Setareh Ghahari1, Lana S Khoshbin1, Susan J Forwell1. 1. Department of Occupational Science and Occupational Therapy, University of British Columbia, Vancouver, British Columbia, Canada (SG, LSK, SJF); and Department of Occupational Therapy, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran (SG).
Abstract
BACKGROUND: The Multiple Sclerosis Self-Management Scale (MSSM) is currently the only measure that was developed specifically to address self-management among individuals with multiple sclerosis (MS). While good internal consistency (α = 0.85) and construct validity have been demonstrated, other psychometric properties have not been established. This study was undertaken to evaluate the criterion validity, test-retest reliability, and face validity of the MSSM. METHODS: Thirty-one individuals with MS who met the inclusion criteria were recruited to complete a series of questionnaires at two time points. At Time 1, participants completed the MSSM and two generic self-management tools-the Partners in Health (PIH-12) and the Health Education Impact Questionnaire (heiQ)-as well as a short questionnaire to capture participants' opinions about the MSSM. At Time 2, approximately 2 weeks after Time 1, participants completed the MSSM again. RESULTS: The available MSSM factors showed moderate to high correlations with both PIH-12 and heiQ and were deemed to have satisfactory test-retest reliability. Face validity pointed to areas of the MSSM that need to be revised in future work. As indicated by the participants, some dimensions of MS self-management are missing in the MSSM and some items such as medication are redundant. CONCLUSIONS: This study provides evidence for the reliability and validity of the MSSM; however, further changes are required for both researchers and clinicians to use the tool meaningfully in practice.
BACKGROUND: The Multiple Sclerosis Self-Management Scale (MSSM) is currently the only measure that was developed specifically to address self-management among individuals with multiple sclerosis (MS). While good internal consistency (α = 0.85) and construct validity have been demonstrated, other psychometric properties have not been established. This study was undertaken to evaluate the criterion validity, test-retest reliability, and face validity of the MSSM. METHODS: Thirty-one individuals with MS who met the inclusion criteria were recruited to complete a series of questionnaires at two time points. At Time 1, participants completed the MSSM and two generic self-management tools-the Partners in Health (PIH-12) and the Health Education Impact Questionnaire (heiQ)-as well as a short questionnaire to capture participants' opinions about the MSSM. At Time 2, approximately 2 weeks after Time 1, participants completed the MSSM again. RESULTS: The available MSSM factors showed moderate to high correlations with both PIH-12 and heiQ and were deemed to have satisfactory test-retest reliability. Face validity pointed to areas of the MSSM that need to be revised in future work. As indicated by the participants, some dimensions of MS self-management are missing in the MSSM and some items such as medication are redundant. CONCLUSIONS: This study provides evidence for the reliability and validity of the MSSM; however, further changes are required for both researchers and clinicians to use the tool meaningfully in practice.
Authors: Teresa Mei Lee Chiu; Katharine Tai Wo Tam; Choi Fong Siu; Phyllis Wai Ping Chau; Malcolm Battersby Journal: Qual Life Res Date: 2016-05-23 Impact factor: 4.147
Authors: Tanya L Packer; George Kephart; Setareh Ghahari; Åsa Audulv; Joan Versnel; Grace Warner Journal: Qual Life Res Date: 2015-01-06 Impact factor: 4.147