Robab Latifnejad Roudsari1, Helen T Allan2. 1. Department of Midwifery, School of Nursing and Midwifery, Mashhad University of Medical Sciences, Mashhad, Iran. 2. Division of Health and Social Care, Faculty of Health and Medical Sciences, University of Surrey, Guildford, UK.
Abstract
BACKGROUND: Religion and spirituality are a fundamental part of culture and influence how individuals experience and interpret infertility counselling. Thus far, little research has examined the influence of religiosity on the experience of infertility, and to our knowledge no study exists investigating the responses of religious infertile women to counselling. In this study we explored Muslim and Christian women's experiences and preferences with regard to infertility counselling. MATERIALS AND METHODS: Using a grounded theory approach, 30 infertile women affiliated to different denominations of Islam (Shiite and Sunni) and Christianity (Protestantism, Catholicism, Orthodoxies) were interviewed. Data were collected through semi-structured in-depth interviews at fertility clinics in the UK and Iran, and analyzed using the Straussian mode of grounded theory. RESULTS: EMERGING CATEGORIES INCLUDED: Appraising the meaning of infertility religiously, applying religious coping strategies, and gaining a faith-based strength. These were encompassed in the core category of 'relying on a higher being'. Religious infertile women experienced infertility as an enriching experience for spiritual growth. This perspective helped them to acquire a feeling of self- confidence and strength to manage their emotions. Hence, they relied more on their own religious coping strategies and less on formal support resources like counselling services. However, they expected counsellors to be open to taking time to discuss their spiritual concerns in counselling sessions. CONCLUSION: In addition to focusing on clients' psychosocial needs, infertility counsellors should also consider religious and spiritual issues. Establishing a sympathetic and accepting relationship with infertile women will allow them to discuss their religious perspectives, which consequently may enhance their usage of counselling services.
BACKGROUND: Religion and spirituality are a fundamental part of culture and influence how individuals experience and interpret infertility counselling. Thus far, little research has examined the influence of religiosity on the experience of infertility, and to our knowledge no study exists investigating the responses of religious infertile women to counselling. In this study we explored Muslim and Christian women's experiences and preferences with regard to infertility counselling. MATERIALS AND METHODS: Using a grounded theory approach, 30 infertile women affiliated to different denominations of Islam (Shiite and Sunni) and Christianity (Protestantism, Catholicism, Orthodoxies) were interviewed. Data were collected through semi-structured in-depth interviews at fertility clinics in the UK and Iran, and analyzed using the Straussian mode of grounded theory. RESULTS: EMERGING CATEGORIES INCLUDED: Appraising the meaning of infertility religiously, applying religious coping strategies, and gaining a faith-based strength. These were encompassed in the core category of 'relying on a higher being'. Religious infertile women experienced infertility as an enriching experience for spiritual growth. This perspective helped them to acquire a feeling of self- confidence and strength to manage their emotions. Hence, they relied more on their own religious coping strategies and less on formal support resources like counselling services. However, they expected counsellors to be open to taking time to discuss their spiritual concerns in counselling sessions. CONCLUSION: In addition to focusing on clients' psychosocial needs, infertility counsellors should also consider religious and spiritual issues. Establishing a sympathetic and accepting relationship with infertile women will allow them to discuss their religious perspectives, which consequently may enhance their usage of counselling services.
Infertility is recognized around the world as
a distressing experience with the potential for
threatening individual, marital, family and social
stability (1). Individuals suffering from
infertility will confront with complex issues
including biological, psychological, therapeutic
and ethical dilemmas. Discussion of these
concerns in a counselling context is often beneficial
for patients (2). Counselling is “a process
through which infertile couples are given
the opportunity to explore themselves, their
thoughts, feelings and beliefs in order to come
to a greater understanding of their present situation
and also to discover and clarify ways of
living more satisfyingly and resourcefully” (3).
