Literature DB >> 25148054

The Down syndrome advantage: it depends on what and when you measure.

Laraine Masters Glidden, Katherine Anne Grein, Jesse Andrew Ludwig.   

Abstract

A "Down syndrome advantage"--better outcomes for individuals with Down syndrome and their families than for those with other intellectual/developmental disabilities (IDD)--is reduced when variables confounded with diagnostic category are controlled. We compared maternal outcomes in a longitudinal sample of families rearing children with Down syndrome or other IDD, and found that a Down syndrome advantage is (a) most likely when the metric is about the son/daughter rather than the parent or family more globally, (b) may be present or absent at different ages, and (c) is partially explained by higher levels of adaptive behavior for individuals with Down syndrome. We discuss the importance of multiple measures at multiple times, and implications for family expectations and adjustment at various life stages.

Entities:  

Keywords:  Down syndrome advantage; adaptive behavior; family adjustment; family expectations; intellectual/developmental disability; longitudinal method; stereotypes

Mesh:

Year:  2014        PMID: 25148054     DOI: 10.1352/1944-7558-119.5.389

Source DB:  PubMed          Journal:  Am J Intellect Dev Disabil        ISSN: 1944-7558


  5 in total

1.  Predicting well-being longitudinally for mothers rearing offspring with intellectual and developmental disabilities.

Authors:  K A Grein; L M Glidden
Journal:  J Intellect Disabil Res       Date:  2014-09-03

2.  Relationship dimensions of the 'Down syndrome advantage'.

Authors:  D B Mitchell; P Hauser-Cram; M K Crossman
Journal:  J Intellect Disabil Res       Date:  2014-07-28

3.  Young People with Intellectual Disability Transitioning to Adulthood: Do Behaviour Trajectories Differ in Those with and without Down Syndrome?

Authors:  Kitty-Rose Foley; John Taffe; Jenny Bourke; Stewart L Einfeld; Bruce J Tonge; Julian Trollor; Helen Leonard
Journal:  PLoS One       Date:  2016-07-08       Impact factor: 3.240

4.  Failure to replicate a robust Down syndrome advantage for maternal well-being.

Authors:  M Jess; S Flynn; T Bailey; R P Hastings; V Totsika
Journal:  J Intellect Disabil Res       Date:  2021-01-06

5.  Using Bayesian methodology to explore the profile of mental health and well-being in 646 mothers of children with 13 rare genetic syndromes in relation to mothers of children with autism.

Authors:  Dawn Adams; Richard P Hastings; Clair Alston-Knox; Rina Cianfaglione; Kate Eden; David Felce; Gemma Griffith; Jo Moss; Chris Stinton; Chris Oliver
Journal:  Orphanet J Rare Dis       Date:  2018-10-25       Impact factor: 4.123

  5 in total

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