Literature DB >> 25074512

Governing through community-based research: lessons from the Canadian HIV research sector.

Adrian Guta1, Carol Strike2, Sarah Flicker3, Stuart J Murray4, Ross Upshur2, Ted Myers2.   

Abstract

The "general public" and specific "communities" are increasingly being integrated into scientific decision-making. This shift emphasizes "scientific citizenship" and collaboration between interdisciplinary scientists, lay people, and multi-sector stakeholders (universities, healthcare, and government). The objective of this paper is to problematize these developments through a theoretically informed reading of empirical data that describes the consequences of bringing together actors in the Canadian HIV community-based research (CBR) movement. Drawing on Foucauldian "governmentality" the complex inner workings of the impetus to conduct collaborative research are explored. The analysis offered surfaces the ways in which a formalized approach to CBR, as promoted through state funding mechanisms, determines the structure and limits of engagement while simultaneously reinforcing the need for finer grained knowledge about marginalized communities. Here, discourses about risk merge with notions of "scientific citizenship" to implicate both researchers and communities in a process of governance.
Copyright © 2014 The Authors. Published by Elsevier Ltd.. All rights reserved.

Entities:  

Keywords:  Canada; Citizenship; Community-based participatory research; Community-based research; Foucault; Governmentality; HIV/AIDS; Situational analysis

Mesh:

Year:  2014        PMID: 25074512     DOI: 10.1016/j.socscimed.2014.07.028

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  7 in total

1.  Research Done in "A Good Way": The Importance of Indigenous Elder Involvement in HIV Community-Based Research.

Authors:  Sarah Flicker; Patricia O'Campo; Renée Monchalin; Jesse Thistle; Catherine Worthington; Renée Masching; Adrian Guta; Sherri Pooyak; Wanda Whitebird; Cliff Thomas
Journal:  Am J Public Health       Date:  2015-04-16       Impact factor: 9.308

2.  Beyond clinical trials: social outcomes of structured stakeholder engagement in biomedical HIV prevention trials in China.

Authors:  Chuncheng Liu; Kathrine Meyers
Journal:  Cult Health Sex       Date:  2019-11-08

3.  Governing Well in Community-Based Research: Lessons from Canada's HIV Research Sector on Ethics, Publics and the Care of the Self.

Authors:  Adrian Guta; Stuart J Murray; Carol Strike; Sarah Flicker; Ross Upshur; Ted Myers
Journal:  Public Health Ethics       Date:  2016-05-12       Impact factor: 1.940

4.  Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers.

Authors:  Will Damon; Cody Callon; Lee Wiebe; Will Small; Thomas Kerr; Ryan McNeil
Journal:  Soc Sci Med       Date:  2017-01-21       Impact factor: 4.634

5.  "Carrying Ibuprofen in the Bag": Priority Health Concerns of Latin American Migrants in Spain- A Participatory Qualitative Study.

Authors:  Maria Roura; Federico Bisoffi; Barbara Navaza; Robert Pool
Journal:  PLoS One       Date:  2015-08-28       Impact factor: 3.240

6.  Meaningful engagement of people living with HIV who use drugs: methodology for the design of a Peer Research Associate (PRA) hiring model.

Authors:  K Closson; R McNeil; P McDougall; S Fernando; A B Collins; R Baltzer Turje; T Howard; S Parashar
Journal:  Harm Reduct J       Date:  2016-10-07

7.  Community centrality and social science research.

Authors:  Dan Allman
Journal:  Anthropol Med       Date:  2015-10-06
  7 in total

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