Counselling with infertile individuals is often
about support, advice, guidance and the clarification
of life goals.The aims of infertility counselling therefore
are to explore, understand and resolve issues
arising from infertility and infertility treatment,
and to clarify ways of dealing with the problem
more effectively (2). Thorn argues that counselling
can contribute to improving psychological
and social health as well as helping to minimize drop-out rates in treatment (4). The human fertilization
and embryology authority (HFEA)
which regulates assisted reproduction in the
UK has stipulated that psychosocial counselling
must be offered to any patient seeking in vitro
fertilization (IVF) or donor insemination. As described
in the HFEA code of practice, the purpose
of counselling is to provide patients with
emotional support in times of crisis, and to help
them come to terms with their treatment choice
and its effect on their lives (5).Also the UK Department of Health evidencebased
clinical practice guideline has mentioned
that the government is aware of the evidence of
the benefits of counselling and believes that it
can play a valuable role in helping patients make
informed reproductive decisions and understand
their implications (6). The importance of counselling
has been acknowledged in laws concerning
human reproductive technologies (7). The appointment
of at least one member of staff to fulfil
the role of counsellor has appeared in the Human
Fertilization & Embryology Authority code of
practice as well. All licensed IVF clinics in the UK
are required to offer patients counselling (8). The
National Health and Medical Research Council
(NHMRC) of the Australian Federal Government
has also stipulated the right of donor-conceived
people to be informed of their biological origins;
and the provision of comprehensive counselling
about the social, psychological, physical, ethical,
financial and legal implications of third-party
reproduction to those considering donating or
receiving gametes or embryos and entering surrogacy
arrangements (9).Despite the aforementioned agreements on the
necessity of counselling infertile couples, very
few patients use these services when made available
to them (10). Prospective (11) and retrospective
studies (12) have also shown that only
about 18-21% of patients who have been offered
counselling decided to attend individual or couple
counselling sessions. Marcus et al., in an internet-
based survey on 244 users of an independent
infertility website found that 73% of all couples
were offered, or obliged, to receive counselling
compared to 91% of those patients treated in the
UK. Of the patients who took part in the survey,
only 30% received counselling (8).The reasons for not using psychosocial counselling
services have been investigated by Boivin
et al. (1999) (10). They found that three main
factors contribute to low uptake of psychosocial
counselling, including 1. patients’ comfort level
with the counselling, 2. coping resources available
to the patients and their ability to manage
the strains of infertility and, 3. practical concerns
for arranging a meeting with counsellors. Emery
et al. indicated that infertile women who refused
counselling mostly cited the difficulty of taking
time off from work or their lack of interest because
they “felt strong enough” (13). Marcus et
al., also reported that in patients who did not receive
counselling, the main reasons were: “felt I
can cope on my own” (37%), “counselling was
not offered” (21%), and “did not think it would
be beneficial” (15%) (8).The reliance on one’s ability and resources,
which has been reported by infertile patients
in the aforementioned literature, could be discussed
in relation to individuals’ religion and
spirituality. Religion is a particular doctrinal
framework which guides sacred beliefs and
practices about a higher power or God. It is a
system of beliefs and practices that structure
how people worship. Spirituality refers to the
beliefs and practices that connect people with
sacred and meaningful entities beyond themselves.
These beliefs and practices often create
a relationship with a supreme power which
gives meaning and purpose to life (14, 15). Religion
may be both a resource and a burden. For
some infertile couples, religion may provide
opportunities to maintain hope and give meaning
to their experiences of suffering and loss
inherent in the infertility experience. However,
faced with existential dilemmas, psychological
distress and social stigma, they may experience
a ‘crisis of faith’ or alternatively, find peace
and comfort in their faith community and/or its
rituals that help them meet the challenges of
infertility (16).Latifnejad Roudsari et al. have argued that
infertile women turning their attention to religious
and spiritual beliefs show connectedness
to a higher being who can be trusted and believed,
as a source of strength, guidance, and
support (17). They endeavour to maintain, develop,
and renew this relationship to be able to
deal with the hardship of infertility. Latifnejad
Roudsari et al. have discussed that women’s
views on socialization as a religious value motivate
them to search reassurance through the
love and care of congregation (17). Having
this unique worldview, infertile women give
sacred meaning to life and talk about an internal
knowing, certainty and assurance that they
will be blessed by God (18). This confidence may impact their decisions regarding seeking
therapeutic approaches, including the usage of
counselling services.In this regard, Hynie and Burns have argued
that religious beliefs may provide limits on the
acceptability of various treatment options (16).
