Literature DB >> 25270659

The US Network of Pediatric Multiple Sclerosis Centers: Development, Progress, and Next Steps.

T Charles Casper1, John W Rose2, Shelly Roalstad3, Emmanuelle Waubant4, Gregory Aaen5, Anita Belman6, Tanuja Chitnis7, Mark Gorman8, Lauren Krupp6, Timothy E Lotze9, Jayne Ness10, Marc Patterson11, Moses Rodriguez11, Bianca Weinstock-Guttman12, Brittan Browning3, Jennifer Graves13, Jan-Mendelt Tillema11, Leslie Benson8, Yolanda Harris.   

Abstract

Multiple sclerosis and other demyelinating diseases in the pediatric population have received an increasing level of attention by clinicians and researchers. The low incidence of these diseases in children creates a need for the involvement of multiple clinical centers in research efforts. The Network of Pediatric Multiple Sclerosis Centers was created initially in 2006 to improve the diagnosis and care of children with demyelinating diseases. In 2010, the Network shifted its focus to multicenter research while continuing to advance the care of patients. The Network has obtained support from the National Multiple Sclerosis Society, the Guthy-Jackson Charitable Foundation, and the National Institutes of Health. The Network will continue to serve as a platform for conducting impactful research in pediatric demyelinating diseases of the central nervous system. This article provides a description of the history and development, organization, mission, research priorities, current studies, and future plans of the Network.
© The Author(s) 2014.

Entities:  

Keywords:  NPMSC; demyelinating disease; multicenter research; multiple sclerosis; network

Mesh:

Year:  2014        PMID: 25270659      PMCID: PMC4379142          DOI: 10.1177/0883073814550656

Source DB:  PubMed          Journal:  J Child Neurol        ISSN: 0883-0738            Impact factor:   1.987


  8 in total

1.  Pediatric multiple sclerosis.

Authors:  Tanuja Chitnis; Lauren Krupp; Ann Yeh; Jennifer Rubin; Nancy Kuntz; Jonathan B Strober; Dorothee Chabas; Bianca Weinstock-Guttmann; Jayne Ness; Moses Rodriguez; Emmanuelle Waubant
Journal:  Neurol Clin       Date:  2011-05       Impact factor: 3.806

2.  Difference in disease burden and activity in pediatric patients on brain magnetic resonance imaging at time of multiple sclerosis onset vs adults.

Authors:  Emmanuelle Waubant; Dorothee Chabas; Darin T Okuda; Orit Glenn; Ellen Mowry; Roland G Henry; Jonathan B Strober; Bruno Soares; Max Wintermark; Daniel Pelletier
Journal:  Arch Neurol       Date:  2009-08

3.  Cognitive dysfunction in multiple sclerosis. I. Frequency, patterns, and prediction.

Authors:  S M Rao; G J Leo; L Bernardin; F Unverzagt
Journal:  Neurology       Date:  1991-05       Impact factor: 9.910

4.  Dietary intake of vitamin D during adolescence and risk of multiple sclerosis.

Authors:  Kassandra L Munger; Tanuja Chitnis; A Lindsay Frazier; Edward Giovannucci; Donna Spiegelman; Alberto Ascherio
Journal:  J Neurol       Date:  2010-10-14       Impact factor: 4.849

5.  Demographics of pediatric-onset multiple sclerosis in an MS center population from the Northeastern United States.

Authors:  T Chitnis; B Glanz; S Jaffin; B Healy
Journal:  Mult Scler       Date:  2009-03-19       Impact factor: 6.312

6.  Cognitive impairment occurs in children and adolescents with multiple sclerosis: results from a United States network.

Authors:  Laura Julian; Dana Serafin; Leigh Charvet; Joseph Ackerson; Ralph Benedict; Ellen Braaten; Tanya Brown; Ellen O'Donnell; Joy Parrish; Thomas Preston; Michael Zaccariello; Anita Belman; Tanuja Chitnis; Mark Gorman; Jayne Ness; Marc Patterson; Moses Rodriguez; Emmanuelle Waubant; Bianca Weinstock-Guttman; Ann Yeh; Lauren B Krupp
Journal:  J Child Neurol       Date:  2012-11-15       Impact factor: 1.987

7.  Pediatric multiple sclerosis.

Authors:  Emmanuelle Waubant; Dorothee Chabas
Journal:  Curr Treat Options Neurol       Date:  2009-05       Impact factor: 3.598

Review 8.  Pathogenesis of pediatric multiple sclerosis.

Authors:  David Vargas-Lowy; Tanuja Chitnis
Journal:  J Child Neurol       Date:  2012-09-05       Impact factor: 1.987

  8 in total
  9 in total

1.  Characteristics of Children and Adolescents With Multiple Sclerosis.

Authors:  Anita L Belman; Lauren B Krupp; Cody S Olsen; John W Rose; Greg Aaen; Leslie Benson; Tanuja Chitnis; Mark Gorman; Jennifer Graves; Yolander Harris; Tim Lotze; Jayne Ness; Moses Rodriguez; Jan-Mendelt Tillema; Emmanuelle Waubant; Bianca Weinstock-Guttman; T Charles Casper
Journal:  Pediatrics       Date:  2016-07       Impact factor: 7.124

