Literature DB >> 24841404

Effective pseudonymisation and explicit statements of public interest to ensure the benefits of sharing health data for research, quality improvement and health service management outweigh the risks.

Simon de Lusignan1.   

Abstract

This journal strongly supports the sharing of data to support research and quality improvement. However, this needs to be done in a way that ensures the benefits vastly outweigh the risks, and vitally using methods which are inspire both public and professional confidences--robust pseudonymisation is needed to achieve this. The case for using routine data for research has already been well made and probably also for quality improvement; however, clearer mechanisms are needed of how we test that the public interest is served. Ensuring that the public interest is served is essential if we are to maintain patients' and public's trust, especially in the English National Health Service where the realpolitik is that patients can opt out of data sharing.

Entities:  

Mesh:

Year:  2014        PMID: 24841404     DOI: 10.14236/jhi.v21i2.68

Source DB:  PubMed          Journal:  Inform Prim Care        ISSN: 1475-9985


  2 in total

1.  Serological surveillance of influenza in an English sentinel network: pilot study protocol.

Authors:  Simon de Lusignan; Ray Borrow; Manasa Tripathy; Ezra Linley; Maria Zambon; Katja Hoschler; Filipa Ferreira; Nick Andrews; Ivelina Yonova; Mariya Hriskova; Imran Rafi; Richard Pebody
Journal:  BMJ Open       Date:  2019-03-08       Impact factor: 2.692

2.  Grand Duchy of Luxembourg: a case study of a national master patient index in production since five years.

Authors:  Raffaella Vaccaroli; Frédéric Markus; Samuel Danhardt; Heiko Zimmermann; Francois Wisniewski; Pascale Lucas; Hervé Barge
Journal:  BMC Med Inform Decis Mak       Date:  2020-07-17       Impact factor: 2.796

  2 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.