Literature DB >> 25042897

The individualized neuromuscular quality of life questionnaire: cultural translation and psychometric validation for the Dutch population.

Femke M Seesing1, Lisanne Ewm van Vught, Michael R Rose, Gea Drost, Baziel G M van Engelen, Gert-Jan van der Wilt.   

Abstract

INTRODUCTION: In this study we describe the translation and psychometric evaluation of the Dutch Individualized Neuromuscular Quality of Life (INQoL) questionnaire.
METHODS: Backward and forward translation of the questionnaire was executed, and psychometric properties were assessed on the basis of reliability and validity.
RESULTS: Two hundred six patients were included in the study. Reliability analyses resulted in Cronbach alpha values of >0.70 for all subdomains. Known-group validity showed a significant correlation between INQoL scores and severity as well as age for the majority of subdomains. Item-total correlation for overall quality of life was satisfactory. Concurrent validity with the SF-36 and EQ-5D was good (range of Spearman correlation coefficients -0.43 to -0.76).
CONCLUSIONS: This study resulted in a questionnaire that is appropiate for use in the Dutch-speaking population to measure quality of life among patients with a wide variety of muscle disorders. This confirms and extends data obtained in the UK, US, Italy, and Serbia.
© 2014 Wiley Periodicals, Inc.

Entities:  

Keywords:  INQoL; muscle disease; outcome; patient-reported; quality of life; validation

Mesh:

Year:  2015        PMID: 25042897     DOI: 10.1002/mus.24337

Source DB:  PubMed          Journal:  Muscle Nerve        ISSN: 0148-639X            Impact factor:   3.217


  4 in total

1.  213th ENMC International Workshop: Outcome measures and clinical trial readiness in idiopathic inflammatory myopathies, Heemskerk, The Netherlands, 18-20 September 2015.

Authors:  Olivier Benveniste; Lisa G Rider
Journal:  Neuromuscul Disord       Date:  2016-05-27       Impact factor: 4.296

2.  Quality of life and subjective symptom impact in Japanese patients with myotonic dystrophy type 1.

Authors:  Haruo Fujino; Toshio Saito; Masanori P Takahashi; Hiroto Takada; Takahiro Nakayama; Osamu Imura; Tsuyoshi Matsumura
Journal:  BMC Neurol       Date:  2022-02-14       Impact factor: 2.474

3.  Validation of the Individualized Neuromuscular Quality of Life Questionnaire in Korean Patients With Genetic Neuromuscular Diseases.

Authors:  Hee Jo Han; Seung-Ah Lee; Young-Chul Choi; Michael R Rose; Hyung Jun Park
Journal:  J Clin Neurol       Date:  2022-09       Impact factor: 2.566

4.  Longitudinal Assessment of Strength, Functional Capacity, Oropharyngeal Function, and Quality of Life in Oculopharyngeal Muscular Dystrophy.

Authors:  Rosemarie H M J M Kroon; Johanna G Kalf; Bert J M de Swart; Barbara M van der Sluijs; Jeffrey C Glennon; Vered Raz; Baziel G van Engelen; Corinne G C Horlings
Journal:  Neurology       Date:  2021-08-11       Impact factor: 9.910

  4 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.