Literature DB >> 25308399

The experience of living with type 1 diabetes and attending clinic from the perception of children, adolescents and carers: analysis of qualitative data from the DEPICTED study.

Lesley Lowes1, Danielle Eddy2, Sue Channon3, Rachel McNamara4, Michael Robling5, John W Gregory6.   

Abstract

Type 1 diabetes (T1D) is a complex, invasive childhood condition. Optimal glycemic control, essential to minimize risk of life-changing complications, is difficult to achieve. The DEPICTED trial evaluated a training program in consultation skills for pediatric diabetes teams. Qualitative descriptive analysis of questionnaire free-text comments from children, adolescents and carers participating in DEPICTED identified the emotional impact of living with T1D and how health professionals' communication skills in clinic influence the patient/carer experience. Healthcare professionals caring for children/adolescents with T1D and carers need training in patient-centered communication skills. Emotional needs of patients/carers need to be systematically assessed and addressed.
Copyright © 2015 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Childhood diabetes; Communication by healthcare professionals; Diabetes-related burnout; Patient/carer experience

Mesh:

Year:  2014        PMID: 25308399     DOI: 10.1016/j.pedn.2014.09.006

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  13 in total

1.  Using Instagram as a Modified Application of Photovoice for Storytelling and Sharing in Adolescents With Type 1 Diabetes.

Authors:  Joyce P Yi-Frazier; Katherine Cochrane; Connor Mitrovich; Michael Pascual; Emil Buscaino; Lauren Eaton; Neil Panlasigui; Bailey Clopp; Faisal Malik
Journal:  Qual Health Res       Date:  2015-04-22

2.  Family Engagement in Pediatric Sickle Cell Disease Visits.

Authors:  Elizabeth D Cox; Matthew P Swedlund; Henry N Young; Megan A Moreno; Jennifer M Schopp; Victoria Rajamanickam; Julie A Panepinto
Journal:  Health Commun       Date:  2016-05-09

3.  Assessing strengths of children with type 1 diabetes: Validation of the Diabetes Strengths and Resilience (DSTAR) measure for ages 9 to 13.

Authors:  Esti Iturralde; Korey K Hood; Jill Weissberg-Benchell; Barbara J Anderson; Marisa E Hilliard
Journal:  Pediatr Diabetes       Date:  2019-07-29       Impact factor: 4.866

Review 4.  Diabetes and Behavioral Learning Principles: Often Neglected yet Well-Known and Empirically Validated Means of Optimizing Diabetes Care Behavior.

Authors:  Maggie Stoeckel; Danny Duke
Journal:  Curr Diab Rep       Date:  2015-07       Impact factor: 4.810

5.  Improving communication and recall of information in paediatric diabetes consultations: a qualitative study of parents' experiences and views.

Authors:  Julia Lawton; Norman Waugh; Kathryn Noyes; Kathryn Barnard; Jeni Harden; Louise Bath; John Stephen; David Rankin
Journal:  BMC Pediatr       Date:  2015-06-10       Impact factor: 2.125

6.  Perceptions of Adolescent Patients of the "Lived Experience" of Type 1 Diabetes.

Authors:  Kathryn M King; Philip J King; Rahul Nayar; Scott Wilkes
Journal:  Diabetes Spectr       Date:  2017-02

7.  Barriers and facilitators to taking on diabetes self-management tasks in pre-adolescent children with type 1 diabetes: a qualitative study.

Authors:  David Rankin; Jeni Harden; Katharine Barnard; Louise Bath; Kathryn Noyes; John Stephen; Julia Lawton
Journal:  BMC Endocr Disord       Date:  2018-10-13       Impact factor: 2.763

Review 8.  Importance of Patient-Provider Communication to Adherence in Adolescents with Type 1 Diabetes.

Authors:  Niral J Patel; Karishma A Datye; Sarah S Jaser
Journal:  Healthcare (Basel)       Date:  2018-03-28

9.  How do children and adolescents experience healthcare professionals? Scoping review and interpretive synthesis.

Authors:  Gail Davison; Martina Ann Kelly; Richard Conn; Andrew Thompson; Tim Dornan
Journal:  BMJ Open       Date:  2021-07-09       Impact factor: 2.692

10.  The "Face" of Diabetes: Insight Into Youths' Experiences as Expressed Through Drawing.

Authors:  Kathleen M Elertson; Shari K Liesch; Elizabeth K Babler
Journal:  J Patient Exp       Date:  2016-06-16
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