Hence, infertility counsellors, in providing a
suitable approach, should consider religion as a
potential asset as well as a potential liability for
infertile couples. They must be aware of the impact
of faith and religion on the infertile couple
and how religion is, for them, either a benefit
or a burden. Thorn argues that much of the current
debate in the area of counselling is based
on Western values and assumptions; however,
couples’ management strategies regarding the
psychosocial implications of infertility can only
be understood in the context of their specific
culture and religion. He emphasized that sharing
professional experience on an international level
can contribute to further professionalization and
increased awareness of cultural differences in
this area (19).Thus far, little research has examined the influence
of religiosity on the experience of infertility
(17, 18, 20-22) and to our knowledge, no study
exists investigating the response of religious
and spiritual infertile women to counselling and
also how useful they may find it. The purpose of
this qualitative study was to explore Muslim and
Christian infertile women’s experiences and preferences
concerning counselling and their main
rationales for opting to receive or not to receive
counselling.
Materials and Methods
Grounded theory was the methodological approach
that underpinned and guided this research.
Grounded theory is a qualitative research method
that is useful for generating research-based
knowledge about the behavioural patterns that
shape social processes as people interact with
each other (23). It makes its greatest contribution
in areas where little research has been done.
Grounded theory systematically applies specific
procedural steps to ultimately develop a theoretically
complete explanation about a particular
phenomenon (24).The study settings were two referral hospitals
in London and one Iranian Infertility Research
Centre in Mashhad. To explore the experiences of
infertile women regarding counselling in a wider
religious context and a larger ethnic mixture it
was decided to recruit the participants from the
multifaith society of the UK and the religious
community of Iran.Participants were thirty infertile women with
primary or secondary infertility, who had been
diagnosed as infertile through preliminary tests
by their general practitioners. Women who were
infertile due to a physiological problem in the
female, male or both and those who were infertile
due to unknown causes, irrespective of the
duration for which they had been trying to become
pregnant, were recruited. Women with an
adopted child or with a newly positive pregnancy
test, who no longer struggled with fertility problems
during the study period, were excluded
from the study. In addition, women who might
not adequately understand verbal explanations or
written information given in English were not included
in the study.Participants were affiliated to different denominations
of two monotheistic religions,
i.e. Islam (six Shiites and six Sunnis), and
Christianity (ten Protestants, six Catholics
and two Orthodoxies). Having chosen grounded
theory as the methodological approach, the
sample size was determined by purposive and
theoretical sampling and data saturation. To
maintain diversity in participants’ recruitment
it was endeavoured to consider the diversity
in terms of participants’ age, social class and
ethnic background, in addition to their religious
affiliations. A summary profile of all
participants has been demonstrated in table 1.
To recruit women, they were given an invitation
letter and the patient information sheet.
They were given time to study the information
sheet and the opportunity to ask questions
from the researcher. If they were interested in
taking part in the study, they were interviewed
after their appointment, or alternatively an appointment
was arranged with the researcher in
the future.In this study a combination of data sources including
formal interview, observation of nonverbal
behaviours during the interviews and
the writing of post-interview notes and diaries,
were used to collect the data. All interviews were
conducted by the first author who is a midwife
lecturer/ researcher with experience in interviewing
infertile women. She was trained at the University
of Surrey, UK as a qualitative researcher
and supervised by an experienced qualitative researcher
(the second author).Interviews were conducted face-to-face in one
of the interview rooms of the fertility clinics allocated
for this purpose, using a semi-structured
interview guide. In order to keep the natural flow
of the dialogue between the participants and researcher,
the questions about religion and spirituality
were introduced when the interviewee
spontaneously mentioned God, religion or spirituality
as a resource for managing emotions. If
no reference to God, religiosity or spirituality was
made by the participant, then the researcher asked
the related questions at the end of the interview.
Participants were asked about how their religious
and spiritual beliefs may affect the way they perceive
infertility, the strategies that they use for
coping with their fertility problem and their viewpoints
on getting help from counselling services.
Each interview took on average between 45 and
60 minutes and was audio-taped and transcribed
fully for data analysis. It is noteworthy that the
interviews related to the Iranian participants were
carried out in Persian. Then after data transcription
they were translated from Persian to English
by the first author whose native language
is in the same dialect of the interviewees, and
who had been trained for this purpose at Language
Centre, University of Surrey, UK. This
could minimize inherent threats to the validity
of cross-language translation. To validate the
translation, two translated interviews were also
checked by two native Persian speakers who
were experts in English in Iran, as well as two
native English academics in the UK.Data analysis was accomplished adopting
Strauss and Corbin’s mode of grounded theory
that included three levels of open, axial and selective
coding. It was concurrently carried out
by data collection, i.e. the data collected were
transcribed and analyzed immediately after each
interview. One reason for this practice was that
in grounded theory the incoming information
from participants determines the information
which should be sought. For quality assurance
of transcription, transcripts were reviewed by
both two researchers. Using the constant comparative
method, data were coded line by line.
