Carol DeMatteo1, James R Bain2, Deborah Gjertsen3, Jessica A Harper4. 1. McMaster Children's Hospital, McMaster University, Hamilton, Ontario; ; School of Rehabilitation Science, McMaster University, Hamilton, Ontario; ; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario; 2. McMaster Children's Hospital, McMaster University, Hamilton, Ontario; ; Division of Plastic Surgery, Department of Surgery, McMaster University, Hamilton, Ontario. 3. McMaster Children's Hospital, McMaster University, Hamilton, Ontario; 4. School of Rehabilitation Science, McMaster University, Hamilton, Ontario; ; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario; ; Division of Plastic Surgery, Department of Surgery, McMaster University, Hamilton, Ontario.
Abstract
BACKGROUND: Obstetrical brachial plexus injury (OBPI) in children can cause great distress to a family due to uncertain recovery, variability in spontaneous recovery and unclear indicators for surgery. OBJECTIVE: To investigate the impact of having a child with OBPI on the family and whether the Impact on Family Scale (IoFS) can assist in addressing family concerns. METHODS: A mixed-method (cross-sectional survey and semistructured interviews) study design was used. RESULTS: Thirty-eight families of children with OBPI completed the IoFS. Surgery significantly predicted a higher IoFS total impact score (P=0.02). No statistically significant association between the total impact score and severity or age was found, suggesting that impact on family was not dependent on these factors. Themes that emerged from the interviews included traumatic birthing experience, wondering and waiting, and experiencing surgery. CONCLUSION: All families should receive support and acknowledgement of the widespread impact of OBPI.
BACKGROUND: Obstetrical brachial plexus injury (OBPI) in children can cause great distress to a family due to uncertain recovery, variability in spontaneous recovery and unclear indicators for surgery. OBJECTIVE: To investigate the impact of having a child with OBPI on the family and whether the Impact on Family Scale (IoFS) can assist in addressing family concerns. METHODS: A mixed-method (cross-sectional survey and semistructured interviews) study design was used. RESULTS: Thirty-eight families of children with OBPI completed the IoFS. Surgery significantly predicted a higher IoFS total impact score (P=0.02). No statistically significant association between the total impact score and severity or age was found, suggesting that impact on family was not dependent on these factors. Themes that emerged from the interviews included traumatic birthing experience, wondering and waiting, and experiencing surgery. CONCLUSION: All families should receive support and acknowledgement of the widespread impact of OBPI.
Authors: Nikhil N Dixit; Daniel C McFarland; Matthew B Fisher; Jacqueline H Cole; Katherine R Saul Journal: J Biomech Date: 2020-01-24 Impact factor: 2.712
Authors: Christopher W H Yau; Elena Pizzo; Chetankumar Prajapati; Tim Draycott; Erik Lenguerrand Journal: Health Qual Life Outcomes Date: 2018-11-15 Impact factor: 3.186