Literature DB >> 25341195

Impact of a palliative care program on end-of-life care in a neonatal intensive care unit.

N Younge1, P B Smith1, R N Goldberg1, D H Brandon1, C Simmons1, C M Cotten1, M Bidegain1.   

Abstract

OBJECTIVE: Evaluate changes in end-of-life care following initiation of a palliative care program in a neonatal intensive care unit. STUDY
DESIGN: Retrospective study comparing infant deaths before and after implementation of a Palliative Care Program comprised of medication guidelines, an individualized order set, a nursing care plan and staff education. RESULT: Eighty-two infants died before (Era 1) and 68 infants died after implementation of the program (Era 2). Morphine use was similar (88% vs 81%; P =0.17), whereas benzodiazepines use increased in Era 2 (26% vs 43%; P=0.03). Withdrawal of life support (73% vs 63%; P=0.17) and do-not-resuscitate orders (46% vs 53%; P=0.42) were similar. Do-not-resuscitate orders and family meetings were more frequent among Era 2 infants with activated palliative care orders (n=21) compared with infants without activated orders (n=47).
CONCLUSION: End-of-life family meetings and benzodiazepine use increased following implementation of our program, likely reflecting adherence to guidelines and improved communication.

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Year:  2014        PMID: 25341195      PMCID: PMC4491914          DOI: 10.1038/jp.2014.193

Source DB:  PubMed          Journal:  J Perinatol        ISSN: 0743-8346            Impact factor:   3.225


  28 in total

1.  The contribution of withholding or withdrawing care to newborn mortality.

Authors:  Lorayne Barton; Joan E Hodgman
Journal:  Pediatrics       Date:  2005-12       Impact factor: 7.124

2.  Neonatal palliative care attitude scale: development of an instrument to measure the barriers to and facilitators of palliative care in neonatal nursing.

Authors:  Victoria Kain; Glenn Gardner; Patsy Yates
Journal:  Pediatrics       Date:  2009-02       Impact factor: 7.124

3.  The use of benzodiazepines in palliative care.

Authors:  M Henderson; E MacGregor; N Sykes; M Hotopf
Journal:  Palliat Med       Date:  2006-06       Impact factor: 4.762

4.  Whom are we comforting? An analysis of comfort medications delivered to dying neonates.

Authors:  Annie Janvier; William Meadow; Steven R Leuthner; Bree Andrews; Joanne Lagatta; Arend Bos; Laura Lane; A A Eduard Verhagen
Journal:  J Pediatr       Date:  2011-02-26       Impact factor: 4.406

5.  How infants die in the neonatal intensive care unit: trends from 1999 through 2008.

Authors:  Julie Weiner; Jotishna Sharma; John Lantos; Howard Kilbride
Journal:  Arch Pediatr Adolesc Med       Date:  2011-07

6.  Analgesia for dying infants whose life support is withdrawn or withheld.

Authors:  J C Partridge; S N Wall
Journal:  Pediatrics       Date:  1997-01       Impact factor: 7.124

7.  End-of-life care for neonates and infants: the experience and effects of a palliative care consultation service.

Authors:  R L Pierucci; R S Kirby; S R Leuthner
Journal:  Pediatrics       Date:  2001-09       Impact factor: 7.124

8.  Narcotic and benzodiazepine use after withdrawal of life support: association with time to death?

Authors:  Jeannie D Chan; Patsy D Treece; Ruth A Engelberg; Lauren Crowley; Gordon D Rubenfeld; Kenneth P Steinberg; J Randall Curtis
Journal:  Chest       Date:  2004-07       Impact factor: 9.410

9.  Modes of death in pediatrics: differences in the ethical approach in neonatal and pediatric patients.

Authors:  Matteo S Fontana; Catherine Farrell; France Gauvin; Jacques Lacroix; Annie Janvier
Journal:  J Pediatr       Date:  2013-01-11       Impact factor: 4.406

10.  Better outcomes, lower costs: palliative care program reduces stress, costs of care for children with life-threatening conditions.

Authors:  Daphna Gans; Gerald F Kominski; Dylan H Roby; Allison L Diamant; Xiao Chen; Wenjiao Lin; Nina Hohe
Journal:  Policy Brief UCLA Cent Health Policy Res       Date:  2012-08
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  7 in total

1.  Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program.

Authors:  E Parravicini; M Daho'; G Foe; R Steinwurtzel; M Byrne
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Review 2.  Palliative care in neonatal neurology: robust support for infants, families and clinicians.

Authors:  M E Lemmon; M Bidegain; R D Boss
Journal:  J Perinatol       Date:  2015-12-10       Impact factor: 2.521

3.  Experiences in palliative home care of infants with life-limiting conditions.

Authors:  Michaela Kuhlen; Jessica I Höll; Hemmen Sabir; Arndt Borkhardt; Gisela Janßen
Journal:  Eur J Pediatr       Date:  2015-09-28       Impact factor: 3.183

Review 4.  Infant mode of death in the neonatal intensive care unit: A systematic scoping review.

Authors:  Matthew Lin; Rachel Deming; Joanne Wolfe; Christy Cummings
Journal:  J Perinatol       Date:  2022-01-20       Impact factor: 2.521

5.  Causes and circumstances of death in a neonatal unit over 20 years.

Authors:  Marissa C Michel; Tarah T Colaizy; Jonathan M Klein; Jeffrey L Segar; Edward F Bell
Journal:  Pediatr Res       Date:  2018-02-14       Impact factor: 3.756

6.  Improving Staff Knowledge and Attitudes Toward Providing Psychosocial Support to NICU Parents Through an Online Education Course.

Authors:  Sue L Hall; Mobolaji E Famuyide; Sage N Saxton; Tiffany A Moore; Sara Mosher; Keira Sorrells; Cheryl A Milford; Jenene Craig
Journal:  Adv Neonatal Care       Date:  2019-12       Impact factor: 1.968

7.  National Divergences in Perinatal Palliative Care Guidelines and Training in Tertiary NICUs.

Authors:  Antonio Boan Pion; Julia Baenziger; Jean-Claude Fauchère; Deborah Gubler; Manya J Hendriks
Journal:  Front Pediatr       Date:  2021-07-14       Impact factor: 3.418

  7 in total

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