Literature DB >> 25343099

Revision of measures to combat intractable diseases in Japan: Three pillars will play an even greater role in the future.

Peipei Song1, Norihiro Kokudo1.   

Abstract

Over the past 40 years, measures to combat intractable diseases in Japan have progressed substantially since the implementation of the "Outline of Measures to Combat Intractable Diseases" in 1972. However, many challenges remain. In order to further promote measures to combat intractable diseases, a "Revision of Measures to Combat Intractable Diseases" was approved by the Japanese Ministry of Health, Labor, and Welfare (MHLW) on January 25, 2013. The revision rests on the three pillars of development of effective strategies to treat intractable diseases and improved care for those affected, creation of fair and consistent mechanisms to reimburse medical expenses, and implementing measures to enhance public understanding and encourage the social participation of those affected. These pillars will play an even greater role in future measures to combat intractable diseases.

Keywords:  Rare diseases; orphan drugs

Year:  2013        PMID: 25343099      PMCID: PMC4204572          DOI: 10.5582/irdr.2013.v2.1.33

Source DB:  PubMed          Journal:  Intractable Rare Dis Res        ISSN: 2186-3644


  3 in total

1.  Intractable and rare diseases research in Asia.

Authors:  Peipei Song; Jianjun Gao; Yoshinori Inagaki; Norihiro Kokudo; Wei Tang
Journal:  Biosci Trends       Date:  2012-04       Impact factor: 2.400

Review 2.  Rare diseases, orphan drugs, and their regulation in Asia: Current status and future perspectives.

Authors:  Peipei Song; Jianjun Gao; Yoshinori Inagaki; Norihiro Kokudo; Wei Tang
Journal:  Intractable Rare Dis Res       Date:  2012-02

3.  New opportunity for orphan drug development in Japan: Early exploratory clinical trial bases promote drug translation from basic studies to clinical application.

Authors:  Peipei Song; Jianjun Gao; Norihiro Kokudo; Wei Tang
Journal:  Intractable Rare Dis Res       Date:  2012-05
  3 in total
  1 in total

Review 1.  Innovative measures to combat rare diseases in China: The national rare diseases registry system, larger-scale clinical cohort studies, and studies in combination with precision medicine research.

Authors:  Peipei Song; Jiangjiang He; Fen Li; Chunlin Jin
Journal:  Intractable Rare Dis Res       Date:  2017-02
  1 in total

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