Literature DB >> 25159459

Living with CHD: quality of life (QOL) in early adult life.

Maria E G Areias1, Catarina I Pinto1, Patrícia F Vieira1, Marta Castro1, Isabela Freitas1, Sofia Sarmento1, Samantha Matos1, Victor Viana2, José C Areias2.   

Abstract

AIMS: The aim of this study was to assess the quality of life, psychiatric morbidity, and the psychosocial adjustment of adolescents and young adults with CHD, and determine which variables play a role in buffering stress and promoting resilience and which ones have a detrimental effect; and to investigate the situation on school performance and failures, social and family support, physical limitations, and body image of these patients.
METHODS: The study enrolled 137 CHD patients (79 male), with age ranging from 12 to 26 years old (M=17.60±3.450 years). The patients were interviewed regarding social support, family educational style, self-image, demographic information, and physical limitations. They responded to questions in a standardised psychiatric interview (SADS-L) and completed self-reported questionnaires for the assessment of quality of life (WHOQOL-BREF) and psychosocial adjustment (YSR/ASR).
RESULTS: We found a 19.7% lifetime prevalence of psychopathology in our patients (27.6% in female and 13.9% in male). Of them, 48% had retentions in school (M=1.61 year±0.82). The perception of quality of life in CHD patients is better compared with the Portuguese population in the social relationships and environmental dimensions. However, it is worse in complex forms of CHD than in moderate-to-mild ones, in cyanotic versus acyanotic patients, in moderate-to-severe versus mild residual lesions, in patients submitted versus those not submitted to surgery, in patients with versus without physical limitations, and patients who have need for medication versus those who do not. Social support is very important in improving quality of life of patients in all dimensions as well as academic performance.
CONCLUSIONS: Female patients and patients with poor academic performance and poor social support have worse psychosocial adjustment and perception of quality of life.

Entities:  

Mesh:

Year:  2014        PMID: 25159459     DOI: 10.1017/S1047951114001218

Source DB:  PubMed          Journal:  Cardiol Young        ISSN: 1047-9511            Impact factor:   1.093


  3 in total

1.  Health-related quality of life in paediatric patients with congenital heart defects: association with the type of heart defect and the surgical technique.

Authors:  A Heusch; H J Kahl; K O Hensel; G Calaminus
Journal:  Qual Life Res       Date:  2017-07-20       Impact factor: 4.147

2.  Assessment of quality of life among parents of children with congenital heart disease using WHOQOL-BREF: a cross-sectional study from Northwest Saudi Arabia.

Authors:  Saad Khoshhal; Khaled Al-Harbi; Ibrahim Al-Mozainy; Saeed Al-Ghamdi; Adnan Aselan; Mohammad Allugmani; Sherif Salem; Dina El-Agamy; Hany Abo-Haded
Journal:  Health Qual Life Outcomes       Date:  2019-12-16       Impact factor: 3.186

3.  Poverty, quality of life and psychological wellbeing in adults with congenital heart disease in Chile.

Authors:  Rodrigo López Barreda; Alonso Guerrero; Juan Cristóbal de la Cuadra; Manuela Scotoni; Wilbaldo Salas; Fernando Baraona; Francisca Arancibia; Polentzi Uriarte
Journal:  PLoS One       Date:  2020-10-08       Impact factor: 3.240

  3 in total

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