Codes were grouped together in categories and
the constant comparison of categories continued
as the properties of each category emerged. As
comparison went on, hypotheses about the relationships
among concepts were generated and
checked against raw data. To avoid potential
misrepresentation of data and in order to seek
consensus between the researchers, the codes,
subcategories and categories were further discussed,
which led to refinement of the scheme
of abstracted categories.Lincoln and Guba’s key concepts of rigour including
credibility, conformability and transferability
were used to support the enhancement of
data analysis quality (25). In order to ensure that
the phenomenon was investigated accurately, participants
were permitted to guide the interview
process and their own language and actual words
were used at all levels of coding. Furthermore,
prolonged engagement with participants for extended
periods of time, member check in which
respondents were asked to confirm findings, and
peer debriefing were used to enhance the trustworthiness
and credibility of the findings. To achieve
transferability, strategies like thick descriptions
and purposive sampling were used.Frequency distribution of participants’ demographic characteristicsThe study was approved by Research Ethics
Committees of Queen Charlotte’s and Chelsea
Hospital, Elizabeth Garrett Anderson and
Obstetrical Hospital and University of Surrey.
All participants signed the informed consent
form and were assured that anonymity and
confidentiality would be maintained. They
could refuse to participate or withdraw from
the study at any time without prejudice to their
clinical treatment.
Results
Through analysis three categories emerged including:
appraising the meaning of infertility
religiously, applying religious coping strategies,
and gaining a faith-based strength. These
were encompassed in the core category of ‘relying
on a higher being’. The core concept was
that the majority of religious infertile women
believed in a supreme power, who can be called
to for assistance in the occasion of devastation
and desperation in their lives. This made the
experiences of infertile women who were affiliated
to different religious faiths, congruent and
well-matched.
Appraising the meaning of infertility religiously
The findings of this study showed that participants
using a religious/spiritual meaningmaking
framework tried to reappraise their illness
religiously and spiritually. They trusted a
higher power who can protect individuals, and
endeavoured to gradually accept themselves as
infertile. They gave a sacred meaning to everything
in their life, had a particular loving relationship
with God and considered every Godgiven
phenomenon as a gift, believing in the
logic behind it. They viewed their infertility as
God’s will and believed that nothing can happen
without God’s contribution as He has absolute
control over people’s lives; thus people should
accept what God has decreed for them. In addition
to this, participants in the current study
talked about an internal knowing, certainty and
assurance that they will be blessed by a compassionate
and merciful God, either through having
a child or in other ways as “God never let them
down and if he doesn't give them one thing, He
gives them something else” (NA/ 28 Y./ Shiite
Muslim/ Asian).They contemplated that they should accept
God’s plan with enthusiasm as His will is the most
advantageous course for their lives, because they
are being loved by God and He knows “what’s
best really”. Moreover, the findings suggested
that religious participants, due to having a “bigger
understanding of life” did not view infertility
as “just trying to have a baby”. They were
hopeful that infertility would be a “life-enriching
experience” and a “positive process” to enhance
their “reliance on God” and to improve their
“spiritual growth”.
