Literature DB >> 25227145

Rethinking biobanking and translational medicine in the Netherlands: how the research process stands to matter for patient care.

Conor M W Douglas1, Philip Scheltens2.   

Abstract

Biobanking has been identified as one of the key components of translational medicine, and while current models for translation tend to focus their attention on how the products of research projects are fed back into health-care practices, we suggest that in addition to that the research process itself can have beneficial effects on the delivery of high-quality health care by streamlining diagnostic and follow-up protocols, reduced patient waiting times, and facilitating data comparison across patients. This Viewpoint is based on experiences with, and observations of, the neurodegenerative component of a clinical biobanking initiative in the Netherlands called the Parelsnoer Institute (PSI), which links all eight of the University Medical Centers for harmonized and standardized collection and storage processes for multiple disease conditions.

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Year:  2014        PMID: 25227145      PMCID: PMC4795042          DOI: 10.1038/ejhg.2014.186

Source DB:  PubMed          Journal:  Eur J Hum Genet        ISSN: 1018-4813            Impact factor:   4.246


  17 in total

1.  Translational medicine: can it really facilitate the transition of research "from bench to bedside"?

Authors:  Martin Wehling
Journal:  Eur J Clin Pharmacol       Date:  2005-12-13       Impact factor: 2.953

2.  The launch of the american journal of translational research.

Authors:  Wen-Hwa Lee; Mien-Chie Hung; Kenneth A Iczkowski; Lucia R Languino; Steven M Dubinett; Dengshun Wang
Journal:  Am J Transl Res       Date:  2009-09-01       Impact factor: 4.060

3.  Standardization and utilization of biobank resources in clinical protein science with examples of emerging applications.

Authors:  György Marko-Varga; Ákos Végvári; Charlotte Welinder; Henrik Lindberg; Melinda Rezeli; Goutham Edula; Katrin J Svensson; Mattias Belting; Thomas Laurell; Thomas E Fehniger
Journal:  J Proteome Res       Date:  2012-05-25       Impact factor: 4.466

4.  Translational science and the hidden research system in universities and academic hospitals: a case study.

Authors:  Bryn Lander; Janet Atkinson-Grosjean
Journal:  Soc Sci Med       Date:  2010-11-27       Impact factor: 4.634

5.  The eMERGE Network: a consortium of biorepositories linked to electronic medical records data for conducting genomic studies.

Authors:  Catherine A McCarty; Rex L Chisholm; Christopher G Chute; Iftikhar J Kullo; Gail P Jarvik; Eric B Larson; Rongling Li; Daniel R Masys; Marylyn D Ritchie; Dan M Roden; Jeffery P Struewing; Wendy A Wolf
Journal:  BMC Med Genomics       Date:  2011-01-26       Impact factor: 3.063

Review 6.  The continuum of translation research in genomic medicine: how can we accelerate the appropriate integration of human genome discoveries into health care and disease prevention?

Authors:  Muin J Khoury; Marta Gwinn; Paula W Yoon; Nicole Dowling; Cynthia A Moore; Linda Bradley
Journal:  Genet Med       Date:  2007-10       Impact factor: 8.822

7.  PSI: The Dutch Academic Infrastructure for shared biobanks for translational research.

Authors:  Jan L Talmon; Maurits G Ros'; Dink A Legemate
Journal:  Summit Transl Bioinform       Date:  2008-03-01

Review 8.  Identifying and hurdling obstacles to translational research.

Authors:  Ian Sabroe; David H Dockrell; Stefanie N Vogel; Stephen A Renshaw; Moira K B Whyte; Steven K Dower
Journal:  Nat Rev Immunol       Date:  2007-01       Impact factor: 53.106

9.  Toward a roadmap in global biobanking for health.

Authors:  Jennifer R Harris; Paul Burton; Bartha Maria Knoppers; Klaus Lindpaintner; Marianna Bledsoe; Anthony J Brookes; Isabelle Budin-Ljøsne; Rex Chisholm; David Cox; Mylène Deschênes; Isabel Fortier; Pierre Hainaut; Robert Hewitt; Jane Kaye; Jan-Eric Litton; Andres Metspalu; Bill Ollier; Lyle J Palmer; Aarno Palotie; Markus Pasterk; Markus Perola; Peter H J Riegman; Gert-Jan van Ommen; Martin Yuille; Kurt Zatloukal
Journal:  Eur J Hum Genet       Date:  2012-06-20       Impact factor: 4.246

10.  Translational Medicine: A two-way road.

Authors:  Francesco M Marincola
Journal:  J Transl Med       Date:  2003-07-24       Impact factor: 5.531

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  4 in total

1.  Business Planning in Biobanking: How to Implement a Tool for Sustainability.

Authors:  Mirella Ciaburri; Mariarosaria Napolitano; Elena Bravo
Journal:  Biopreserv Biobank       Date:  2016-11-29       Impact factor: 2.300

Review 2.  Patients to learn from: on the need for systematic integration of research and care in academic health care.

Authors:  Martin Boeckhout; Philip Scheltens; Peggy Manders; Cees Smit; Annelien L Bredenoord; Gerhard A Zielhuis
Journal:  J Clin Transl Res       Date:  2017-09-14

Review 3.  Governing the research-care divide in clinical biobanking: Dutch perspectives.

Authors:  Martin Boeckhout; Conor M W Douglas
Journal:  Life Sci Soc Policy       Date:  2015-08-06

4.  Raising to the Challenge: Building a Federated Biobank to Accelerate Translational Research-The University Biobank Limburg.

Authors:  Loes Linsen; Kimberly Vanhees; Evi Vanoppen; Kim Ulenaers; Suzanne Driessens; Joris Penders; Veerle Somers; Piet Stinissen; Jean-Luc Rummens
Journal:  Front Med (Lausanne)       Date:  2019-10-22
  4 in total

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