Literature DB >> 24835385

Poverty and pediatric palliative care: what can we do?

Laura Beaune1, Anne Leavens, Barbara Muskat, Lee Ford-Jones, Adam Rapoport, Randi Zlotnik Shaul, Julia Morinis, Lee Ann Chapman.   

Abstract

It has been recognized that families of children with life-limiting health conditions struggle with significant financial demands, yet may not have awareness of resources available to them. Additionally, health care providers may not be aware of the socioeconomic needs of families they care for. This article describes a mixed-methods study examining the content validity and utility for health care providers of a poverty screening tool and companion resource guide for the pediatric palliative care population. The study found high relevance and validity of the tool. Significant barriers to implementing the screening tool in clinical practice were described by participants, including: concerns regarding time required, roles and responsibilities, and discomfort in asking about income. Implications for practice and suggestions for improving the tool are discussed. Screening and attention to the social determinants of health lie within the scope of practice of all health care providers. Social workers can play a leadership role in this work.

Entities:  

Keywords:  Child Poverty Tool and Resource Guide; content validity; life-limiting illness; pediatric palliative care; qualitative methods; social determinants of health

Mesh:

Year:  2014        PMID: 24835385     DOI: 10.1080/15524256.2014.906375

Source DB:  PubMed          Journal:  J Soc Work End Life Palliat Care        ISSN: 1552-4264


  6 in total

1.  Defining Provider-Prioritized Domains of Quality in Pediatric Home-Based Hospice and Palliative Care: A Study of the Ohio Pediatric Palliative Care and End-of-Life Network.

Authors:  Rachel Thienprayoon; Evaline Alessandrini; Millicent Frimpong-Manso; Daniel Grossoehme
Journal:  J Palliat Med       Date:  2018-06-29       Impact factor: 2.947

Review 2.  Child poverty. Ways forward for the paediatrician: A comprehensive overview of poverty reduction strategies requiring paediatric support.

Authors:  Suparna Sharma; Elizabeth Ford-Jones
Journal:  Paediatr Child Health       Date:  2015-05       Impact factor: 2.253

3.  Disparities in Pediatric Palliative Care: An Opportunity to Strive for Equity.

Authors:  Kira Bona; Joanne Wolfe
Journal:  Pediatrics       Date:  2017-10       Impact factor: 7.124

Review 4.  An Integrative Review of Social Determinants of Health Assessment and Screening Tools Used in Pediatrics.

Authors:  Jennifer Morone
Journal:  J Pediatr Nurs       Date:  2017-08-12       Impact factor: 2.145

5.  Home-Based Care for Children with Serious Illness: Ecological Framework and Research Implications.

Authors:  Jackelyn Y Boyden; Douglas L Hill; Gwenn LaRagione; Joanne Wolfe; Chris Feudtner
Journal:  Children (Basel)       Date:  2022-07-26

6.  Minding the gap: access to palliative care and the homeless.

Authors:  Lise Huynh; Blair Henry; Naheed Dosani
Journal:  BMC Palliat Care       Date:  2015-11-18       Impact factor: 3.234

  6 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.