| Literature DB >> 25209083 |
Elizabeth A Thiele1, Tiziana Granata, Sara Matricardi, Harry T Chugani.
Abstract
Children with tuberous sclerosis complex, Sturge-Weber syndrome, and Rasmussen encephalitis all have complex but differing needs in the process of transition/transfer to adult care. All three may be associated with long-term normal intelligence or a varying degree of intellectual disability. In tuberous sclerosis complex, the emphasis of care in adulthood shifts from seizure control and developmental issues to renal and psychiatric disease and other issues. In Sturge-Weber syndrome, the emphasis shifts from seizure control and rehabilitation to management of disability and migraine. In Rasmussen encephalitis, transition may be particularly complex for those with adolescent onset. Those successfully operated on for childhood onset have a static problem and the potential to do well in life. Wiley Periodicals, Inc.Entities:
Keywords: Rasmussen's encephalitis; Sturge Weber; Tuberous sclerosis
Mesh:
Year: 2014 PMID: 25209083 DOI: 10.1111/epi.12722
Source DB: PubMed Journal: Epilepsia ISSN: 0013-9580 Impact factor: 5.864