Literature DB >> 25250808

Communication intervention in Rett syndrome: a survey of speech language pathologists in Swedish health services.

Helena Wandin1, Per Lindberg, Karin Sonnander.   

Abstract

PURPOSE: To investigate communication intervention that speech language pathologists (SLPs) provide to people with Rett syndrome.
METHODS: A web-based survey targeting all Swedish SLPs working with people currently receiving support from habilitation services.
RESULTS: The SLPs reportedly followed recommended practice in the following aspects: (1) Information on communicative function was collected from several sources, including observation in well-known settings and reports from the client s social network, (2) Multimodal communication was promoted and, (3) Responsive partner strategies were largely targeted in the intervention. However, few instruments or standard procedures were used and partner instruction was given informally. Most SLPs used communication aids in the intervention and their general impression of using communication aids was positive. Further, augmentative and alternative communication (AAC) was estimated to increase and clarify communicative contributions from the person.
CONCLUSIONS: Communication aids were reported to have a positive influence on communicative functions. Swedish SLP services followed best practice in several aspects, but there are areas with potential for development. Tools and best practice guidelines are needed to support SLPs in the AAC process for clients with Rett syndrome. [Box: see text].

Entities:  

Keywords:  Augmentative and alternative communication; Rett syndrome; Sweden; communication; intervention; speech language pathology

Mesh:

Year:  2014        PMID: 25250808     DOI: 10.3109/09638288.2014.962109

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  6 in total

Review 1.  Neurobiologically-based treatments in Rett syndrome: opportunities and challenges.

Authors:  Walter E Kaufmann; Jennifer L Stallworth; David B Everman; Steven A Skinner
Journal:  Expert Opin Orphan Drugs       Date:  2016-09-10       Impact factor: 0.694

2.  Usability of Eye-Gaze Controlled Computers in Sweden: A Total Population Survey.

Authors:  Helena Hemmingsson; Maria Borgestig
Journal:  Int J Environ Res Public Health       Date:  2020-03-03       Impact factor: 3.390

3.  Consequences of rare diagnoses for education and daily life: development of an observation instrument.

Authors:  Gunilla Jaeger; AnnCatrin Röjvik; Erland Hjelmquist; André Hansla; Kerstin W Falkman
Journal:  Orphanet J Rare Dis       Date:  2022-04-12       Impact factor: 4.123

4.  A trained communication partner's use of responsive strategies in aided communication with three adults with Rett syndrome: A case report.

Authors:  Helena Wandin; Per Lindberg; Karin Sonnander
Journal:  Front Psychol       Date:  2022-09-29

Review 5.  Rett Syndrome: Crossing the Threshold to Clinical Translation.

Authors:  David M Katz; Adrian Bird; Monica Coenraads; Steven J Gray; Debashish U Menon; Benjamin D Philpot; Daniel C Tarquinio
Journal:  Trends Neurosci       Date:  2016-02       Impact factor: 13.837

6.  Eye Gaze Technology as a Form of Augmentative and Alternative Communication for Individuals with Rett Syndrome: Experiences of Families in The Netherlands.

Authors:  Gillian S Townend; Peter B Marschik; Eric Smeets; Raymond van de Berg; Mariёlle van den Berg; Leopold M G Curfs
Journal:  J Dev Phys Disabil       Date:  2015-10-19
  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.