Literature DB >> 25084725

Pediatric palliative care for children with complex chronic medical conditions.

Scott Schwantes1, Helen Wells O'Brien2.   

Abstract

Children with complex chronic medical conditions are at risk for significant distress during multiple points in their life. Pediatric palliative care can meaningfully assist in providing support to the child and family throughout their complex care, managing distressing symptoms, anticipating future decision points, and helping the child and family to thrive in their local community.
Copyright © 2014 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Children with complex chronic conditions; Dysautonomia; Feeding intolerance; Neuroirritability; Spiritual care

Mesh：

Year:  2014        PMID： 25084725     DOI： 10.1016/j.pcl.2014.04.011

Source DB:  PubMed          Journal:  Pediatr Clin North Am        ISSN： 0031-3955            Impact factor:   3.278


  11 in total

1.  Place of death of children with complex chronic conditions: cross-national study of 11 countries.

Authors:  Cecilia Håkanson; Joakim Öhlén; Ulrika Kreicbergs; Marylou Cardenas-Turanzas; Donna M Wilson; Martin Loucka; Sandra Frache; Lucia Giovannetti; Wayne Naylor; YongJoo Rhee; Miguel Ruiz Ramos; Joan Teno; Kim Beernaert; Luc Deliens; Dirk Houttekier; Joachim Cohen
Journal:  Eur J Pediatr       Date:  2017-01-09       Impact factor: 3.183

2.  Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions.

Authors:  Danielle D DeCourcey; Melanie Silverman; Adeolu Oladunjoye; Emily M Balkin; Joanne Wolfe
Journal:  J Pediatr       Date:  2017-11-22       Impact factor: 4.406

3.  Revised consensus statement on the preventive and symptomatic care of patients with leukodystrophies.

Authors:  Laura A Adang; Omar Sherbini; Laura Ball; Miriam Bloom; Anil Darbari; Hernan Amartino; Donna DiVito; Florian Eichler; Maria Escolar; Sarah H Evans; Ali Fatemi; Jamie Fraser; Leslie Hollowell; Nicole Jaffe; Christopher Joseph; Mary Karpinski; Stephanie Keller; Ryan Maddock; Edna Mancilla; Bruce McClary; Jana Mertz; Kiley Morgart; Thomas Langan; Richard Leventer; Sumit Parikh; Amy Pizzino; Erin Prange; Deborah L Renaud; William Rizzo; Jay Shapiro; Dean Suhr; Teryn Suhr; Davide Tonduti; Jacque Waggoner; Amy Waldman; Nicole I Wolf; Ayelet Zerem; Joshua L Bonkowsky; Genevieve Bernard; Keith van Haren; Adeline Vanderver
Journal:  Mol Genet Metab       Date:  2017-08-20       Impact factor: 4.797

4.  Complex care of individuals with multiple sulfatase deficiency: Clinical cases and consensus statement.

Authors:  Rebecca Ahrens-Nicklas; Lars Schlotawa; Andrea Ballabio; Nicola Brunetti-Pierri; Mauricio De Castro; Thomas Dierks; Florian Eichler; Can Ficicioglu; Alan Finglas; Jutta Gaertner; Brian Kirmse; Joerg Klepper; Marcus Lee; Amber Olsen; Giancarlo Parenti; Arastoo Vossough; Adeline Vanderver; Laura A Adang
Journal:  Mol Genet Metab       Date:  2018-01-31       Impact factor: 4.797

Review 5.  Challenging neurological symptoms in paediatric palliative care: An approach to symptom evaluation and management in children with neurological impairment.

Authors:  Lisa Ann Rasmussen; Marie-Claude Grégoire
Journal:  Paediatr Child Health       Date:  2015-04       Impact factor: 2.253

6.  Assessing Nursing Care Needs of Children With Complex Medical Conditions: The Nursing-Kids Intensity of Care Survey (N-KICS).

Authors:  Ann-Margaret Navarra; Rona Schlau; Meghan Murray; Linda Mosiello; Laura Schneider; Olivia Jackson; Bevin Cohen; Lisa Saiman; Elaine L Larson
Journal:  J Pediatr Nurs       Date:  2016-01-07       Impact factor: 2.145

7.  Community-based pediatric palliative care for health related quality of life, hospital utilization and costs lessons learned from a pilot study.

Authors:  Jeffrey Goldhagen; Mark Fafard; Kelly Komatz; Terry Eason; William C Livingood
Journal:  BMC Palliat Care       Date:  2016-08-03       Impact factor: 3.234

8.  Visceral Hyperalgesia: When to Consider Gabapentin Use in Neonates-Case Study and Review.

Authors:  Joseph Asaro; Christine A Robinson; Philip T Levy
Journal:  Child Neurol Open       Date:  2017-02-10

9.  Insights into the Frequency and Distinguishing Features of Sleep Disorders in Pediatric Palliative Care Incorporating a Systematic Sleep Protocol.

Authors:  Larissa Alice Dreier; Boris Zernikow; Kathrin Stening; Julia Wager
Journal:  Children (Basel)       Date:  2021-01-17

10.  Pediatric Deaths Attributed to Complex Chronic Conditions over 10 Years in Korea: Evidence for the Need to Provide Pediatric Palliative Care.

Authors:  Min Sun Kim; Nam Gu Lim; Hyun Joo Kim; Chohee Kim; Jin Yong Lee
Journal:  J Korean Med Sci       Date:  2018-01-01       Impact factor: 2.153
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