Emilie Wawrziczny1, Pascal Antoine2, Francine Ducharme3, Marie-Jeanne Kergoat3, Florence Pasquier4. 1. Department of Psychology, Laboratory URECA EA 1059, University of Lille 3, Villeneuve d'Ascq, France; Roubaix Hospital, Addiction service, Roubaix, France emilie.wawrziczny@univ-lille3.fr. 2. Department of Psychology, Laboratory URECA EA 1059, University of Lille 3, Villeneuve d'Ascq, France. 3. Institut Universitaire de Gériatrie, Montréal, Canada; Université de Montréal, Montréal, Canada. 4. Department of Neurology, Memory Research and Resources Clinic at the University Hospital of Lille, Lille, France.
Abstract
OBJECTIVE: The growing interest in early-onset dementia has attracted attention to the situation and experiences of the caregiver, most often the spouse. Several qualitative studies on caregiving spouses have underlined the importance of the feeling of loss, the change of role reported by the caregiving spouses, and the strategies used to protect the person with dementia, all of which raise the question of the relational dynamics at play in these dyads. The present study on 16 couples examines the experiences of each partner, as well as the kinds of interactions taking place within the dyad and how they have evolved since the disease began. DESIGN: An interpretative phenomenological analysis was conducted on dyadic semi-structured interviews. RESULTS: Seven axes emerged from the analyses, showing that control over symptoms gradually leads to deterioration of marital interactions and to the components of marital dissolution.
OBJECTIVE: The growing interest in early-onset dementia has attracted attention to the situation and experiences of the caregiver, most often the spouse. Several qualitative studies on caregiving spouses have underlined the importance of the feeling of loss, the change of role reported by the caregiving spouses, and the strategies used to protect the person with dementia, all of which raise the question of the relational dynamics at play in these dyads. The present study on 16 couples examines the experiences of each partner, as well as the kinds of interactions taking place within the dyad and how they have evolved since the disease began. DESIGN: An interpretative phenomenological analysis was conducted on dyadic semi-structured interviews. RESULTS: Seven axes emerged from the analyses, showing that control over symptoms gradually leads to deterioration of marital interactions and to the components of marital dissolution.
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