Literature DB >> 24945260

Experiences of ethical issues when caring for children with cancer.

Cecilia Bartholdson1, Kim Lützén, Klas Blomgren, Pernilla Pergert.   

Abstract

BACKGROUND: The treatment for pediatric cancer is often physically, socially, and psychologically demanding and often gives rise to ethical issues.
OBJECTIVE: The purpose of this study was to describe healthcare professionals' experiences of ethical issues and ways to deal with these when caring for children with cancer.
METHODS: A study-specific questionnaire was given to healthcare professionals at a pediatric hospital in Sweden. Qualitative content analysis was used to analyze answers to open-ended questions. The data were sorted into 2 domains based on the objective of the study. In the next step, the data in each domain were inductively coded, generating categories and subcategories.
RESULTS: The main ethical issues included concerns of (1) infringing on autonomy, (2) deciding on treatment levels, and (3) conflicting perspectives that constituted a challenge to collaboration. Professionals desired teamwork and reflection to deal with ethical concerns, and they needed resources for dealing with ethics. IMPLICATIONS FOR PRACTICE: Interprofessional consideration needs to be improved. Forums and time for ethics reflections need to be offered to deal with ethical concerns in childhood cancer care.
CONCLUSIONS: Experiences of ethical concerns and dealing with these in caring for children with cancer evoked strong feelings and moral perplexity among nursing staff. The study raises a challenging question: How can conflicting perspectives, lack of interprofessional consideration, and obstacles related to parents' involvement be "turned around," that is, contribute to a holistic perspective of ethics in cancer care of children?

Entities:  

Mesh:

Year:  2015        PMID: 24945260     DOI: 10.1097/NCC.0000000000000130

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  14 in total

1.  Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence.

Authors:  Yajing Zhong; Alice Cavolo; Veerle Labarque; Chris Gastmans
Journal:  BMC Palliat Care       Date:  2022-06-24       Impact factor: 3.113

Review 2.  Clinical Ethics Support for Healthcare Personnel: An Integrative Literature Review.

Authors:  Dara Rasoal; Kirsti Skovdahl; Mervyn Gifford; Annica Kihlgren
Journal:  HEC Forum       Date:  2017-12

3.  To change or not to change - translating and culturally adapting the paediatric version of the Moral Distress Scale-Revised (MDS-R).

Authors:  Margareta Af Sandeberg; Marika Wenemark; Cecilia Bartholdson; Kim Lützén; Pernilla Pergert
Journal:  BMC Med Ethics       Date:  2017-02-20       Impact factor: 2.652

4.  The experience of providing end of life care at a children's hospice: a qualitative study.

Authors:  Tracey McConnell; Sam Porter
Journal:  BMC Palliat Care       Date:  2017-02-13       Impact factor: 3.234

5.  Balancing different expectations in ethically difficult situations while providing community home health care services: a focused ethnographic approach.

Authors:  Dara Rasoal; Annica Kihlgren; Kirsti Skovdahl
Journal:  BMC Geriatr       Date:  2018-12-14       Impact factor: 3.921

6.  The ethical climate in paediatric oncology-A national cross-sectional survey of health-care personnel.

Authors:  Pernilla Pergert; Cecilia Bartholdson; Margareta Af Sandeberg
Journal:  Psychooncology       Date:  2019-02-14       Impact factor: 3.894

7.  Important situations that capture moral distress in paediatric oncology.

Authors:  Margareta Af Sandeberg; Cecilia Bartholdson; Pernilla Pergert
Journal:  BMC Med Ethics       Date:  2020-01-13       Impact factor: 2.652

8.  Differences in characteristics of children with cancer who receive standard versus concurrent hospice care.

Authors:  Radion Svynarenko; Jennifer W Mack; Lisa C Lindley
Journal:  Pediatr Blood Cancer       Date:  2021-05-27       Impact factor: 3.167

Review 9.  Informed Consent in Pediatric Oncology: A Systematic Review of Qualitative Literature.

Authors:  Ghiath Alahmad
Journal:  Cancer Control       Date:  2018 Jan-Mar       Impact factor: 3.302

10.  Ethical Challenges of Pediatric Cancer Care: Interviews With Nurses in Saudi Arabia.

Authors:  Ghiath Alahmad; Halah Al-Kamli; Haneen Alzahrani
Journal:  Cancer Control       Date:  2020 Jan-Dec       Impact factor: 3.302

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