Literature DB >> 24920582

Grief, anger and despair in relatives of severely brain injured patients: responding without pathologising.

Celia Kitzinger1, Jenny Kitzinger2.   

Abstract

The training and expertise of healthcare professionals in diagnosing and treating pathology can mean that every situation is treated as an instance of illness or abnormality requiring treatment. This medicalised perspective is often evident in clinical approaches to family members of people with prolonged disorders of consciousness. This editorial was stimulated by reviewing an article (final version now published in this issue) concerning the distress of families with severely brain injured relatives,(2) and by reading the larger body of literature to which that article contributes. It was also prompted by the recent publication of national clinical guidelines in the UK about the management of prolonged disorders of consciousness. In this editorial we highlight the depth and range of emotional reactions commonly experienced by families with a severely brain injured relative. We suggest that clinicians should understand such emotions as normal responses to a terrible situation, and consider the ways in which clinical practice can be adapted to avoid contributing to family trauma.
© The Author(s) 2014.

Entities:  

Mesh:

Year:  2014        PMID: 24920582     DOI: 10.1177/0269215514527844

Source DB:  PubMed          Journal:  Clin Rehabil        ISSN: 0269-2155            Impact factor:   3.477


  5 in total

1.  Physiotherapy for vegetative and minimally conscious state patients: family perceptions and experiences.

Authors:  Julie Latchem; Jenny Kitzinger; Celia Kitzinger
Journal:  Disabil Rehabil       Date:  2015-09-04       Impact factor: 3.033

2.  Exploring the perceptions of physicians, caregivers and families towards artificial nutrition and hydration for people in permanent vegetative state: How can a photo-elicitation method help?

Authors:  Elodie Cretin; Lionel Pazart; Marie-Christine Rousseau; Alain Noé; Pierre Decavel; Aline Chassagne; Aurélie Godard-Marceau; Hélène Trimaille; Florence Mathieu-Nicot; Yvan Beaussant; Damien Gabriel; Serge Daneault; Régis Aubry
Journal:  PLoS One       Date:  2017-10-26       Impact factor: 3.240

3.  The partner's experience of traumatic brain injury and its recovery.

Authors:  Gerard A Riley
Journal:  Concussion       Date:  2016-07-28

4.  Caregiver reactions to neuroimaging evidence of covert consciousness in patients with severe brain injury: a qualitative interview study.

Authors:  Andrew Peterson; Fiona Webster; Laura Elizabeth Gonzalez-Lara; Sarah Munce; Adrian M Owen; Charles Weijer
Journal:  BMC Med Ethics       Date:  2021-07-28       Impact factor: 2.652

Review 5.  The impact of prolonged disorders of consciousness on family caregivers' quality of life - A scoping review.

Authors:  Amy Chinner; Ruth Pauli; Damian Cruse
Journal:  Neuropsychol Rehabil       Date:  2021-06-04       Impact factor: 2.928

  5 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.