Applying religious coping strategies
This worldview resulted in optimism and positive
thinking which empowered the women in
their journey to be able to accept their identity
as infertile. Gradually they tried to take
responsibility and control over all aspects of
their lives by adopting some strategies to cope
with infertility. They employed a wide spectrum
of religious coping strategies, which are
rooted in their religious teachings. These strategies
consisted of a combination of positive
and negative religious coping strategies which
enhanced their emotional capability and as a
consequence helped them to overcome their
stressful situation.Positive religious coping strategies included
benevolent religious reappraisal: “Religion absolutely
gives me the strength to deal with infertility”
(SR/ 33 Y. / Sunni Muslim/ Asian British),
belief in spiritual support: “If you ask anything
from Him (God) He will give you” (NA/ 28 Y./
Shiite Muslim/ Asian), engagement in rituals: “I
do my prayer, so I cope with things”, (AH/ 32
Y./ Christian: Church of England/ White British),
belief in miracles: “I think people’s belief
in miracle gives them spiritual help” (RJ/ 38 Y./
Christian: Orthodox/ European), belief in timing:
“Whenever the time is right we will have a child”
(HA/ 26 Y. / Sunni Muslim/ Asian British), and
seeking support from congregation and clergy:
“A lot of my good friends know and they pray for
us” (AH/ 32 Y./ Christian: Church of England/
White British).In the other hand, some religious participants
adopted negative religious coping strategies
including demonic reappraisal: “There is something
inside the people living with them known
as Jinn who blocks everything (IM/ 30 Y./Sunni
Muslim/ African), spiritual discontent: “Occasionally
I complain to God and say O’ God
if really you are present everywhere why you
don't respond me when I cry and ask you?!”
(NA/ 28 Y./ Shiite Muslim/ Asian) and discontent
with clergy: “Priests’ answers regarding
using donor procedures wouldn't affect my decision” (CA/ 38 Y./ Christian: Catholic/ White
British).A range of non-religious coping strategies such
as ignorance: “There is always the element that it
might not happen but I don't want to think about
that” (AH/ 32 Y./ Christian: Church of England/
White British), minimization: “I think at the end
of the day, it’s not dying; it’s just having a child”
(HA/ 26 Y. / Sunni Muslim/ Asian British), and
compensation: “I would like to get more success
in other aspects of my life which can cover my
inability to get children” (NA/ 28 Y./ Shiite Muslim/
Asian).Having adopted these varieties of coping resources
helped infertile women to obtain a feeling
of self-confidence and empowerment and
consequently the ability to manage their emotions.
One of the Baptist participants commented:
“I think I’m a strong person and I can cope
with the situation, so I don’t need somebody
else to help me” (ED/ 40 Y./ Christian: Baptist/
European).
Gaining a faith-based strength
The other issue that the majority of the religious
participants discussed was the sufficiency
of their religious teachings as the best
source of counselling: “I think my religion is
the best counselling I can be given” (HA/ 26 Y.
/ Sunni Muslim/ Asian British). They thought
that they did not need any emotional and/ or
psychological support provided by counsellors.
This concept was clearly expressed by one of
the Muslim women: “Emotionally I am OK;
thanks to God it has not affected me and I think
I am psychologist of myself, I don’t need to get
help apart from my Allah, my God” (SR/ 33 Y. /
Sunni Muslim/ Asian British).They believed that they were able to find everything
in their holy book: “I don’t go to counselling
and I just think if you are religiously
committed you don’t need any of these things;
because we’ve got all it in our holy book” (IM/
30 Y. / Sunni Muslim/ African). Some participants
emphasized their religious consciousness
and their knowledge about the purpose of life.
They pointed out that their faith has taught them
how to manage life, so they did not feel the need
for any sort of counselling. One of the Muslim
participants indicated: “I know what the faith
is, the meaning of things, if something can help
you, the way you could run the life, everything I
know and I don't need to go there (counselling)
and I never go there” (IM/ 30 Y. / Sunni Muslim/
African). A Christian participant (Church
of England) stated that her faith has given her
the strength and capability to handle situations
throughout her life: “I am able to hold it in perspective
to the rest of my life and that’s what
faith does” (AH/ 32 Y./ Christian: Church of
England/ White British).It is worthwhile to say that some of the religious
participants were even eager to help
other people struggling with fertility problems,
and it showed their emotional strength. In this
regard, one Baptist participant said “I think I
can help the other people who are in the same
situation like me and I don’t need somebody
else to help me. I’m just thinking of couples
who can’t cope with the situation, to support
them, to encourage and to help them to find a
solution for their problem” (ED/ 40 Y./ Christian:
Baptist/ European).In contrast, some religious infertile women
acknowledged counsellors’ help and support,
but they liked religious issues to be addressed
in their counselling sessions. One of the Christian
participants (Church of England) indicated
her hesitancy in choosing either somebody who
is an expert in infertility counselling or someone
who is a strong religious person but with
less expertise. Nevertheless, her preference in
both cases was having the opportunity to talk
about God, because she believed that life does
not make sense for her without God: “The counsellors
often help, but in my experience I want
to talk about God, bring God in, because life
doesn’t mean to me, life doesn’t make sense
without God” (AH/ 32 Y./ Christian: Church of
England/ White British).
