Literature DB >> 25160577

The lived experiences of people diagnosed with multiple sclerosis in relation to exercise.

Erika Borkoles1, Adam R Nicholls, Kate Bell, Ron Butterly, Remco C J Polman.   

Abstract

The purpose of this study was to examine the lived experiences of people diagnosed with Multiple Sclerosis (MS). Seven active exercisers with MS participated in semi-structured interviews regarding their exercise experiences since diagnosis. Data were analysed using Interpretative Phenomenological Analysis (IPA; Smith  & Osborn, 2003 ). Interpretive Phenomenological Analysis. The results and interpretations of narratives revealed a number of functional limitations due to the severity of MS symptoms, which were found to have a major effect on the ability of the participants to exercise. Furthermore, psychological problems and the heightened behavioural adjustments to the progressive disability led to re-appraisal of ability to exercise. Previous, relevant exercise experience made participants more determined to continue to be able to exercise after diagnosis. The wider exercise experience narratives were related to concerns about safety, dependability on others to overcome the challenges, and potential environmental hazards. The loss of spontaneous opportunities to exercise because of these actual and perceived barriers was key to this population. This research highlighted the need to rethink the health and social service arrangements in relation to exercise provision for individuals with MS.

Entities:  

Keywords:  Exercise; Interpretative Phenomenological Analysis; barriers to exercise; functional limitations; multiple sclerosis

Mesh:

Year:  2008        PMID: 25160577     DOI: 10.1080/14768320701205309

Source DB:  PubMed          Journal:  Psychol Health        ISSN: 0887-0446


  12 in total

1.  Barriers and facilitators related to participation in aquafitness programs for people with multiple sclerosis: a pilot study.

Authors:  Cara Brown; Kaitlyn Kitchen; Kaley Nicoll
Journal:  Int J MS Care       Date:  2012

2.  Feasibility and Effects of Structured Physical Exercise Interventions in Adults with Relapsing-Remitting Multiple Sclerosis: A Pilot Study.

Authors:  Elisabet Guillamó; Álvaro Cobo-Calvo; Guillermo R Oviedo; Noémie Travier; Juan Álamo; Oscar A Niño-Mendez; Antonio Martínez-Yelamos; Sergio Martínez-Yelamos; Casimiro Javierre
Journal:  J Sports Sci Med       Date:  2018-08-14       Impact factor: 2.988

3.  A study of psychological well-being in people with multiple sclerosis and their primary caregivers.

Authors:  Mojgan Ghasemi; Yoosef Gorji; Freshteh Ashtar; Mojdeh Ghasemi
Journal:  Adv Biomed Res       Date:  2015-02-17

4.  A qualitative investigation of exercising with MS and the impact on the spousal relationship.

Authors:  Sean Horton; Dany J MacDonald; Karl Erickson; Rylee A Dionigi
Journal:  Eur Rev Aging Phys Act       Date:  2015-10-07       Impact factor: 3.878

5.  Mii-vitaliSe: a pilot randomised controlled trial of a home gaming system (Nintendo Wii) to increase activity levels, vitality and well-being in people with multiple sclerosis.

Authors:  Sarah Thomas; Louise Fazakarley; Peter W Thomas; Sarah Collyer; Sarah Brenton; Steve Perring; Rebecca Scott; Fern Thomas; Charlotte Thomas; Kelly Jones; Jo Hickson; Charles Hillier
Journal:  BMJ Open       Date:  2017-09-27       Impact factor: 2.692

6.  Preferences for exercise among black individuals with multiple sclerosis.

Authors:  Dominique Kinnett-Hopkins; Robert Motl
Journal:  Mult Scler J Exp Transl Clin       Date:  2019-03-05

Review 7.  Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability.

Authors:  Daniel Ståhl; Ylva Bjereld; Anna Dunér
Journal:  J Multidiscip Healthc       Date:  2022-02-24

8.  Narratives reflecting the lived experiences of people with brain disorders: common psychosocial difficulties and determinants.

Authors:  Sally Hartley; Maggie McArthur; Michaela Coenen; Maria Cabello; Venusia Covelli; Joanna Roszczynska-Michta; Tuuli Pitkänen; Jerome Bickenbach; Alarcos Cieza
Journal:  PLoS One       Date:  2014-05-07       Impact factor: 3.240

9.  Testing the feasibility and acceptability of using the Nintendo Wii in the home to increase activity levels, vitality and well-being in people with multiple sclerosis (Mii-vitaliSe): protocol for a pilot randomised controlled study.

Authors:  Sarah Thomas; Louise Fazakarley; Peter W Thomas; Sarah Brenton; Sarah Collyer; Steve Perring; Rebecca Scott; Kathleen Galvin; Charles Hillier
Journal:  BMJ Open       Date:  2014-05-07       Impact factor: 2.692

10.  Understanding leisure-time physical activity: Voices of people with MS who have moderate-to-severe disability and their family caregivers.

Authors:  Afolasade Fakolade; Julie Lamarre; Amy Latimer-Cheung; Trisha Parsons; Sarah A Morrow; Marcia Finlayson
Journal:  Health Expect       Date:  2017-07-19       Impact factor: 3.377

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