Literature DB >> 25188687

Spousal support as experienced by people with multiple sclerosis: a qualitative study.

Somayeh Ghafari1, Masoud Fallahi Khoshknab, Kian Norouzi, Eisa Mohamadi.   

Abstract

About 30% of people with multiple sclerosis require some form of supportive assistance at home, and 80% of that assistance is usually provided by spouses or partners. So, the explanation and understanding of patients' experiences of support received from their spouses enable spouses and healthcare professionals to reform their actions toward positive support. This study aimed to explore the experiences of people with multiple sclerosis regarding support from their spouses. A qualitative content analysis method was used to conduct this study. The study participants were 25 patients with multiple sclerosis who were chosen through purposeful sampling from multiple sclerosis associations of Isfahan and Tehran (Iran). Data were collected through nonstructured interviews from September 2011 to August 2012. Four themes and nine subthemes emerged through data analysis. The main themes were play a supportive role, establish a friendly and comfortable relationship, help patient to fight the disease, and help to maintain and to improve patients' functional ability. The results could help in improving the quality of spouses' support in people with multiple sclerosis. Moreover, it could aid in determining the educational needs of patients as supported persons and spouses as supporters. The results could lead to increased knowledge of healthcare experts about the issue of how Iranian people with multiple sclerosis are being supported by their wives/husbands. Furthermore, it would help them to design caring models to promote successful supporting strategies for patients.

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Year:  2014        PMID: 25188687     DOI: 10.1097/JNN.0000000000000081

Source DB:  PubMed          Journal:  J Neurosci Nurs        ISSN: 0888-0395            Impact factor:   1.230


  5 in total

1.  Validation of the Social Provisions Scale in people with multiple sclerosis.

Authors:  Chung-Yi Chiu; Robert W Motl; Nicole Ditchman
Journal:  Rehabil Psychol       Date:  2016-04-18

2.  Dealing with Chronic Illness: Experiences of Iranian Families of Persons with Multiple Sclerosis-A Qualitative Study.

Authors:  Hossein Ebrahimi; Hadi Hasankhani; Hossein Namdar; Esmail Khodadadi; Marjaneh Fooladi
Journal:  Mult Scler Int       Date:  2017-09-07

Review 3.  'It struck at the heart of who I thought I was': A meta-synthesis of the qualitative literature examining the experiences of people with multiple sclerosis.

Authors:  Jane Desborough; Crystal Brunoro; Anne Parkinson; Katrina Chisholm; Mark Elisha; Janet Drew; Vanessa Fanning; Christian Lueck; Anne Bruestle; Matthew Cook; Hanna Suominen; Antonio Tricoli; Adam Henschke; Christine Phillips
Journal:  Health Expect       Date:  2020-06-24       Impact factor: 3.377

4.  Disability as an Interpersonal Experience: A Systematic Review on Dyadic Challenges and Dyadic Coping When One Partner Has a Chronic Physical or Sensory Impairment.

Authors:  Isabella C Bertschi; Fabienne Meier; Guy Bodenmann
Journal:  Front Psychol       Date:  2021-03-01

5.  Relational Satisfaction of Spousal/Partner Informal Caregivers of People with Multiple Sclerosis: Relational Commitment, Caregiving Burden, and Prorelational Behavioral Tendencies.

Authors:  Moira Tzitzika; Efthymios Lampridis; Dimitris Kalamaras
Journal:  Int J MS Care       Date:  2020 Mar-Apr
  5 in total

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