Discussion
Research studies have shown that religion and
spirituality are highly valuable for many people
during their confrontation with crisis, trauma
and grief (20- 22). There is an increasing awareness
among medical and mental health caregivers
that spiritual well-being is an important dimension
to physical and emotional health and
that there is a generally positive relationship
between religious involvement and health outcomes
(26). For this reason, over the past several
years there has been an expanded body of
literature on integrating religion and spirituality
into clinical practice.However, little research has examined the influence of religious beliefs on the experience of
infertility and patients’ decisions regarding its
treatment. Also, very little is known about considering
religious concepts in infertility counselling.
Molock who has investigated the religious
and cultural aspects of infertility in the African-
American community argues that spirituality
is a very important cultural value for African
Americans (27). For this reason, Molock suggests
that during the initial stages of counselling
it is important to note how salient religious practices
are in the client’s life (28). She emphasizes
that it is also important to ask clients about their
understanding of infertility not from a medical
standpoint but on a “personal level”. Dutney has
argued that infertile patients who are religiously
active are probably in a process of reframing
their faith in the light of their experience of infertility
(20).The findings of this study showed how religious
and spiritual frames of reference transformed infertile
women’s views of infertility from an unbearable
life crisis to a tolerable process which
can be dealt with in order to achieve spiritual
growth and development. This notion is congruent
with what Sewpaul mentioned regarding infertile
women who reappraised infertility as an opportunity
for re-evaluation of one’s life, values and
relationship with God and as a challenge which
provided the opportunity for positive change
(22). We argue that these kinds of positive reappraisals
of infertility by the majority of religious
infertile women give them self-empowerment and
self-worth in their journey to be able to confront
infertility with less difficulty and to accept their
identity as infertile (29).The findings of this study highlighted that religious
participants achieved feelings of optimism
and peace regarding the emotional burden of infertility
by adopting religious/ spiritual coping
strategies, which arise from their religious teachings
and divine outlook on life. This finding is
in agreement with what Domar et al. observed
(21). In a quantitative study exploring the role
of religiosity and/or spirituality in shaping the
subjective psychological well-being of infertile
women, they found that infertile women with
higher levels of spiritual well-being reported
fewer depressive symptoms and less overall distress
from their infertility experience. They suggested
a relationship between spirituality and the
psychological well-being of women undergoing
infertility treatment.A further finding of this study was that most
religious infertile women felt that their religious
coping resources were sufficient to manage the
strain of their infertility. They experienced their
religious teachings and holy book as the best
source of counselling and believed that they
have religiously been taught how to manage
life crises. Also the support that they received
through their religious husbands, congregation
and clergies resulted in less reliance on formal
support resources like counselling services.
Boivin et al. in her study entitled: “Why are infertile
patients not using psychosocial counselling?”
has similarly discussed that the majority
of infertile women have been able to receive
good help from informal sources of support,
i.e. spouse, family and friends (10). They therefore
did not consider themselves distressed to
the point of needing counselling services and
felt that counselling would not actually help
them to cope with infertility. De Klerk et al.
have also reported that there is little perceived
need for psychosocial counselling by infertile
couples who are in stable relationships and benefit
from other sources of support available to
them, like family or friends (30). Boivin has
argued that despite the best efforts of counsellors,
some highly distressed patients will refuse
to attend counselling, because they do not recognize
the need for such help (31). Molock in
this regard, has discussed that counsellors need
to be sensitive to this issue that many religious
people are uncomfortable venturing into counselling
because of 1. their tendency to distrust
disclosing personal information to “strangers”
and preference to resolve their “emotional”
problems through their family, friends and clergies
in their community 2. the stigma attached
to seeking mental health services and 3. feeling
uncomfortable discussing issues concerning
sexual behavior due to the close association between
infertility and sexuality (28).It is worthwhile to point out that in this study
some of the participants expressed their desire
and wish for religious and spiritual topics
to be addressed in counselling. Puchalski,
with regard to paying attention to the spiritual
concerns of patients, has argued that spirituality
may be a dynamic force in the patients’
understanding of illness and can affect their
decision-making for treatment. Therefore an
understanding of patients’ spirituality is integral
to their whole care (32). Eck discusses
research which emphasizes clients’ preference
for including their belief system in therapy
(33). He cites Quackenbos et al. who reported that 78% of clients feel that religious values
should be discussed in counselling (2000: 268).
