Literature DB >> 24881078

Patient-centred management in idiopathic pulmonary fibrosis: similar themes in three communication models.

Wim A Wuyts1, Fedro A Peccatori2, Anne-Marie Russell2.   

Abstract

The progressive and highly variable course of idiopathic pulmonary fibrosis (IPF) can present patients and their families with various challenges at different points of the disease. Structured communication between the healthcare professional and the patient is vital to ensure the best possible support and treatment for the patient. While research in this area has been limited, an increasing number of studies are emerging that support the role of communication in patients with debilitating and fatal lung diseases. Communication models used in other conditions that share many challenges with IPF, such as cancer, provide important insights for developing specifically designed patient support and communications models in IPF. Three communication models will be described: 1) the patient-centred care model (for oncology); 2) the three pillars of care model (for IPF); and 3) the Brompton model of care (for interstitial lung disease). Themes common to all three models include comprehensive patient education, encouraged patient participation and an accessible healthcare system, all supported by a collaborative provider-patient relationship. The development of effective communication skills is an on-going process and it is recommended to examine communication models used in other chronic diseases. ©ERS 2014.

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Mesh:

Year:  2014        PMID: 24881078     DOI: 10.1183/09059180.00001614

Source DB:  PubMed          Journal:  Eur Respir Rev        ISSN: 0905-9180


  16 in total

Review 1.  Idiopathic pulmonary fibrosis: a holistic approach to disease management in the antifibrotic age.

Authors:  Jonathon Shaw; Tracey Marshall; Helen Morris; Conal Hayton; Nazia Chaudhuri
Journal:  J Thorac Dis       Date:  2017-11       Impact factor: 2.895

Review 2.  Optimizing quality of life in patients with idiopathic pulmonary fibrosis.

Authors:  Mirjam J G van Manen; J J Miranda Geelhoed; Nelleke C Tak; Marlies S Wijsenbeek
Journal:  Ther Adv Respir Dis       Date:  2017-01-01       Impact factor: 4.031

Review 3.  Idiopathic Pulmonary Fibrosis: Best Practice in Monitoring and Managing a Relentless Fibrotic Disease.

Authors:  Wim A Wuyts; Marlies Wijsenbeek; Benjamin Bondue; Demosthenes Bouros; Paul Bresser; Carlos Robalo Cordeiro; Ole Hilberg; Jesper Magnusson; Effrosyni D Manali; António Morais; Spyridon Papiris; Saher Shaker; Marcel Veltkamp; Elisabeth Bendstrup
Journal:  Respiration       Date:  2019-12-12       Impact factor: 3.580

4.  Adherence to guidelines in idiopathic pulmonary fibrosis: a follow-up national survey.

Authors:  Vincent Cottin; Emmanuel Bergot; Arnaud Bourdin; Jacques Cadranel; Philippe Camus; Bruno Crestani; Jean-Charles Dalphin; Philippe Delaval; Claire Dromer; Dominique Israel-Biet; Romain Kessler; Sylvain Marchand-Adam; Charles Hugo Marquette; Grégoire Prévot; Martine Reynaud-Gaubert; Dominique Valeyre; Benoit Wallaert; Benoit Bouquillon; Jean-François Cordier
Journal:  ERJ Open Res       Date:  2015-11-16

5.  What patients with pulmonary fibrosis and their partners think: a live, educative survey in the Netherlands and Germany.

Authors:  Mirjam J G van Manen; Michael Kreuter; Bernt van den Blink; Ute Oltmanns; Karin Palmowski; Eva Brunnemer; Simone Hummler; Nelleke C Tak; Leon van den Toorn; Jelle Miedema; Henk C Hoogsteden; Marlies S Wijsenbeek
Journal:  ERJ Open Res       Date:  2017-02-14

6.  The Burden of Illness of Idiopathic Pulmonary Fibrosis: A Comprehensive Evidence Review.

Authors:  Alex Diamantopoulos; Emily Wright; Katerina Vlahopoulou; Laura Cornic; Nils Schoof; Toby M Maher
Journal:  Pharmacoeconomics       Date:  2018-07       Impact factor: 4.981

7.  Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study.

Authors:  Sarah Masefield; Nicola Cassidy; Derek Ross; Pippa Powell; Athol Wells
Journal:  ERJ Open Res       Date:  2019-06-04

8.  An educational initiative to improve the team-based care of patients with idiopathic pulmonary fibrosis.

Authors:  Evans R Fernández Pérez; Pearlanne Zelarney; Shirley Thomas; Deborah A Shoop; Jessica L Munson; Kelsey D Johnson; Matthew E Stern; Sarah Meadows
Journal:  ERJ Open Res       Date:  2018-02-16

9.  Unmet needs in the treatment of idiopathic pulmonary fibrosis-insights from patient chart review in five European countries.

Authors:  Toby M Maher; Maria Molina-Molina; Anne-Marie Russell; Francesco Bonella; Stéphane Jouneau; Elena Ripamonti; Judit Axmann; Carlo Vancheri
Journal:  BMC Pulm Med       Date:  2017-09-15       Impact factor: 3.317

Review 10.  Danish respiratory society position paper: palliative care in patients with chronic progressive non-malignant lung diseases.

Authors:  Kristoffer Marsaa; Svend Gundestrup; Jens-Ulrik Jensen; Peter Lange; Anders Løkke; Nassim Bazeghi Roberts; Saher Burhan Shaker; Anita Rath Sørensen; Ingrid Louise Titlestad; Laura Hohwü Thomsen; Ulla Møller Weinreich; Elisabeth Bendstrup; Torgny Wilcke
Journal:  Eur Clin Respir J       Date:  2018-10-16
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