Literature DB >> 25365105

The Swedish Rheumatology Quality Register: optimisation of rheumatic disease assessments using register-enriched data.

J K Eriksson1, J Askling, E V Arkema.   

Abstract

New therapeutic options are constantly emerging for the treatment of rheumatic diseases. To evaluate the safety and efficacy of newly introduced anti-rheumatic treatment alternatives, registers are an important source of information. The Swedish Rheumatology Quality Register (SRQ) collects clinical data on patients with rheumatoid arthritis, as well as other rheumatic diseases, and may be enriched with data on comorbid conditions, prescription drug dispensings, and mortality from national data sources in Sweden. In this setting, many different outcomes can be investigated over a long period of time in a diverse population of patients recruited in daily clinical practice.

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Year:  2014        PMID: 25365105

Source DB:  PubMed          Journal:  Clin Exp Rheumatol        ISSN: 0392-856X            Impact factor:   4.473


  22 in total

1.  All together now: findings from a PCORI workshop to align patient-reported outcomes in the electronic health record.

Authors:  Roxanne E Jensen; Claire F Snyder; Ethan Basch; Lori Frank; Albert W Wu
Journal:  J Comp Eff Res       Date:  2016-09-02       Impact factor: 1.744

2.  A Person-Centered, Registry-Based Learning Health System for Palliative Care: A Path to Coproducing Better Outcomes, Experience, Value, and Science.

Authors:  Arif H Kamal; Kathryn B Kirkland; Diane E Meier; Tamara S Morgan; Eugene C Nelson; Steven Z Pantilat
Journal:  J Palliat Med       Date:  2017-11-01       Impact factor: 2.947

3.  "Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes.

Authors:  Dana Ragouzeos; Julie Gandrup; Beth Berrean; Jing Li; Marie Murphy; Laura Trupin; Jinoos Yazdany; Gabriela Schmajuk
Journal:  Patient Educ Couns       Date:  2018-10-28

4.  Chinese Registry of rheumatoid arthritis (CREDIT): II. prevalence and risk factors of major comorbidities in Chinese patients with rheumatoid arthritis.

Authors:  Shangyi Jin; Mengtao Li; Yongfei Fang; Qin Li; Ju Liu; Xinwang Duan; Yi Liu; Rui Wu; Xiaofei Shi; Yongfu Wang; Zhenyu Jiang; Yanhong Wang; Chen Yu; Qian Wang; Xinping Tian; Yan Zhao; Xiaofeng Zeng
Journal:  Arthritis Res Ther       Date:  2017-11-15       Impact factor: 5.156

5.  Infection rates in patients from five rheumatoid arthritis (RA) registries: contextualising an RA clinical trial programme.

Authors:  Hisashi Yamanaka; Johan Askling; Niklas Berglind; Stefan Franzen; Thomas Frisell; Christopher Garwood; Jeffrey D Greenberg; Meilien Ho; Marie Holmqvist; Laura Novelli Horne; Eisuke Inoue; Kaleb Michaud; Dimitrios A Pappas; George Reed; Deborah Symmons; Eiichi Tanaka; Trung N Tran; Suzanne M M Verstappen; Eveline Wesby-van Swaay; Fredrik Nyberg
Journal:  RMD Open       Date:  2017-10-10

6.  Patient characteristics influence the choice of biological drug in RA, and will make non-TNFi biologics appear more harmful than TNFi biologics.

Authors:  Thomas Frisell; Eva Baecklund; Karin Bengtsson; Daniela Di Giuseppe; Helena Forsblad-d'Elia; Johan Askling
Journal:  Ann Rheum Dis       Date:  2017-12-13       Impact factor: 19.103

7.  Familial aggregation and heritability of ankylosing spondylitis - a Swedish nested case-control study.

Authors:  Matilda Morin; Karin Hellgren; Thomas Frisell
Journal:  Rheumatology (Oxford)       Date:  2020-07-01       Impact factor: 7.580

8.  Gastrointestinal perforations in patients with rheumatoid arthritis treated with biological disease-modifying antirheumatic drugs in Sweden: a nationwide cohort study.

Authors:  Andrei Barbulescu; Bénédicte Delcoigne; Johan Askling; Thomas Frisell
Journal:  RMD Open       Date:  2020-07

9.  Patient focused registries can improve health, care, and science.

Authors:  Eugene C Nelson; Mary Dixon-Woods; Paul B Batalden; Karen Homa; Aricca D Van Citters; Tamara S Morgan; Elena Eftimovska; Elliott S Fisher; John Ovretveit; Wade Harrison; Cristin Lind; Staffan Lindblad
Journal:  BMJ       Date:  2016-07-01

10.  Editorial: Registries and Population Databases in Clinical Research and Practice.

Authors:  Dinah V Parums
Journal:  Med Sci Monit       Date:  2021-06-14
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