Literature DB >> 25160579

'That was my old life; it's almost like a past-life now': identity crisis, loss and adjustment amongst people living with Chronic Fatigue Syndrome.

Adele Dickson1, Christina Knussen, Paul Flowers.   

Abstract

Individual in-depth interviews were conducted with 14 people with Chronic Fatigue Syndrome (CFS). The interviews centred on the experience of living with the condition from the participants' own perspectives. All interviews were transcribed verbatim and were analysed using Interpretative Phenomenological Analysis. Three inter-related themes were presented: 'Identity crisis: agency and embodiment'; 'Scepticism and the self' and 'Acceptance, adjustment and coping'. Participants reported an ongoing sense of personal loss characterised by diminishing personal control and agency. An inability to plan for the future and subsequent feelings of failure, worthlessness and insignificance ensued. Scepticism in the wider social environment only heightened the consequential identity crisis. The importance of acceptance for adjusting to a life with CFS was highlighted. The findings are discussed in relation to extant literature and issues for health psychology are raised.

Entities:  

Keywords:  Chronic Fatigue Syndrome; coping; identity crisis; interpretative phenomenological analysis; loss of self

Mesh:

Year:  2008        PMID: 25160579     DOI: 10.1080/08870440701757393

Source DB:  PubMed          Journal:  Psychol Health        ISSN: 0887-0446


  10 in total

1.  Mortality in Patients with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.

Authors:  Stephanie L McManimen; Andrew R Devendorf; Abigail A Brown; Billie C Moore; James H Moore; Leonard A Jason
Journal:  Fatigue       Date:  2016-10-12

2.  Mental quality of life in chronic fatigue is associated with an accommodative coping style and neuroticism: a path analysis.

Authors:  Carine Poppe; Geert Crombez; Ignace Hanoulle; Dirk Vogelaers; Mirko Petrovic
Journal:  Qual Life Res       Date:  2011-10-29       Impact factor: 4.147

3.  Coping While Black: Chronic Illness, Mastery, and the Black-White Health Paradox.

Authors:  Eundria A Hill-Joseph
Journal:  J Racial Ethn Health Disparities       Date:  2019-05-03

4.  Making sense of the delegitimation experiences of people suffering from indoor air problems in their homes.

Authors:  Tuija Seppälä; Eerika Finell; Suvi Kaikkonen
Journal:  Int J Qual Stud Health Well-being       Date:  2022-12

Review 5.  Children's experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review and meta-ethnography of qualitative studies.

Authors:  Roxanne M Parslow; Sarah Harris; Jessica Broughton; Adla Alattas; Esther Crawley; Kirstie Haywood; Alison Shaw
Journal:  BMJ Open       Date:  2017-01-13       Impact factor: 2.692

6.  "Honorable Toward Your Whole Self": Experiences of the Body in Fatigued Breast Cancer Survivors.

Authors:  Cooper Penner; Chloe Zimmerman; Lisa Conboy; Ted Kaptchuk; Catherine Kerr
Journal:  Front Psychol       Date:  2020-07-03

7.  Prioritizing social identities: Patients' perspective on living with multimorbidity.

Authors:  Camilla Drivsholm Sand; Keren Rahbek; Tora G Willadsen; Alexandra R Jønsson
Journal:  J Multimorb Comorb       Date:  2021-04-27

8.  Austerity and identity formation: How welfare cutbacks condition narratives of sickness.

Authors:  Niklas Altermark; Åsa Plesner
Journal:  Sociol Health Illn       Date:  2022-09-06

Review 9.  Elements of Suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: The Experience of Loss, Grief, Stigma, and Trauma in the Severely and Very Severely Affected.

Authors:  Patricia A Fennell; Nancy Dorr; Shane S George
Journal:  Healthcare (Basel)       Date:  2021-05-09

10.  A Comprehensive 6A Framework for Improving Patient Self-Management of Hypertension Using mHealth Services: Qualitative Thematic Analysis.

Authors:  Ting Song; Fang Liu; Ning Deng; Siyu Qian; Tingru Cui; Yingping Guan; Leonard Arnolda; Zhenyu Zhang; Ping Yu
Journal:  J Med Internet Res       Date:  2021-06-21       Impact factor: 5.428

  10 in total

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