Literature DB >> 25300327

Perhaps the subject of the questionnaire was too sensitive: Do we expect too much too soon? Wishes for the end of life in Huntington's Disease - the perspective of European physicians.

Suzanne J Booij1, Aad Tibben2, Dick P Engberts3, Raymund A C Roos4.   

Abstract

Entities:  

Keywords:  Euthanasia; Huntington's disease; physician-assisted suicide

Mesh：

Year:  2014        PMID： 25300327     DOI： 10.3233/JHD-140098

Source DB:  PubMed          Journal:  J Huntingtons Dis        ISSN： 1879-6397


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  3 in total

1.  New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system).

Authors:  N E Carlozzi; N R Downing; M K McCormack; S G Schilling; J S Perlmutter; E A Hahn; J S Lai; S Frank; K A Quaid; J S Paulsen; D Cella; S M Goodnight; J A Miner; M A Nance
Journal:  Qual Life Res       Date:  2016-07-08       Impact factor: 4.147

2.  Advanced cancer patients' reported wishes at the end of life: a randomized controlled trial.

Authors:  Marvin O Delgado-Guay; Alfredo Rodriguez-Nunez; Vera De la Cruz; Susan Frisbee-Hume; Janet Williams; Jimin Wu; Diane Liu; Michael J Fisch; Eduardo Bruera
Journal:  Support Care Cancer       Date:  2016-05-10       Impact factor: 3.603

3.  A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning.

Authors:  Noelle E Carlozzi; E A Hahn; S A Frank; J S Perlmutter; N D Downing; M K McCormack; S Barton; M A Nance; S G Schilling
Journal:  J Neurol       Date:  2017-11-15       Impact factor: 4.849
  3 in total

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