Literature DB >> 24833251

Methods of legitimation: how ethics committees decide which reasons count in public policy decision-making.

Kyle T Edwards1.   

Abstract

In recent years, liberal democratic societies have struggled with the question of how best to balance expertise and democratic participation in the regulation of emerging technologies. This study aims to explain how national deliberative ethics committees handle the practical tension between scientific expertise, ethical expertise, expert patient input, and lay public input by explaining two institutions' processes for determining the legitimacy or illegitimacy of reasons in public policy decision-making: that of the United Kingdom's Human Fertilisation and Embryology Authority (HFEA) and the United States' American Society for Reproductive Medicine (ASRM). The articulation of these 'methods of legitimation' draws on 13 in-depth interviews with HFEA and ASRM members and staff conducted in January and February 2012 in London and over Skype, as well as observation of an HFEA deliberation. This study finds that these two institutions employ different methods in rendering certain arguments legitimate and others illegitimate: while the HFEA attempts to 'balance' competing reasons but ultimately legitimizes arguments based on health and welfare concerns, the ASRM seeks to 'filter' out arguments that challenge reproductive autonomy. The notably different structures and missions of each institution may explain these divergent approaches, as may what Sheila Jasanoff (2005) terms the distinctive 'civic epistemologies' of the US and the UK. Significantly for policy makers designing such deliberative committees, each method differs substantially from that explicitly or implicitly endorsed by the institution.
Copyright © 2014 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Assisted reproductive technologies; Deliberative democracy; Ethics committee; Expertise; Legitimacy; Patient and public involvement; United Kingdom; United States

Mesh:

Year:  2014        PMID: 24833251     DOI: 10.1016/j.socscimed.2014.04.043

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  2 in total

1.  Ethics and Childhood Vaccination Policy in the United States.

Authors:  Kristin S Hendrix; Lynne A Sturm; Gregory D Zimet; Eric M Meslin
Journal:  Am J Public Health       Date:  2015-12-21       Impact factor: 9.308

2.  Ethical issues related to clinical research and rare diseases: 15th Gordon L. Snider Critical Issues Workshop, April 1, 2016, Bethesda, Maryland.

Authors:  Marilyn Coors; Larry Bauer; Kelly Edwards; Karen Erickson; Aaron Goldenberg; John Goodale; Kenneth Goodman; Christine Grady; David Mannino; Adam Wanner; Todd Wilson; Mark Yarborough; Maryan Zirkle
Journal:  Transl Sci Rare Dis       Date:  2017-12-18
  2 in total

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