Worthington et al. also argued that clients who
identify themselves as religious prefer religious
themes to be discussed in their counselling
(34). The guideline for good practice in
infertility counselling provided by the British
Infertility Counselling Association (BICA)
takes account of the client’s cultural and faith
context (2.2, P.1) and also the ethical, cultural,
social and faith issues raised by assisted conception
treatments and research (7.4, P.8) (3).
In the guideline for counselling in infertility
which has been written in collaboration with
the UK, Germany, Spain, Belgium, Switzerland
and New Zealand, in the section which
exclusively deals with third party reproduction
(gamete and embryo donation and surrogacy)
it has been recommended to discuss religious
and cultural considerations (35).Latifnejad Roudsari et al. have argued that
health professionals can encourage patients to
initiate discussion regarding their religious and
spiritual background, in addition to their medical
history (36). In relation to addressing religious issues,
Molock has commented that it is helpful to
explore with clients how their spirituality helps
and impedes their ability to cope with infertility
(28). She has argued that if therapists are uncomfortable
discussing spiritual issues, they should
offer a referral to a pastoral counsellor who has
been trained to address both spiritual and psychotherapeutic
issues. They can also encourage
support groups in particular religious communities.
Dutney has also advised medical personnel
to consider identifying people in the community
to whom infertile patients can be referred for spiritual
counselling, including ministers or priests
who have personal knowledge of the experience
of infertility (20). Molock indicates that it is important
that counsellors address how they feel
about their own spirituality, although this might
be difficult for most of the therapists, as they have
been trained to avoid religious issues in counselling.
She emphasized, however, that it is important
for infertility counsellors to appreciate that
infertility is experienced as a spiritual crisis by
many clients (28).In the process of exploring the religious and spiritual
experiences of infertile women, it is important
to keep the limitations of this study in mind.
One potential limitation was the researcher’s reliance
on participants’ self-reports of their religiosity
and spirituality. The other issue was the relatively
small sample size which is a common issue
in qualitative methodologies. However, although
the sample size was small, it was purposeful and
the logic and power of purposeful sampling lies
in selecting information-rich cases for in-depth
study. Furthermore, in qualitative studies the
researchers do not attempt to generalize their
explanations in an empirical way; instead, they
try to make a theoretical generalization which is
more productive.
Conclusion
As infertility is a multifaceted problem and
results in multiple losses, health professionals
who are working in fertility clinics need to
consider all aspects of holistic care when caring
for women with fertility problems. Holistic
care considers not only the psychological, social
and cultural needs of individuals, but also
their religious and spiritual needs (36). The
findings of this study can enrich both medical
and psychosocial professionals’ awareness
and understanding of religious/ spiritual infertile
women’s conceptualization of their illness
(37). We argue that infertility counselling, in
addition to focusing on the psychosocial needs
of infertile couples, should also consider their
religious and spiritual concerns, although this
issue requires further research in relation to
the different religious faiths. Molock, in this
regard, argues that infertility counsellors must
have knowledge of religious/ spiritual values
and should consider these issues in the provision
of psychotherapeutic interventions for
couples experiencing infertility (28). We argue
that providing infertility counselling in a religiously
sensitive context can encourage religious/
spiritual infertile women to use counselling
services and can help them to cope better
with their stressful situation. Additionally, it
can give a more holistic approach to infertility
counselling and help infertile women better
come to terms with their experiences.
Table 1
Frequency distribution of participants’ demographic characteristics
Authors: C de Klerk; J A M Hunfeld; H J Duivenvoorden; M A den Outer; B C J M Fauser; J Passchier; N S Macklon Journal: Hum Reprod Date: 2005-01-13 Impact factor: 6.918
Authors: J Boivin; T C Appleton; P Baetens; J Baron; J Bitzer; E Corrigan; K R Daniels; J Darwish; D Guerra-Diaz; M Hammar; A McWhinnie; B Strauss; P Thorn; T Wischmann; H Kentenich Journal: Hum Reprod Date: 2001-06 Impact factor: 6.918