Literature DB >> 25274881

Why families matter.

Hilde Lindemann1.   

Abstract

Serious illness puts pressure not only on individual family members but also on the family itself. The care of an acutely ill child requires the family to channel many of its resources toward a single member--an arrangement that can usually be sustained for a while but that cannot continue indefinitely while the other members do without. Illness disrupts ordinary familial functions and, if it is serious enough, threatens to break the family altogether. In this article, I argue that there are situations in which the threat to family integrity is so real and serious that the interests of parents or siblings or sometimes grandparents may override the interests of the pediatric patient.
Copyright © 2014 by the American Academy of Pediatrics.

Entities:  

Keywords:  best interest; child; ethics; family; law; literature

Mesh:

Year:  2014        PMID: 25274881     DOI: 10.1542/peds.2014-1394E

Source DB:  PubMed          Journal:  Pediatrics        ISSN: 0031-4005            Impact factor:   7.124


  7 in total

1.  Is There Ever a Role for the Unilateral Do Not Attempt Resuscitation Order in Pediatric Care?

Authors:  Jonathan M Marron; Emma Jones; Joanne Wolfe
Journal:  J Pain Symptom Manage       Date:  2017-09-13       Impact factor: 3.612

Review 2.  Family presence in Canadian PICUs during the COVID-19 pandemic: a mixed-methods environmental scan of policy and practice.

Authors:  Jennifer Ruth Foster; Laurie A Lee; Jamie A Seabrook; Molly Ryan; Laura J Betts; Stacy A Burgess; Corey Slumkoski; Martha Walls; Daniel Garros
Journal:  CMAJ Open       Date:  2022-07-05

Review 3.  Psychological outcomes and support in grandparents whose grandchildren suffer from a severe physical illness: A systematic review.

Authors:  Cristina Priboi; Barbara Gantner; Pauline Holmer; Luisa Neves da Silva; Eva Maria Tinner; Katharina Roser; Gisela Michel
Journal:  Heliyon       Date:  2022-05-06

4.  Impact on family and parental stress of prenatal vs postnatal repair of myelomeningocele.

Authors:  Ryan M Antiel; N Scott Adzick; Elizabeth A Thom; Pamela K Burrows; Diana L Farmer; John W Brock; Lori J Howell; Jody A Farrell; Amy J Houtrow
Journal:  Am J Obstet Gynecol       Date:  2016-06-02       Impact factor: 8.661

5.  A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project.

Authors:  Catherine R Butler; Paul S Appelbaum; Heather Ascani; Mark Aulisio; Catherine E Campbell; Ian H de Boer; Ashveena L Dighe; Daniel E Hall; Jonathan Himmelfarb; Richard Knight; Karla Mehl; Raghavan Murugan; Sylvia E Rosas; John R Sedor; John F O'Toole; Katherine R Tuttle; Sushrut S Waikar; Michael Freeman
Journal:  Am J Kidney Dis       Date:  2021-12-04       Impact factor: 11.072

Review 6.  The theorisation of 'best interests' in bioethical accounts of decision-making.

Authors:  Giles Birchley
Journal:  BMC Med Ethics       Date:  2021-06-01       Impact factor: 2.652

7.  Am I My Brother's Keeper? Moral Dimensions of Informal Caregiving in a Neoliberal Society.

Authors:  Ellen Meijer; Gert Schout; Tineke Abma
Journal:  Health Care Anal       Date:  2017-12
  7 in total

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