Literature DB >> 24872327

Ethics, "Vulnerability," and Feminist Participatory Action Research With a Disability Community.

Diana L Gustafson1, Fern Brunger2.   

Abstract

We consider the work of research ethics boards and funding models for research that at times are incompatible with the relationship building required for feminist participatory action research with a disability community. We explore the barriers that emerged for university- and community-based partners as they asserted individual and collective identities, and negotiated boundaries, access, and power relations in the process of designing and conducting research. This critical reflection contributes to our understanding of the structures of academic research funding, ethics approval, and how problematic conceptualizations of vulnerability embedded in the Tri-Council Policy Statement and research ethics board practices impact on relationship building and the research process. Recommendations for change will be helpful to researchers studying disability, those using participatory action research, and individuals serving on ethics review boards.
© The Author(s) 2014.

Keywords:  disability / disabled persons; ethics / moral perspectives; feminism; participatory action research (PAR)

Year:  2014        PMID: 24872327     DOI: 10.1177/1049732314538122

Source DB:  PubMed          Journal:  Qual Health Res        ISSN: 1049-7323


  3 in total

1.  Methodological and ethical issues in research using social media: a metamethod of Human Papillomavirus vaccine studies.

Authors:  Diana L Gustafson; Claire F Woodworth
Journal:  BMC Med Res Methodol       Date:  2014-12-02       Impact factor: 4.615

2.  Developing an obesity research agenda with British Pakistani women living in deprived areas with involvement from multisectoral stakeholders: Research priority setting with a seldom heard group.

Authors:  Halima Iqbal; Jane West; Rosemary R C McEachan; Melanie Haith-Cooper
Journal:  Health Expect       Date:  2022-04-28       Impact factor: 3.318

3.  Hierarchy and inequality in research: Navigating the challenges of research in Ghana.

Authors:  Magnus Mfoafo-M'Carthy; Jeff Grischow
Journal:  Qual Res       Date:  2022-05-15
  3 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.