Literature DB >> 24970380

Representations of stem cell clinics on Twitter.

Kalina Kamenova1, Amir Reshef, Timothy Caulfield.   

Abstract

The practice of travelling abroad to receive unproven and unregulated stem cell treatments has become an increasingly problematic global phenomenon known as 'stem cell tourism'. In this paper, we examine representations of nine major clinics and providers of such treatments on the microblogging network Twitter. We collected and conducted a content analysis of Twitter posts (n = 363) by these establishments and by other users mentioning them, focusing specifically on marketing claims about treatment procedures and outcomes, discussions of safety and efficacy of stem cell transplants, and specific representations of patients' experiences. Our analysis has shown that there were explicit claims or suggestions of benefits associated with unproven stem cell treatments in approximately one third of the tweets and that patients' experiences, whenever referenced, were presented as invariably positive and as testimonials about the efficacy of stem cell transplants. Furthermore, the results indicated that the tone of most tweets (60.2 %) was overwhelmingly positive and there were rarely critical discussions about significant health risks associated with unproven stem cell therapies. When placed in the context of past research on the problems associated with the marketing of unproven stem cell therapies, this analysis of representations on Twitter suggests that discussions in social media have also remained largely uncritical of the stem cell tourism phenomenon, with inaccurate representations of risks and benefits for patients.

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Year:  2014        PMID: 24970380     DOI: 10.1007/s12015-014-9534-z

Source DB:  PubMed          Journal:  Stem Cell Rev Rep        ISSN: 2629-3277            Impact factor:   5.739


  17 in total

1.  Stem cell clinics in the news.

Authors:  Amy Zarzeczny; Christen Rachul; Matthew Nisbet; Timothy Caulfield
Journal:  Nat Biotechnol       Date:  2010-12       Impact factor: 54.908

2.  Infodemiology: tracking flu-related searches on the web for syndromic surveillance.

Authors:  Gunther Eysenbach
Journal:  AMIA Annu Symp Proc       Date:  2006

3.  Medicine. Monitoring and regulating offshore stem cell clinics.

Authors:  Sorapop Kiatpongsan; Douglas Sipp
Journal:  Science       Date:  2009-03-20       Impact factor: 47.728

4.  Stem cell tourism and Canadian family physicians.

Authors:  Timothy Caulfield; Amy Zarzeczny
Journal:  Can Fam Physician       Date:  2012-04       Impact factor: 3.275

5.  Stem-cell tourism and scientific responsibility. Stem-cell researchers are in a unique position to curb the problem of stem-cell tourism.

Authors:  Zubin Master; David B Resnik
Journal:  EMBO Rep       Date:  2011-09-30       Impact factor: 8.807

6.  Dissemination of health information through social networks: twitter and antibiotics.

Authors:  Daniel Scanfeld; Vanessa Scanfeld; Elaine L Larson
Journal:  Am J Infect Control       Date:  2010-04       Impact factor: 2.918

7.  Pandemics in the age of Twitter: content analysis of Tweets during the 2009 H1N1 outbreak.

Authors:  Cynthia Chew; Gunther Eysenbach
Journal:  PLoS One       Date:  2010-11-29       Impact factor: 3.240

8.  Tracking the rise of stem cell tourism.

Authors:  Kirsten A Ryan; Amanda N Sanders; Dong D Wang; Aaron D Levine
Journal:  Regen Med       Date:  2010-01       Impact factor: 3.806

9.  Medicine on the fringe: stem cell-based interventions in advance of evidence.

Authors:  Alan C Regenberg; Lauren A Hutchinson; Benjamin Schanker; Debra J H Mathews
Journal:  Stem Cells       Date:  2009-09       Impact factor: 6.277

10.  The use of Twitter to track levels of disease activity and public concern in the U.S. during the influenza A H1N1 pandemic.

Authors:  Alessio Signorini; Alberto Maria Segre; Philip M Polgreen
Journal:  PLoS One       Date:  2011-05-04       Impact factor: 3.240

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  7 in total

1.  Challenging misinformation and engaging patients: characterizing a regenerative medicine consult service.

Authors:  Cambray Smith; Charlene Martin-Lillie; Jennifer Dens Higano; Leigh Turner; Sydney Phu; Jennifer Arthurs; Timothy J Nelson; Shane Shapiro; Zubin Master
Journal:  Regen Med       Date:  2020-04-22       Impact factor: 3.806

2.  Regulated and Unregulated Clinical Trials of Stem Cell Therapies for Stroke.

Authors:  Michael G Liska; Marci G Crowley; Cesar V Borlongan
Journal:  Transl Stroke Res       Date:  2017-01-26       Impact factor: 6.829

3.  A Dichotomy of Information-Seeking and Information-Trusting: Stem Cell Interventions and Children with Neurodevelopmental Disorders.

Authors:  Kimberly Sharpe; Nina Di Pietro; Karen J Jacob; Judy Illes
Journal:  Stem Cell Rev Rep       Date:  2016-08       Impact factor: 5.739

Review 4.  International stem cell tourism: a critical literature review and evidence-based recommendations.

Authors:  Samantha Lyons; Shival Salgaonkar; Gerard T Flaherty
Journal:  Int Health       Date:  2022-03-02       Impact factor: 2.473

Review 5.  Unproven stem cell interventions: A global public health problem requiring global deliberation.

Authors:  Zubin Master; Kirstin R W Matthews; Mohamed Abou-El-Enein
Journal:  Stem Cell Reports       Date:  2021-06-08       Impact factor: 7.765

6.  Gordie Howe's "Miraculous Treatment": Case Study of Twitter Users' Reactions to a Sport Celebrity's Stem Cell Treatment.

Authors:  Li Du; Christen Rachul; Zhaochen Guo; Timothy Caulfield
Journal:  JMIR Public Health Surveill       Date:  2016-03-09

7.  Patients seeking stem cell therapies-a prospective qualitative analysis from a Regenerative Medicine Consult Service.

Authors:  Zubin Master; Shane A Shapiro; Jennifer R Arthurs; Lisa M Nordan; Brian H Hultgren; Michael G Heckman; Dayana Martinez
Journal:  NPJ Regen Med       Date:  2022-03-25
  7 in total

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