Literature DB >> 24965717

Testing the limits of the 'joint account' model of genetic information: a legal thought experiment.

Charles Foster1, Jonathan Herring2, Magnus Boyd3.   

Abstract

We examine the likely reception in the courtroom of the 'joint account' model of genetic confidentiality. We conclude that the model, as modified by Gilbar and others, is workable and reflects, better than more conventional legal approaches, both the biological and psychological realities and the obligations owed under Articles 8 and 10 of the European Convention on Human Rights (ECHR). Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions.

Entities:  

Keywords:  Confidentiality/Privacy; Ethics; Genethics; Genetic Information; Law

Mesh:

Year:  2014        PMID: 24965717     DOI: 10.1136/medethics-2014-102142

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  3 in total

Review 1.  Health-care professionals' responsibility to patients' relatives in genetic medicine: a systematic review and synthesis of empirical research.

Authors:  Sandi Dheensa; Angela Fenwick; Shiri Shkedi-Rafid; Gillian Crawford; Anneke Lucassen
Journal:  Genet Med       Date:  2015-06-25       Impact factor: 8.822

2.  'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine.

Authors:  Sandi Dheensa; Angela Fenwick; Anneke Lucassen
Journal:  J Med Ethics       Date:  2016-01-07       Impact factor: 2.903

3.  Beyond individualism: Is there a place for relational autonomy in clinical practice and research?

Authors:  Edward S Dove; Susan E Kelly; Federica Lucivero; Mavis Machirori; Sandi Dheensa; Barbara Prainsack
Journal:  Clin Ethics       Date:  2017-04-13
  3 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.