Literature DB >> 25038375

When a child dies: parents' experiences of palliative care-an integrative literature review.

Christina Melin-Johansson1, Inge Axelsson2, Marie Jonsson Grundberg3, Frida Hallqvist3.   

Abstract

The aim of this integrative review was to increase knowledge about parents' experiences of palliative care when their child is dying or has died due to illness using Whittemore and Knafl (2005) analysis process. Computerized databases were used to search the literature. Nine papers met the inclusion criteria. The analysis resulted in five categories: genuine communication, sincere relationships, respect as an expert, and alleviation of suffering and need of support, including 15 subcategories. Health professionals need education to provide high-quality pediatric palliative care. They especially need training concerning existential issues, and further studies need to be performed.
Copyright © 2014 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Communication; Family; Literature review; Palliative care; Pediatrics; Support

Mesh:

Year:  2014        PMID: 25038375     DOI: 10.1016/j.pedn.2014.06.009

Source DB:  PubMed          Journal:  J Pediatr Nurs        ISSN: 0882-5963            Impact factor:   2.145


  14 in total

1.  End of life care for infants, children and young people (ENHANCE): Protocol for a mixed methods evaluation of current practice in the United Kingdom [version 1; peer review: 2 approved].

Authors:  Andrew Papworth; Julia Hackett; Bryony Beresford; Fliss Murtagh; Helen Weatherly; Sebastian Hinde; Andre Bedendo; Gabriella Walker; Jane Noyes; Sam Oddie; Chakrapani Vasudevan; Richard Feltbower; Bob Phillips; Richard Hain; Gayathri Subramanian; Andrew Haynes; Lorna K Fraser
Journal:  NIHR Open Res       Date:  2022-05-13

2.  Parental expectations of support from healthcare providers during pediatric life-threatening illness: A secondary, qualitative analysis.

Authors:  Kim Mooney-Doyle; Maiara Rodrigues Dos Santos; Regina Szylit; Janet A Deatrick
Journal:  J Pediatr Nurs       Date:  2017-06-29       Impact factor: 2.145

3.  Perceptions of the parents of deceased children and of healthcare providers about end-of-life communication and breaking bad news at a tertiary care public hospital in India: A qualitative exploratory study.

Authors:  Manoja Kumar Das; Narendra Kumar Arora; Harish Kumar Chellani; Pradeep Kumar Debata; K R Meena; Reeta Rasaily; Gurkirat Kaur; Prikanksha Malik; Shipra Joshi; Manisha Kumari
Journal:  PLoS One       Date:  2021-03-18       Impact factor: 3.240

4.  Constructing stability - a classic grounded theory of next-of-kin in palliative cancer care.

Authors:  Carina Werkander Harstäde; Anna Sandgren
Journal:  BMC Palliat Care       Date:  2020-06-05       Impact factor: 3.234

5.  Parental experiences of end of life care decision-making for children with life-limiting conditions in the paediatric intensive care unit: a qualitative interview study.

Authors:  Sarah Mitchell; Jenna L Spry; Emma Hill; Jane Coad; Jeremy Dale; Adrian Plunkett
Journal:  BMJ Open       Date:  2019-05-09       Impact factor: 2.692

6.  Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: A realist review.

Authors:  Sarah Mitchell; Karina Bennett; Andrew Morris; Anne-Marie Slowther; Jane Coad; Jeremy Dale
Journal:  Palliat Med       Date:  2019-08-21       Impact factor: 4.762

7.  Seeking an Adjustment from the Unnatural to the Supernatural: The Experience of Losing a Child from Cancer in Colombia.

Authors:  Sonia Carreño-Moreno; Mauricio Arias-Rojas; Lorena Chaparro-Díaz
Journal:  Indian J Palliat Care       Date:  2021-02-17

8.  When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care.

Authors:  Karin Zimmermann; Eva Bergstraesser; Sandra Engberg; Anne-Sylvie Ramelet; Katrin Marfurt-Russenberger; Nicolas Von der Weid; Chantal Grandjean; Patricia Fahrni-Nater; Eva Cignacco
Journal:  BMC Palliat Care       Date:  2016-03-09       Impact factor: 3.234

9.  End-of-Life Milieu of Critically Sick Children Admitted to a Pediatric Hospital: A Comparative Study of Survivors versus Nonsurvivors.

Authors:  Asmita Das; Bhavneet Bharti; Prahbhjot Malhi; Sunit Singhi
Journal:  Indian J Palliat Care       Date:  2019 Oct-Dec

10.  Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study.

Authors:  Tanja Leemann; Eva Bergstraesser; Eva Cignacco; Karin Zimmermann
Journal:  BMC Palliat Care       Date:  2020-08-04       Impact factor: 3.234

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