Literature DB >> 25341550

Caring for terminal patients in haematology: the urgent need of a new research agenda.

Pasquale Niscola1, Andrea Tendas, Marco Giovannini, Laura Scaramucci, Alessio Perrotti, Paolo de Fabritiis, Debra A Howell.   

Abstract

Although major therapeutic advances have led to improved survival for many hematologic malignancies in recent years, survival remains poor for some disease subtypes and a substantial proportion of patients are ultimately destined to die from their disease and/or related complications. Despite this, there is evidence that patients are not always referred to palliative/home care services as often as those with other cancers, although this situation may be improving in some areas. More research is needed, however, to explore reasons for this and identify whether patients may consequently have unmet needs that impact on their quality of life at this time.

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Year:  2014        PMID: 25341550     DOI: 10.1007/s00520-014-2489-4

Source DB:  PubMed          Journal:  Support Care Cancer        ISSN: 0941-4355            Impact factor:   3.603


  20 in total

Review 1.  Palliative care for patients with hematological malignancies--if not, why not?

Authors:  P McGrath
Journal:  J Palliat Care       Date:  1999       Impact factor: 2.250

Review 2.  Home care management of patients affected by hematologic malignancies: a review.

Authors:  Pasquale Niscola; Paolo de Fabritiis; Claudio Cartoni; Claudio Romani; Francesco Sorrentino; Teresa Dentamaro; Daniela Piccioni; Laura Scaramucci; Marco Giovannini; Sergio Amadori; Franco Mandelli
Journal:  Haematologica       Date:  2006-11       Impact factor: 9.941

3.  Disability and physical rehabilitation in patients with advanced hematological malignancies followed in a home care program.

Authors:  Andrea Tendas; Pasquale Niscola; Micaela Ales; Luca Baraldi; Caterina Boschetto; Emiliano Caiazza; Luca Cupelli; Marco Giovannini; Laura Scaramucci; Gregorio Brunetti; Claudio Cartoni; Franco Mandelli; Paolo de Fabritiis
Journal:  Support Care Cancer       Date:  2009-08-24       Impact factor: 3.603

4.  Intensive palliative care for patients with hematological cancer dying in hospice: analysis of the level of medical care in the final week of life.

Authors:  Benjamin Hon Wai Cheng; Michael Mau Kwong Sham; Kwok Ying Chan; Cho Wing Li; Ho Yan Au
Journal:  Am J Hosp Palliat Care       Date:  2013-11-20       Impact factor: 2.500

5.  The symptom burden of patients with hematological malignancy: a cross-sectional observational study.

Authors:  Vanessa Manitta; Rachel Zordan; Merrole Cole-Sinclair; Harshal Nandurkar; Jennifer Philip
Journal:  J Pain Symptom Manage       Date:  2011-04-07       Impact factor: 3.612

6.  Determinants of aggressive end-of-life care for Taiwanese cancer decedents, 2001 to 2006.

Authors:  Siew Tzuh Tang; Shiao-Chi Wu; Yen-Ni Hung; Jen-Shi Chen; Ean-Wen Huang; Tsang-Wu Liu
Journal:  J Clin Oncol       Date:  2009-08-24       Impact factor: 44.544

7.  Comparison of symptom burden among patients referred to palliative care with hematologic malignancies versus those with solid tumors.

Authors:  Nada A Fadul; Badi El Osta; Shalini Dalal; Valerie A Poulter; Eduardo Bruera
Journal:  J Palliat Med       Date:  2008-04       Impact factor: 2.947

8.  Patients with malignant hematological disorders treated on a palliative care unit: prognostic impact of clinical factors.

Authors:  M Kripp; A Willer; C Schmidt; L R Pilz; D Gencer; D Buchheidt; A Hochhaus; W-K Hofmann; R-D Hofheinz
Journal:  Ann Hematol       Date:  2013-08-08       Impact factor: 3.673

9.  The Haematological Malignancy Research Network (HMRN): a new information strategy for population based epidemiology and health service research.

Authors:  Alexandra Smith; Eve Roman; Debra Howell; Richard Jones; Russell Patmore; Andrew Jack
Journal:  Br J Haematol       Date:  2009-12-01       Impact factor: 6.998

10.  Place of death in haematological malignancy: variations by disease sub-type and time from diagnosis to death.

Authors:  Debra A Howell; Han-I Wang; Alexandra G Smith; Martin R Howard; Russell D Patmore; Eve Roman
Journal:  BMC Palliat Care       Date:  2013-11-19       Impact factor: 3.234

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  6 in total

1.  Supportive care services in hemato-oncology centers: a national survey.

Authors:  Sebastiano Mercadante; Andrea Costanzi; Fabrizio David; Patrizia Villari; Maurizio Musso; Paolo Marchetti; Alessandra Casuccio
Journal:  Support Care Cancer       Date:  2016-05-25       Impact factor: 3.603

Review 2.  Palliative and End-of-Life Care in Myelodysplastic Syndromes.

Authors:  Myles Nickolich; Areej El-Jawahri; Thomas W LeBlanc
Journal:  Curr Hematol Malig Rep       Date:  2016-12       Impact factor: 3.952

3.  Comparing the Palliative Care Needs of Patients With Hematologic and Solid Malignancies.

Authors:  Michael J Hochman; Yinxi Yu; Steven P Wolf; Greg P Samsa; Arif H Kamal; Thomas W LeBlanc
Journal:  J Pain Symptom Manage       Date:  2017-09-05       Impact factor: 3.612

4.  Longitudinal validity and reliability of the Myeloma Patient Outcome Scale (MyPOS) was established using traditional, generalizability and Rasch psychometric methods.

Authors:  Christina Ramsenthaler; Wei Gao; Richard J Siegert; Steve A Schey; Poly M Edmonds; Irene J Higginson
Journal:  Qual Life Res       Date:  2017-07-27       Impact factor: 4.147

5.  Haematology nurses' perspectives of their patients' places of care and death: A UK qualitative interview study.

Authors:  Dorothy McCaughan; Eve Roman; Alexandra G Smith; Anne C Garry; Miriam J Johnson; Russell D Patmore; Martin R Howard; Debra A Howell
Journal:  Eur J Oncol Nurs       Date:  2019-02-07       Impact factor: 2.398

6.  Living with or beyond lymphoma: A rapid review of the unmet needs of lymphoma survivors.

Authors:  Vanessa Boland; Amanda Drury; Greg Sheaf; Anne-Marie Brady
Journal:  Psychooncology       Date:  2022-06-27       Impact factor: 3.955

  6 in total

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