Literature DB >> 24841528

The UK National Health Service's 'innovation agenda': lessons on commercialisation and trust.

Sigrid Sterckx1, Julian Cockbain2.   

Abstract

The UK National Health Service (the 'NHS'), encouraged by the 2011 report Innovation Health and Wealth, Accelerating Adoption and Diffusion in the NHS, and empowered by the Health and Social Care Act 2012, is in the process of adopting a new agenda for stimulating innovation in healthcare. For this, the bodies, body materials, and confidential health information of NHS patients may be co-opted. We explain why this brings the NHS into a moral conflict with its basic goal of providing a universal healthcare service. Putting NHS databases at the disposal of industry, without addressing ethical concerns regarding the privacy, autonomy, and moral integrity of patients and without requiring a 'kick-back' to enhance the service that the NHS provides, is inappropriate. As this article shows, with reference to the commercial arena of direct-to-consumer genetic testing, it is crucial that patient and public trust in the NHS is not eroded.
© The Author 2014. Published by Oxford University Press; all rights reserved. For Permissions, please email: journals.permissions@oup.com.

Entities:  

Keywords:  Data; Health and Social Care Act 2012; NHS; innovation; research; trust

Mesh:

Year:  2014        PMID: 24841528     DOI: 10.1093/medlaw/fwu004

Source DB:  PubMed          Journal:  Med Law Rev        ISSN: 0967-0742            Impact factor:   1.267


  3 in total

1.  What Is Trust? Ethics and Risk Governance in Precision Medicine and Predictive Analytics.

Authors:  Afua Adjekum; Marcello Ienca; Effy Vayena
Journal:  OMICS       Date:  2017-12

2.  Tensions in ethics and policy created by National Precision Medicine Programs.

Authors:  Jusaku Minari; Kyle B Brothers; Michael Morrison
Journal:  Hum Genomics       Date:  2018-04-17       Impact factor: 4.639

3.  "You hoped we would sleep walk into accepting the collection of our data": controversies surrounding the UK care.data scheme and their wider relevance for biomedical research.

Authors:  Sigrid Sterckx; Vojin Rakic; Julian Cockbain; Pascal Borry
Journal:  Med Health Care Philos       Date:  2016-06
  3 in total

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