2.  Examining the contributions of environmental quality to pediatric multiple sclerosis.

Authors:  Amy M Lavery; Amy T Waldman; T Charles Casper; Shelly Roalstad; Meghan Candee; John Rose; Anita Belman; Bianca Weinstock-Guttman; Greg Aaen; Jan-Mendelt Tillema; Moses Rodriguez; Jayne Ness; Yolanda Harris; Jennifer Graves; Lauren Krupp; Leslie Benson; Mark Gorman; Manikum Moodley; Mary Rensel; Manu Goyal; Soe Mar; Tanuja Chitnis; Teri Schreiner; Tim Lotze; Benjamin Greenberg; Ilana Kahn; Jennifer Rubin; Emmanuelle Waubant
Journal:  Mult Scler Relat Disord       Date:  2017-09-07       Impact factor: 4.339

3.  Dietary salt intake and time to relapse in paediatric multiple sclerosis.

Authors:  Bardia Nourbakhsh; Jennifer Graves; T Charles Casper; Sabeen Lulu; Amy Waldman; Anita Belman; Benjamin Greenberg; Bianca Weinstock-Guttman; Gregory Aaen; Jan-Mendelt Tillema; Janace Hart; Jayne Ness; Jennifer Rubin; Lauren Krupp; Mark Gorman; Leslie Benson; Moses Rodriguez; Tanuja Chitnis; John Rose; Lisa Barcellos; Emmanuelle Waubant
Journal:  J Neurol Neurosurg Psychiatry       Date:  2016-06-24       Impact factor: 10.154

4.  Contribution of dietary intake to relapse rate in early paediatric multiple sclerosis.

Authors:  Saeedeh Azary; Teri Schreiner; Jennifer Graves; Amy Waldman; Anita Belman; Bianca Weinstock Guttman; Gregory Aaen; Jan-Mendelt Tillema; Soe Mar; Janace Hart; Jayne Ness; Yolanda Harris; Lauren Krupp; Mark Gorman; Leslie Benson; Moses Rodriguez; Tanuja Chitnis; John Rose; Lisa F Barcellos; Tim Lotze; Suzan L Carmichael; Shelly Roalstad; Charles T Casper; Emmanuelle Waubant
Journal:  J Neurol Neurosurg Psychiatry       Date:  2017-10-09       Impact factor: 10.154

5.  Clinical features of neuromyelitis optica in children: US Network of Pediatric MS Centers report.

Authors:  Tanuja Chitnis; Jayne Ness; Lauren Krupp; Emmanuelle Waubant; Tyler Hunt; Cody S Olsen; Moses Rodriguez; Tim Lotze; Mark Gorman; Leslie Benson; Anita Belman; Bianca Weinstock-Guttman; Greg Aaen; Jennifer Graves; Marc Patterson; John W Rose; T Charles Casper
Journal:  Neurology       Date:  2015-12-18       Impact factor: 9.910

6.  Distinct effects of obesity and puberty on risk and age at onset of pediatric MS.

Authors:  Tanuja Chitnis; Jennifer Graves; Bianca Weinstock-Guttman; Anita Belman; Cody Olsen; Madhusmita Misra; Gregory Aaen; Leslie Benson; Meghan Candee; Mark Gorman; Benjamin Greenberg; Lauren Krupp; Timothy Lotze; Soe Mar; Jayne Ness; John Rose; Jennifer Rubin; Teri Schreiner; Jan Tillema; Amy Waldman; Moses Rodriguez; Charlie Casper; Emmanuelle Waubant
Journal:  Ann Clin Transl Neurol       Date:  2016-11-04       Impact factor: 4.511

7.  Use of newer disease-modifying therapies in pediatric multiple sclerosis in the US.

Authors:  Kristen M Krysko; Jennifer Graves; Mary Rensel; Bianca Weinstock-Guttman; Gregory Aaen; Leslie Benson; Tanuja Chitnis; Mark Gorman; Manu Goyal; Lauren Krupp; Timothy Lotze; Soe Mar; Moses Rodriguez; John Rose; Michael Waltz; T Charles Casper; Emmanuelle Waubant
Journal:  Neurology       Date:  2018-10-17       Impact factor: 9.910

8.  Pediatric Multiple Sclerosis Severity Score in a large US cohort.

Authors:  Jonathan D Santoro; Michael Waltz; Greg Aaen; Anita Belman; Leslie Benson; Mark Gorman; Manu S Goyal; Jennifer S Graves; Yolanda Harris; Lauren Krupp; Timothy Lotze; Soe Mar; Manikum Moodley; Jayne Ness; Mary Rensel; Moses Rodriguez; Teri Schreiner; Jan-Mendelt Tillema; Emmanuelle Waubant; Bianca Weinstock-Guttman; Brigitte F Hurtubise; Shelly Roalstad; John Rose; T Charles Casper; Tanuja Chitnis
Journal:  Neurology       Date:  2020-07-20       Impact factor: 9.910

9.  Urban air quality and associations with pediatric multiple sclerosis.

Authors:  Amy M Lavery; Emmanuelle Waubant; T Charles Casper; Shelly Roalstad; Meghan Candee; John Rose; Anita Belman; Bianca Weinstock-Guttman; Greg Aaen; Jan-Mendelt Tillema; Moses Rodriguez; Jayne Ness; Yolanda Harris; Jennifer Graves; Lauren Krupp; Leigh Charvet; Leslie Benson; Mark Gorman; Manikum Moodley; Mary Rensel; Manu Goyal; Soe Mar; Tanuja Chitnis; Teri Schreiner; Tim Lotze; Benjamin Greenberg; Ilana Kahn; Jennifer Rubin; Amy T Waldman
Journal:  Ann Clin Transl Neurol       Date:  2018-09-27       Impact factor: 4.511

  9 in total

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