Werner; L J Fagnan; Kurt C Stange
Journal:  J Clin Transl Sci       Date:  2017-12-28

6.  It Starts with a Conversation: The Importance of Values as Building Blocks of Engagement Strategies in Community-Centered Public Health Research.

Authors:  Ewelina M Swierad; Terry T-K Huang
Journal:  Int J Environ Res Public Health       Date:  2021-03-13       Impact factor: 3.390

  6 in total

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