Yani Hamdani1, Meghann Proulx2, Shauna Kingsnorth3, Sally Lindsay4, Joanne Maxwell5, Angela Colantonio6, Colin Macarthur7, Mark Bayley8. 1. Dalla Lana School of Public Health, University of Toronto, Toronto, Canada Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada. 2. Bloorview Research Institute, Toronto, Canada. 3. Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Bloorview Research Institute, Toronto, Canada Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada. 4. Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Bloorview Research Institute, Toronto, Canada Department of Rehabilitation Sciences, University of Toronto, Toronto, Canada. 5. Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada Toronto Rehab Institute, University Health Network, Toronto, Canada. 6. Dalla Lana School of Public Health, University of Toronto, Toronto, Canada Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada Department of Rehabilitation Sciences, University of Toronto, Toronto, Canada Toronto Rehab Institute, University Health Network, Toronto, Canada. 7. Hospital for Sick Children, Toronto, Canada. 8. Toronto Rehab Institute, University Health Network, Toronto, Canada Faculty of Medicine, University of Toronto, Toronto, Canada.
Abstract
PURPOSE: LIFEspan is a service delivery model of continuous coordinated care developed and implemented by a cross-organization partnership between a pediatric and an adult rehabilitation hospital. Previous work explored enablers and barriers to establishing the partnership service. This paper examines healthcare professionals' (HCPs') experiences of 'real world' service delivery aimed at supporting transitional rehabilitative care for youth with disabilities. METHODS: This qualitative study - part of an ongoing mixed method longitudinal study - elicited HCPs' perspectives on their experiences of LIFEspan service delivery through in-depth interviews. Data were categorized into themes of service delivery activities, then interpreted from the lens of a service integration/coordination framework. RESULTS: Five main service delivery themes were identified: 1) addressing youth's transition readiness and capacities; 2) shifting responsibility for healthcare management from parents to youth; 3) determining services based on organizational resources; 4) linking between pediatric and adult rehabilitation services; and, 5) linking with multi-sector services. CONCLUSIONS: LIFEspan contributed to service delivery activities that coordinated care for youth and families and integrated inter-hospital services. However, gaps in service integration with primary care, education, social, and community services limited coordinated care to the rehabilitation sector. Recommendations are made to enhance service delivery using a systems/sector-based approach.
PURPOSE: LIFEspan is a service delivery model of continuous coordinated care developed and implemented by a cross-organization partnership between a pediatric and an adult rehabilitation hospital. Previous work explored enablers and barriers to establishing the partnership service. This paper examines healthcare professionals' (HCPs') experiences of 'real world' service delivery aimed at supporting transitional rehabilitative care for youth with disabilities. METHODS: This qualitative study - part of an ongoing mixed method longitudinal study - elicited HCPs' perspectives on their experiences of LIFEspan service delivery through in-depth interviews. Data were categorized into themes of service delivery activities, then interpreted from the lens of a service integration/coordination framework. RESULTS: Five main service delivery themes were identified: 1) addressing youth's transition readiness and capacities; 2) shifting responsibility for healthcare management from parents to youth; 3) determining services based on organizational resources; 4) linking between pediatric and adult rehabilitation services; and, 5) linking with multi-sector services. CONCLUSIONS: LIFEspan contributed to service delivery activities that coordinated care for youth and families and integrated inter-hospital services. However, gaps in service integration with primary care, education, social, and community services limited coordinated care to the rehabilitation sector. Recommendations are made to enhance service delivery using a systems/sector-based approach.
Keywords:
Transition; childhood disability; continuity of care; coordinated care; service delivery; young adults
Authors: Hannah Merrick; Helen McConachie; Ann Le Couteur; Kay Mann; Jeremy R Parr; Mark S Pearce; Allan Colver Journal: BMC Health Serv Res Date: 2015-09-30 Impact factor: 2.655
Authors: Hillary L Copp; Jason M Nagata; Kirkpatrick B Fergus; Alan Zambeli-Ljepović; Lindsay A Hampson Journal: BMC Pediatr Date: 2022-08-25 Impact factor: 2.567