Literature DB >> 25128685

Providers' perspectives on treating psychogenic nonepileptic seizures: frustration and hope.

Katharine K McMillan1, Mary Jo Pugh2, Hamada Hamid3, Martin Salinsky4, Jacqueline Pugh5, Polly H Noël6, Erin P Finley7, Luci K Leykum6, Holly J Lanham8, W Curt LaFrance9.   

Abstract

Recent diagnostic and treatment advances in psychogenic nonepileptic seizures (PNES) have the potential to improve care for patients, but little is known about the current state of PNES care delivery in the Veterans Health Administration (VA). We conducted semistructured interviews with 74 health-care clinicians and workers in the VA, eliciting provider perceptions of PNES care. Data were analyzed according to principles of Grounded Theory. The results revealed variation in care and two emergent domain themes of frustration and hope. Frustration was manifest in subthemes including Complexity, Patient Acceptance, Uncertainty About Treatment, Need for Evidence-based Treatment, and Failure of Cross-Disciplinary Collaboration between neurologists and mental health providers. Hope encompassed subthemes of Positive Attitudes, Developing Cross-Disciplinary Treatment, and Specific PNES Care. Increased resources for diagnosing, treating, and researching PNES have improved awareness of the disorder. More research is needed to understand patients' and caregivers' perceptions of PNES care.
Copyright © 2014 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Cognitive behavioral therapy; Diagnosis; Nonepileptic seizures; Practitioners; Treatment; Veterans

Mesh:

Year:  2014        PMID: 25128685     DOI: 10.1016/j.yebeh.2014.07.001

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  9 in total

1.  Resilience linked to personality dimensions, alexithymia and affective symptoms in motor functional neurological disorders.

Authors:  Rozita Jalilianhasanpour; Benjamin Williams; Isabelle Gilman; Matthew J Burke; Sean Glass; Gregory L Fricchione; Matcheri S Keshavan; W Curt LaFrance; David L Perez
Journal:  J Psychosom Res       Date:  2018-02-13       Impact factor: 3.006

2.  Cingulo-insular structural alterations associated with psychogenic symptoms, childhood abuse and PTSD in functional neurological disorders.

Authors:  David L Perez; Nassim Matin; Arthur Barsky; Victor Costumero-Ramos; Sara J Makaretz; Sigrid S Young; Jorge Sepulcre; W Curt LaFrance; Matcheri S Keshavan; Bradford C Dickerson
Journal:  J Neurol Neurosurg Psychiatry       Date:  2017-04-17       Impact factor: 10.154

3.  You've made the diagnosis of functional neurological disorder: now what?

Authors:  Caitlin Adams; Jordan Anderson; Elizabeth N Madva; W Curt LaFrance; David L Perez
Journal:  Pract Neurol       Date:  2018-05-15

Review 4.  Nonepileptic seizures: an updated review.

Authors:  David L Perez; W Curt LaFrance
Journal:  CNS Spectr       Date:  2016-03-21       Impact factor: 3.790

5.  " Blaming, shaming, humiliation": Stigmatising medical interactions among people with non-epileptic seizures.

Authors:  Catherine Robson; Olaug S Lian
Journal:  Wellcome Open Res       Date:  2017-10-24

6.  Disentangling Stigma from Functional Neurological Disorders: Conference Report and Roadmap for the Future.

Authors:  Karen S Rommelfanger; Stewart A Factor; Suzette LaRoche; Phyllis Rosen; Raymond Young; Mark H Rapaport
Journal:  Front Neurol       Date:  2017-03-29       Impact factor: 4.003

7.  Exploring psychiatrists' perspectives of working with patients with dissociative seizures in the UK healthcare system as part of the CODES trial: a qualitative study.

Authors:  Harriet Jordan; Sarah Feehan; Iain Perdue; Joanna Murray; Laura H Goldstein
Journal:  BMJ Open       Date:  2019-05-09       Impact factor: 2.692

8.  Managing Functional Neurological Disorders: Protocol of a Cohort Study on Psychogenic Non-Epileptic Seizures Study.

Authors:  Hamada Hamid Altalib; Daniela Galluzzo; Stephanie Argraves; Joseph Goulet; Yarden Bornovski; Kei-Hoi Cheung; Ebony Jackson-Shaheed; Benjamin Tolchin; Brenda T Fenton; Mary Jo Pugh
Journal:  Neuropsychiatr Dis Treat       Date:  2019-12-27       Impact factor: 2.570

9.  PNES around the world: Where we are now and how we can close the diagnosis and treatment gaps-an ILAE PNES Task Force report.

Authors:  Kousuke Kanemoto; W Curt LaFrance; Roderick Duncan; David Gigineishvili; Sung-Pa Park; Yukari Tadokoro; Hiroko Ikeda; Ravi Paul; Dong Zhou; Go Taniguchi; Mike Kerr; Tomohiro Oshima; Kazutaka Jin; Markus Reuber
Journal:  Epilepsia Open       Date:  2017-06-23
  9 in total

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