Literature DB >> 24888541

Stigma, deviance and morality in young adults' accounts of inflammatory bowel disease.

Benjamin Saunders1.   

Abstract

For young adults with inflammatory bowel disease (IBD), perceived stigma has been found to be a salient concern. Drawing on interviews with individuals with IBD aged 18-29 (n = 16), this article uses rhetorical discourse analysis to explore how stigma is discursively constructed by young adults, with a focus on the moral underpinnings of the participants' talk. Their representations showed both felt stigma and enacted stigma; principally related to the perceived taboo surrounding the symptoms of their condition, which often led to the non-disclosure or concealment of the condition. The different ways in which stigma is manifested in the accounts present a challenge to recent arguments questioning the relevance of this concept in chronic illness research, though it was found that it is not adequate to look at stigma alone and, given the unstable nature of IBD, negotiating stigma in relation to possible charges of deviance is a pertinent issue for these young adults. For instance, non-disclosure because of shame could result in individuals experiencing blame. Accounts were constructed through a range of discursive strategies, allowing the participants to present themselves in morally appropriate ways throughout. Suggestions are made about future directions in addressing stigma and deviance in relation to this cohort.
© 2014 The Author. Sociology of Health & Illness © 2014 Foundation for the Sociology of Health & Illness/John Wiley & Sons Ltd.

Entities:  

Keywords:  deviance; inflammatory bowel disease (IBD); rhetorical discourse analysis; stigma; young adults

Mesh:

Year:  2014        PMID: 24888541     DOI: 10.1111/1467-9566.12148

Source DB:  PubMed          Journal:  Sociol Health Illn        ISSN: 0141-9889


  13 in total

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2.  Stigmatization toward irritable bowel syndrome and inflammatory bowel disease in an online cohort.

Authors:  T H Taft; A Bedell; J Naftaly; L Keefer
Journal:  Neurogastroenterol Motil       Date:  2016-08-08       Impact factor: 3.598

3.  Major depressive disorder, suicidal behaviour, bipolar disorder, and generalised anxiety disorder among emerging adults with and without chronic health conditions.

Authors:  M A Ferro
Journal:  Epidemiol Psychiatr Sci       Date:  2015-09-08       Impact factor: 6.892

Review 4.  Self-management in patients with inflammatory bowel disease: strategies, outcomes, and integration into clinical care.

Authors:  Jill M Plevinsky; Rachel N Greenley; Laurie N Fishman
Journal:  Clin Exp Gastroenterol       Date:  2016-08-23

Review 5.  The patient's experience of primary ciliary dyskinesia: a systematic review.

Authors:  Laura Behan; Bruna Rubbo; Jane S Lucas; Audrey Dunn Galvin
Journal:  Qual Life Res       Date:  2017-03-30       Impact factor: 4.147

6.  "I Don't Like to Make a Big Thing out of It": A Qualitative Interview-Based Study Exploring Factors Affecting Whether Young People Tell or Do Not Tell Their Friends about Their IBD.

Authors:  Bernie Carter; Alison Rouncefield-Swales; Lucy Bray; Lucy Blake; Stephen Allen; Chris Probert; Kay Crook; Pamela Qualter
Journal:  Int J Chronic Dis       Date:  2020-06-11

7.  Are there also negative effects of social support? A qualitative study of patients with inflammatory bowel disease.

Authors:  Alexander Palant; Wolfgang Himmel
Journal:  BMJ Open       Date:  2019-01-21       Impact factor: 2.692

8.  "I can fight it!": A qualitative study of resilience in people with inflammatory bowel disease.

Authors:  Dan Luo; Zheng Lin; Xing-Chen Shang; Sha Li
Journal:  Int J Nurs Sci       Date:  2018-12-26

Review 9.  A systematic review of disease-related stigmatization in patients living with inflammatory bowel disease.

Authors:  Tiffany H Taft; Laurie Keefer
Journal:  Clin Exp Gastroenterol       Date:  2016-03-07

Review 10.  Stigmatisation and resilience in inflammatory bowel disease.

Authors:  Marco Vincenzo Lenti; Sara Cococcia; Jihane Ghorayeb; Antonio Di Sabatino; Christian P Selinger
Journal:  Intern Emerg Med       Date:  2019-12-31       Impact factor: 3.397

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