Ingrid H E Korenromp1, Mart A F J van de Laar. 1. aILD Center of Excellence, Department of Pulmonology, St. Antonius Hospital, Nieuwegein bArthritis Center Twente, Medisch Spectrum Twente & University Twente, Enschede, The Netherlands.
Abstract
PURPOSE OF REVIEW: The review presents an overview of the scientific publications in the field of health-related quality of life (HRQL) in sarcoidosis. RECENT FINDINGS: Literature on HRQL in sarcoidosis is limited. HRQL was mainly used as a primary or secondary endpoint in intervention studies. Moreover, most studies have measured HRQL in sarcoidosis by means of the generic questionnaire 36-Item Short-Form Health Survey. Sarcoidosis-specific questionnaires and computer-adapted testing are innovative approaches to the field. SUMMARY: HRQL as a primary or secondary outcome in sarcoidosis studies is still scarce. In addition to the proper definition of the concept, the mode of measurement of HRQL remains a matter of debate. Because health-economical evaluations require data on gained quality of life, future studies on sarcoidosis should include HRQL as the study endpoint.
PURPOSE OF REVIEW: The review presents an overview of the scientific publications in the field of health-related quality of life (HRQL) in sarcoidosis. RECENT FINDINGS: Literature on HRQL in sarcoidosis is limited. HRQL was mainly used as a primary or secondary endpoint in intervention studies. Moreover, most studies have measured HRQL in sarcoidosis by means of the generic questionnaire 36-Item Short-Form Health Survey. Sarcoidosis-specific questionnaires and computer-adapted testing are innovative approaches to the field. SUMMARY: HRQL as a primary or secondary outcome in sarcoidosis studies is still scarce. In addition to the proper definition of the concept, the mode of measurement of HRQL remains a matter of debate. Because health-economical evaluations require data on gained quality of life, future studies on sarcoidosis should include HRQL as the study endpoint.
Authors: Lechosław Paweł Chmielik; Grażyna Mielnik-Niedzielska; Anna Kasprzyk; Tomasz Stankiewicz; Artur Niedzielski Journal: Med Sci Monit Date: 2022-06-09
Authors: Björn Christian Frye; Laura Potasso; Erik Farin-Glattacker; Surrinder Birring; Joachim Müller-Quernheim; Jonas Christian Schupp Journal: BMC Pulm Med Date: 2021-12-03 Impact factor: 3.317