Literature DB >> 24952300

The feasibility and educational value of Hear My Voice, a chaplain-led spiritual life review process for patients with brain cancers and progressive neurologic conditions.

Katherine M Piderman1, Carmen Radecki Breitkopf, Sarah M Jenkins, Laura A Lovejoy, Yvette M Dulohery, Dean V Marek, Heidi L Durland, Debra L Head, Spence W Swanson, James T Hogg, John L Evans, Scott E Jorgenson, Laura J Bunkowski, Karl L Jones, Terin T Euerle, Gracia M Kwete, Keith A Miller, Jacob R Morris, Timothy J Yoder, Maria I Lapid, Aminah Jatoi.   

Abstract

Research continues to establish the importance of spirituality for many persons with medical illnesses. This paper describes a pilot study titled, "Hear My Voice," designed to provide an opportunity for persons with progressive neurologic illnesses, including brain tumors and other neurodegenerative diseases, to review and discuss their spirituality with a board-certified chaplain, and to prepare a spiritual legacy document (SLD). First, we provide background information that underscores the importance of such a project for this patient population that is particularly vulnerable to cognitive impairment and communication difficulties. Second, we provide detailed methodology, including the semi-structured interview format used, the development of the SLD, and an overview of responses from participants and investigators. We also describe the quantitative and qualitative approaches to analysis taken with the aim of developing scientific validation in support of the Hear My Voice project.

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Year:  2015        PMID: 24952300     DOI: 10.1007/s13187-014-0686-y

Source DB:  PubMed          Journal:  J Cancer Educ        ISSN: 0885-8195            Impact factor:   2.037


  9 in total

1.  The many methods of religious coping: development and initial validation of the RCOPE.

Authors:  K I Pargament; H G Koenig; L M Perez
Journal:  J Clin Psychol       Date:  2000-04

2.  Taking a spiritual history allows clinicians to understand patients more fully.

Authors:  C Puchalski; A L Romer
Journal:  J Palliat Med       Date:  2000       Impact factor: 2.947

3.  You want to measure coping but your protocol's too long: consider the brief COPE.

Authors:  C S Carver
Journal:  Int J Behav Med       Date:  1997

4.  Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomised controlled trial.

Authors:  Harvey Max Chochinov; Linda J Kristjanson; William Breitbart; Susan McClement; Thomas F Hack; Tom Hassard; Mike Harlos
Journal:  Lancet Oncol       Date:  2011-07-06       Impact factor: 41.316

5.  Randomized controlled trial of maintaining quality of life during radiotherapy for advanced cancer.

Authors:  Matthew M Clark; Teresa A Rummans; Pamela J Atherton; Andrea L Cheville; Mary E Johnson; Marlene H Frost; Janis J Miller; Jeff A Sloan; Karen M Graszer; Jean G Haas; Jean M Hanson; Yolanda I Garces; Katherine M Piderman; Maria I Lapid; Pamela J Netzel; Jarrett W Richardson; Paul D Brown
Journal:  Cancer       Date:  2012-08-28       Impact factor: 6.860

6.  Learning from losing: ethical, psychoanalytic, and spiritual perspectives on managing the incremental losses of the distributed self in dementia.

Authors:  James W Lomax
Journal:  J Psychiatr Pract       Date:  2011-01       Impact factor: 1.325

7.  Spirituality, religiosity, and spiritual pain in advanced cancer patients.

Authors:  Marvin O Delgado-Guay; David Hui; Henrique A Parsons; Kathy Govan; Maxine De la Cruz; Steven Thorney; Eduardo Bruera
Journal:  J Pain Symptom Manage       Date:  2011-03-12       Impact factor: 3.612

Review 8.  Problem and solution: the spiritual dimension of clergy sexual abuse and its impact on survivors.

Authors:  Kenneth I Pargament; Nichole A Murray-Swank; Annette Mahoney
Journal:  J Child Sex Abus       Date:  2008

9.  Do preparation and life completion discussions improve functioning and quality of life in seriously ill patients? Pilot randomized control trial.

Authors:  Karen E Steinhauser; Stewart C Alexander; Ira R Byock; Linda K George; Maren K Olsen; James A Tulsky
Journal:  J Palliat Med       Date:  2008-11       Impact factor: 2.947

  9 in total
  3 in total

Review 1.  Respecting the spiritual side of advanced cancer care: a systematic review.

Authors:  Katherine M Piderman; Simon Kung; Sarah M Jenkins; Terin T Euerle; Timothy J Yoder; Gracia M Kwete; Maria I Lapid
Journal:  Curr Oncol Rep       Date:  2015-02       Impact factor: 5.075

2.  Improving Spiritual Well-Being in Patients with Lung Cancers.

Authors:  Katherine M Piderman; Terin T Sytsma; Marlene H Frost; Paul J Novotny; Sarah M Rausch Osian; Lise Solberg Nes; Christi A Patten; Jeff A Sloan; Teresa A Rummans; Carrie A Bronars; Ping Yang; Matthew M Clark
Journal:  J Pastoral Care Counsel       Date:  2015-09

3.  A Chaplain-led Spiritual Life Review Pilot Study for Patients with Brain Cancers and Other Degenerative Neurologic Diseases.

Authors:  Katherine M Piderman; Carmen Radecki Breitkopf; Sarah M Jenkins; Terin T Euerle; Laura A Lovejoy; Gracia M Kwete; Aminah Jatoi
Journal:  Rambam Maimonides Med J       Date:  2015-04-29
  3 in total

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