Ahmed Al-Awamer1, James Downar. 1. Department of Psychosocial Oncology and Palliative Care, Princess Margaret Cancer Center, University Health Network, 610 University Ave., Rm16-575, Toronto, M5G 2M9, Canada, ahmed.al.awamer@mail.utoronto.ca.
Abstract
PURPOSE: Palliative Care (PC) was first introduced to Muslim Middle Eastern (MME) countries in 1992, but growth of PC has been slow and access to PC is still limited in the region. While most PC models have been developed in Western countries, MME societies have different cultural and religious values that are not incorporated in Western models. We conducted a qualitative study to look at these differences, in order to inform a culturally acceptable model of PC that meets the needs of MME patients and their families. METHODS: We conducted semi-structured interviews of PC physicians and nurses with experience in both Western and MME countries. Participants were identified by snowball sampling. Interviews were transcribed and analyzed using a modified grounded-theory approach. RESULTS: We achieved conceptual saturation after 13 interviews. Participants identified four differences between PC practice in Western and MME countries including: cultural differences, legal and policy differences, stances on PC philosophy, and the availability of resources and support for PC. Participants identified five barriers to advancing PC in the MME: shortage of resources, unclear laws and policies, healthcare system barriers, unfamiliarity with the role and benefits of PC, and cultural barriers. Respondents suggested many facilitators at the institutional, regional, and societal levels. CONCLUSIONS: We identified a number of important differences in PC practice, as well as common barriers and facilitators for developing PC services in MME countries. This information can help clinicians who are developing PC services in a MME country.
PURPOSE: Palliative Care (PC) was first introduced to Muslim Middle Eastern (MME) countries in 1992, but growth of PC has been slow and access to PC is still limited in the region. While most PC models have been developed in Western countries, MME societies have different cultural and religious values that are not incorporated in Western models. We conducted a qualitative study to look at these differences, in order to inform a culturally acceptable model of PC that meets the needs of MME patients and their families. METHODS: We conducted semi-structured interviews of PC physicians and nurses with experience in both Western and MME countries. Participants were identified by snowball sampling. Interviews were transcribed and analyzed using a modified grounded-theory approach. RESULTS: We achieved conceptual saturation after 13 interviews. Participants identified four differences between PC practice in Western and MME countries including: cultural differences, legal and policy differences, stances on PC philosophy, and the availability of resources and support for PC. Participants identified five barriers to advancing PC in the MME: shortage of resources, unclear laws and policies, healthcare system barriers, unfamiliarity with the role and benefits of PC, and cultural barriers. Respondents suggested many facilitators at the institutional, regional, and societal levels. CONCLUSIONS: We identified a number of important differences in PC practice, as well as common barriers and facilitators for developing PC services in MME countries. This information can help clinicians who are developing PC services in a MME country.
Authors: Hector Y Adames; Nayeli Y Chavez-Dueñas; Milton A Fuentes; Silvia P Salas; Jessica G Perez-Chavez Journal: Palliat Support Care Date: 2013-06-17
Authors: Mathijs P Hendriks; Hanneke W M van Laarhoven; Ries van de Sande; Evelyn van Weel-Baumgarten; Constans A Verhagen; Kris C Vissers Journal: J Palliat Med Date: 2012-10 Impact factor: 2.947
Authors: David Casarett; Amy Pickard; F Amos Bailey; Christine Ritchie; Christian Furman; Ken Rosenfeld; Scott Shreve; Zhen Chen; Judy A Shea Journal: J Am Geriatr Soc Date: 2008-01-16 Impact factor: 5.562
Authors: Glenn Gade; Ingrid Venohr; Douglas Conner; Kathleen McGrady; Jeffrey Beane; Robert H Richardson; Marilyn P Williams; Marcia Liberson; Mark Blum; Richard Della Penna Journal: J Palliat Med Date: 2008-03 Impact factor: 2.947